That is a one bad venous reflux caused by destroyed valve.

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby mangio » Sun Mar 28, 2010 4:15 pm

Rici, will send you a donation. Hope it helps.
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Postby Brother » Mon Mar 29, 2010 2:17 am

For me, the real heroes in CCSVI are these, who let to undergo surgery, and gave their bodies for experimental operation, risking to suffer the consequences of side effects. It could open new way to beat the M.S. The surgeons are doing their job, but they need the brave people, as Ricci or next after him Erica. Without them any progress will not happen.
Ricci is the good proof sample, he need now another operation. First attempt-13.X, next -19.X. Seven weeks improvement of health condition, but after this period suddenly deterioration. This I s cost of the experimental way. Ricci didn’t give up, he found a professor, which agreed to do the next operation properly, with the valves regeneration. There is not only Ricci suffering the problem, but many others, because of damaged valves. It seems, no one would take the risk on his shoulders and make the next surgery to regenerate the valves. Then Ricci again, he found by himself, abroad the surgeons team, who could do that. This could open new way to fight the vein deformation-the M.S. reasons. It will be big event in the world ! Hi could be the first, absolutely pioneer, who’ll get (according to dr Schelling theory)regenerated jugular vein valve, what is needed by many others. (WWW.ms-info.net kapitel 5). If You could, please, don’t forget: wiercin@gmail.com, it’s Ricci’s PP account (he need the money for the next surgery).
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Postby marcinl0 » Mon Mar 29, 2010 5:07 am

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Postby Rici » Mon Mar 29, 2010 1:53 pm

Opinion Prof. Dr hab. n. med. A. Nestorowicz's of the venous valves

Physiology and pathophysiology of the internal jugular valve during extracorporeal circulation

Abstract

Internal jugular valves are the only venous valves between the right ventricle and the cerebral vessels. Their major role is to prevent sudden changes in cerebral venous pressure during increased intrathoracic pressure, e.g. coughing, sneezing or defecation. Retrograde cerebral venous flow may occur because of the presence of internal jugular valve incompetence, and brief transmission of high venous pressure may occur during positive pressure ventilation, resulting in the disturbance of brain function. The competence of the internal jugular venous valve may be also compromised in the elderly and when the vein is cannulated for insertion of a central venous catheter, as this is common during cardiac surgical procedures. It has been suggested that neuropsychological disturbances, sometimes observed after these operations may be partly caused by cerebral flow disturbances due to internal jugular valve incompetence. Cardiac bypass and mechanical ventilation may also play an important role. Doppler ultrasonography of internal jugular valve function should be performed in high-risk patients before surgery and mechanical ventilation, and in cases where any incompetence is observed, an alternative route for venous access should be considered.
Key words: anatomy; internal jugular valve; anaesthetic techniques, cardiopulmonary bypass
Katedra and Klinika Anestezjologii and Intensywnej Terapii AM Lublin
prof. dr hab. n. med. A. Nestorowicz
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Postby Reytan » Mon Mar 29, 2010 8:21 pm

Rici,
That is an excellent abstract regarding IJV valve physiology and how important role it has. Thank you for sharing that with us.
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Postby Johnson » Mon Mar 29, 2010 11:14 pm

Reytan wrote:Rici,
That is an excellent abstract regarding IJV valve physiology and how important role it has. Thank you for sharing that with us.


I second that, Reytan. Rici's outcome is a lesson for us all. I intend to ask the Polish Docs to be very gentle with my valves, though I hope they have learned from Rici.

marcinl0
There is a really hot discussion on Polish MS forums about Rici treatment&money donation:

What is the tone of the discussion? Is it supportive? Sorry, but my Polish is none existent, and Google mangles things badly.
My name is not really Johnson. MSed up since 1993
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Postby marcinl0 » Tue Mar 30, 2010 12:42 am

Johnson wrote:
marcinl0
There is a really hot discussion on Polish MS forums about Rici treatment&money donation:

What is the tone of the discussion? Is it supportive? Sorry, but my Polish is none existent, and Google mangles things badly.


There are doubts on Polish MS forums that the actual Rici bad "TURBO MS" and neccessity of the next operation are the effects - complications after previous CCSVI operations. It is not very supportive...
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Postby Rici » Tue Mar 30, 2010 8:50 am

Hello
I have a permit from Leszek Krasowski, tell you, that his wife after baloning right side is worse.
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Postby LR1234 » Tue Mar 30, 2010 10:32 am

Hey Rici, My right side vein now has issues that it didn't before (according to last doppler) but I don't feel worse. How long did it take for you to notice there was a big problem?
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Postby Rici » Tue Mar 30, 2010 12:20 pm

LR1234 wrote:Hey Rici, My right side vein now has issues that it didn't before (according to last doppler) but I don't feel worse. How long did it take for you to notice there was a big problem?


