Well here we are back at home. So hard to believe we're back - amazing what you can do in a week. It really was a very emotional week, so I'm not only tired from the jet lag, but just the whole experience in general.
My husband was a bit concerned that maybe I painted a picture of Poland that was too idyllic. I thought about it myself, because when the dizziness, foot drop, kicked in I wondered if I mislead everyone and should have held back a bit. But then I thought, why should I?? We did have 2 days of bliss, absolute heaven, so really I was only trying to convey exactly what we were feeling. The following 2 days weren't as great and then that awful superstitious side takes over, where you think "it's because I spoke too soon!". Isn't that an awful feeling, when you think you've brought the downturn upon yourself - so crazy. So anyway, that's what was going through my head in Poland, but feeling entirely optimistic again.
My husband discovered a massive deep purple bruise on his stomach where he's been injecting the blood thinning medication. We kind of freaked out (can cause internal bleeding), but then called his doctor and he said it was probably because he hit a blood vessel, but to keep taking it. The other thing that we discovered, after looking it up online, was that the dizziness and stomach upset he was experiencing could have been caused by the medication. Felt better reading that. Can't wait until the shots are over on Fri. You do have to take aspirin for life, but who cares.
Another huge improvement has been sleep. My husband is really sleeping well, usually not waking up at all during the night. It was a HUGE problem, and really impacted the MS. So..you open up the veins, and you can sleep!! Man, do these blocked veins cause a lot of havoc in the body.
I just want to add, that at first I was scared of the stents. Then I was happy about the stent, when I saw the difference in my husband. Then I was scared again, because he had a few days that were not great. I just want to say that I think I've finally made peace with the stent! I've thought it over a lot, and I now know that whatever happens I am 100% convinced we did the right thing. Going into this, my husband's EDSS score was only 2.5, so I kept thinking if you're in the early days of MS and in pretty good shape, maybe you don't want to risk it with the treatment. In the end, who knows where you'll be in 1 year, 2 years - so here we have a chance to hit this head on. Do you wait it out in fear for the future, or do you grab your chance. That's what this felt like...so even if there are complications down the road, because not everything was known about these stents or of their longevity - my husband (and I) "grabbed life by the horns". It really is a very philosophical time in our lives.
I'll keep you posted on his recovery. Feeling extremely happy today - my husband feels amazing, which fills me with joy.