frodo wrote:Hi again Rici,
Have you tried to contact Ashton Embry at Direct-MS? Their society has a fund for research that could be applied for cases like yours.
gibbledygook wrote:How much money needs to be raised?
Reytan wrote:Rici is the first CCSVI patient in Poland and one of the pioneers in the world. Doctors and we patients have already learned a great deal out of his experiences, both good and bad. “Moral support” is always nice and it goes without saying, but I am afraid he needs more than that to get on his feat again. Maybe instead of donating millions to all kinds of charities and organizations we should send those contributions to individuals who actually desperately need help? Wouldn’t it do more good to all of us in a long run?
You cannot do a kindness too soon because you never know
how soon it will be too late.
--Ralph Waldo Emerson, American philosopher (1803-1882)
We should give as we would receive, cheerfully, quickly,
and without hesitation; for there is no grace in a benefit
that sticks to the fingers.
-- Seneca, Roman statesman & philosopher (4 B.C.?-65 A.D.)
eric593 wrote:Doesn't Poland have a subsidized health insurance system?
Why can't Rici go to any vascular surgeon under the regular healthcare system in Poland and be treated for this problem that has arisen? It doesn't sound like it requires a CCSVI specialist as this goes beyond CCSVI theory and treatment to an issue that any vascular surgeon could deal with.
I'm a little confused why Rici would need to pay for care for this personally.
eric593 wrote:Thanks for the explanation and I wish you the very best, Rici.
I'm still trying to understand, forgive my lack of knowledge. I have only done a little research on the veinous drainage system - I see that many people seem to live with IJ valve incompetence without incidence and that it seems to be a somewhat common occurrence in the healthy population. If it's common, are there no treatments for it then?
Also, if the jugulars are only employed while supine, could it help you to use incline bed therapy to avoid the supine position, so that your body does not use the jugulars very often for drainage but will employ the vertebral venous system for drainage instead that is triggered when in the upright position?
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