Hello
Not everyone what he had done the right side has problems. But those who have had problems and the deterioration of custom made right side,
like also I.

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Postby Rici » Wed Mar 31, 2010 4:23 am

Brother wrote:For me, the real heroes in CCSVI are these, who let to undergo surgery, and gave their bodies for experimental operation, risking to suffer the consequences of side effects. It could open new way to beat the M.S. The surgeons are doing their job, but they need the brave people, as Ricci or next after him Erica. Without them any progress will not happen.
Ricci is the good proof sample, he need now another operation. First attempt-13.X, next -19.X. Seven weeks improvement of health condition, but after this period suddenly deterioration. This I s cost of the experimental way. Ricci didn’t give up, he found a professor, which agreed to do the next operation properly, with the valves regeneration. There is not only Ricci suffering the problem, but many others, because of damaged valves. It seems, no one would take the risk on his shoulders and make the next surgery to regenerate the valves. Then Ricci again, he found by himself, abroad the surgeons team, who could do that. This could open new way to fight the vein deformation-the M.S. reasons. It will be big event in the world ! Hi could be the first, absolutely pioneer, who’ll get (according to dr Schelling theory)regenerated jugular vein valve, what is needed by many others. (WWW.ms-info.net kapitel 5). If You could, please, don’t forget: wiercin@gmail.com, it’s Ricci’s PP account (he need the money for the next surgery).

Many thanks brother.
Mother suffering M.S. son phoned me. For her son is worse after the operation, a vein on the right. Unfortunately. This is no joke. The next confirmation of the theory of Dr.. Schelling.
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Postby greyman » Wed Mar 31, 2010 5:14 am

Rici wrote:Many thanks brother.
Mother suffering M.S. son phoned me. For her son is worse after the operation, a vein on the right. Unfortunately. This is no joke. The next confirmation of the theory of Dr.. Schelling.
Regards
Rici


Rici, you must do something, you must act fast!! You have contacts in the local television, newspapers, forums, you must tell everyone not to do the procedures any more! It's dangerous! The doctors should stop doing them as soon possible!
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Postby LR1234 » Wed Mar 31, 2010 7:12 am

I wonder what is causing some the problem in some people and not in others??? What is Dr Schelling's opinion on this?
I suspect that MS vascular issues are not contained just in the jugulars and the azygous, I imagine there are other areas which are blocked so when normal flow is restored to one area and there is a blockage in another area there is a backlog of blood which pools in one area.
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Postby cheerleader » Wed Mar 31, 2010 8:19 am

LR1234 wrote:I wonder what is causing some the problem in some people and not in others??? What is Dr Schelling's opinion on this?
I suspect that MS vascular issues are not contained just in the jugulars and the azygous, I imagine there are other areas which are blocked so when normal flow is restored to one area and there is a blockage in another area there is a backlog of blood which pools in one area.


Agreed, LR-I'm beginning to wonder if the venous stenosis issue is thruout the body in some pwMS...perhaps the liver is involved? Budd-Chiari disease can create jugular reflux, so can congestive heart failure. Is there any chance of Rici getting a complete vascular work-up? It would be a shame to fix the jugular valve and not address the entire problem...
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby Rici » Wed Mar 31, 2010 10:46 am

cheerleader wrote:
LR1234 wrote:I wonder what is causing some the problem in some people and not in others??? What is Dr Schelling's opinion on this?
I suspect that MS vascular issues are not contained just in the jugulars and the azygous, I imagine there are other areas which are blocked so when normal flow is restored to one area and there is a blockage in another area there is a backlog of blood which pools in one area.


Agreed, LR-I'm beginning to wonder if the venous stenosis issue is thruout the body in some pwMS...perhaps the liver is involved? Budd-Chiari disease can create jugular reflux, so can congestive heart failure. Is there any chance of Rici getting a complete vascular work-up? It would be a shame to fix the jugular valve and not address the entire problem...
cheer


The problem is complex. Veins in each person are different. During the last conversation with Dr. Schelling I learned of the great importance of the CSF pressure in case of absence of valves. Therefore, he is recommending to regenerate the valves also the left hand side. Drastic deterioration occurred after the removal of the valve on the right hand side of the neck.. It is no coincidence that applies not only for my case. Therefore my operation of reconstructing the valves is significant for other people interest as well.
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