Thank you again, for your continued support and kind words.
Yesterday my husband had some slight dizziness and we walked too far so his drop foot kicked in a little. We rested and he was fine (dizziness and drop foot gone). I was a little worried because everything was perfect for 2 days, but in the end I felt better because last night at dinner he had so much energy - which would never have been the case in the past with all that walking. At night he would have been "out of it", but wasn't in the least. SO weird! But the best weird ever. When we got back to the room he was up on the computer and I was zonked out in bed. He really is like a new person, but trying not to get too excited because things are probably going to crop up and I have to not worry when they do. Immediately after the operation things were perfect, which we never expected - that is why we needn't worry because to have some MS symptoms is still normal.
If you have a chance to go to Krakow for even the day, be sure to do it. An absolutely beautiful city. Our best meal in Poland was had at "Aperitif" on Sienna St. Wonderful, amazing meal! On Saturday I went on my own to see Auschwitz-Birkenau. Absolutely devastating. Words cannot begin to describe it.
We are leaving Poland today, and making our way home. We have one night in Frankfurt then back to Canada.
Our trip to Poland has been a very emotional one. All the fear and trepidation we felt before coming, is in the very distant past. Coming here has convinced us that CCSVI is the answer, or a big part of the answer. I know this because even if my husband were to take a turn for the worse, just having these few days of normalcy has convinced me. Although most people couldn't tell my husband had MS (little physical disability), it had a very big impact on our lives because of the cognitive issues. Seeing these for the most part disappear has filled me with hope and joy.
We will always have a very deep love and fondness for Katowice. What these brave Polish doctors have done for us, cannot be expressed. While the rest of the world is hashing (and writing nasty articles about Dr. Zamboni!) it out, they are affecting lives right now. When you see the evidence on the screen, you'll see it for yourself and understand. These veins have to be fixed. MS patients do not have the luxury of waiting 3-5 years. We will hold this place, this week in our lives, near to our hearts forever.
Marek & Matchek (sorry about the spelling!) you are the best. Thank you for taking such good care of us, and for helping us everyday. We will be forever grateful. Also, a big thanks and appreciation to all of our wonderful British friends - sharing this experience with you has been so, so meaningful. It meant so much to meet others that have been dealing with the same issues in their lives, especially grappling with CCSVI - but had made the decision to come. Finding other like-minded people here in Katowice was incredible.
I'll keep you up-to-date, and report on any improvements/setbacks.
Thank you again for your wonderful, encouraging posts during our week in Poland!
Last edited by fraser
on Sun Mar 21, 2010 11:31 pm, edited 1 time in total.