That is a one bad venous reflux caused by destroyed valve.

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby Rici » Sat Apr 10, 2010 4:00 am

Thank you for effective financial support for: PEPE, ARNE - MUSE, JOHNSON, JERZY G. MALGORZATA T., SHARON FROM RICHMOND, PRZEMYSLAW K., MICHAL S. STIG G, ALEXANDRA G, ALAN McG, ESA, MONIKA K, DANIEL CH, LEANNE M., BELINDA SH . PIERRE B. TREVOR W., JOLANTA B., WIOLETTA B., CROCKY - S.,J L GARCIA DE A., WILLIAM M., ALAN McG., JULIE R. PATRIK E. BARBARA G. MAREK F., GEORGE B., today, 09.05. + J CHRISTOPHER S. today.
Greetings
Rici
Last edited by Rici on Sun May 09, 2010 9:46 am, edited 16 times in total.
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Postby Edser » Sat Apr 10, 2010 4:44 am

Good Afternoon TiMS & Rici
Myself & Anna spoke with you yesterday on SKYPE & you appeared to be very tiered.I've being saying prayers for you.PLEASE PLEASE be strong.You are a fantastic man.You opened up the "DOOR'S" for many people worldwide in Katowice(Poland) & you deserve the chance to SHINE...like the STAR that you really are.Remain ++POSITIVE++ my friend.
Slainte Mo Chara
Edser & Anna
Never judge a Book by it's cover.
Edss Before Procedure:6
Edss After Procedure:4
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Postby Brother » Sat Apr 10, 2010 11:01 am

Yes, i've got message form him and it seemed to very sad. I'm afraid, he could give up. It's for me really frustrating, after all long fight. Rici need an encouragement from as many as possibl, not only because of him. Many others visit this forum and I think he is a hope for some of us.
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Postby Rici » Sun Apr 11, 2010 3:26 am

Hello

Thank you Edser, thank you brother. Life is not easy.

Regards
Rici
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Postby Rici » Wed Apr 21, 2010 3:35 am

Many thanks Crocky.
Today I received your letter from Katowice. It is very kind of you. I thought that forgot about me. Once again, thank you Croky. Each brick brings me to the end.
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Rici
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Postby crocky » Thu Apr 22, 2010 2:25 am

It was a pleasure Rici - like many on this forum I follow your story - wish all the best of luck to you in your recovery - all the best - Suzanne
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Postby Rici » Sat Apr 24, 2010 2:55 am

crocky wrote:It was a pleasure Rici - like many on this forum I follow your story - wish all the best of luck to you in your recovery - all the best - Suzanne

Hi Suzanne
I have the satisfaction that Dr.. Ludyga himself to be persuaded by Dr. Simka and me to my operation. Gates opened ...
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Rici
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Postby crocky » Mon Apr 26, 2010 8:33 am

Hi Rici

Sorry, but I didn't really understand your reply then - did you mean that a doctor in Poland would do your operation for you?
I hope so - keep us all up to date
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Postby Rici » Mon Apr 26, 2010 9:57 am

crocky wrote:Hi Rici

Sorry, but I didn't really understand your reply then - did you mean that a doctor in Poland would do your operation for you?
I hope so - keep us all up to date

Hi Crocky
Sorry for my English, I meant here is what happened in October 2009. Next the operation will not be in Poland.
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Rici
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Postby LR1234 » Mon Apr 26, 2010 10:59 am

Hey Rici, How are you doing? have any of the MS drugs managed to stop your deteriation whilst waiting for the new procedure?

I hope things have slowed down with your turbo MS.

I want to have my veins ballooned again but I still don't understand what went wrong with you and what I need to ask Simka and Ludgya not to do so the same doesn't happen to me. Do I ask them not to balloon or stent the right vein? but let them do the left?

L x
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Postby frodo » Mon Apr 26, 2010 12:12 pm

LR1234 wrote:Hey Rici, How are you doing? have any of the MS drugs managed to stop your deteriation whilst waiting for the new procedure?

I hope things have slowed down with your turbo MS.

I want to have my veins ballooned again but I still don't understand what went wrong with you and what I need to ask Simka and Ludgya not to do so the same doesn't happen to me. Do I ask them not to balloon or stent the right vein? but let them do the left?

L x


It is explained at the beginning of the thread. He had an inverted valve in the jugular. Dr. Simka (or maybe Ludgya) thought that destroying it the situation would improve, but just the opposite happened. Now the reflux is bigger and he is feeling much worse.

The only solution is to transplant a vein from his leg to his neck. Never such an operation has been performed, and it is very expensive. He has got already half the needed amount, but he needs help for the rest.

Please, spread the word.
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Postby Johnson » Mon Apr 26, 2010 1:52 pm

As mentioned by frodo, Rici needs to have an operation in Israel - hat has never been done before. This operation, and Rici's bad experience, are important facets of the research into CCSVI, and Rici needs financial help. He was advised to set up a PayPal account to receive donations towards having the operation. He still needs about 20,000 U$D. If everyone who reads here could chip in the cost of a new CD, or a few beers, Rici could quickly be helped. Rici was the first to have Liberation in Poland, and so is truly a pioneer. I think that we can not afford to turn away.

Rici, perhaps you can post again the information for your PayPal account? It is way up there somewhere.
My name is not really Johnson. MSed up since 1993
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Postby LR1234 » Tue Apr 27, 2010 12:57 am

Thanks guys for re-explaining. The part I would like to know is how can this be avoided in the future? Is it just the ballooning of the right valve that is the issue? If/when I go back to Poland I might ask them to do the left again only. Has the treatment method changed in Poland since what has happened to Rici?
I have already donated to Rici. As the pioneer of CCSVI treatment I want to see him feeling better again.
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Postby Rici » Tue Apr 27, 2010 2:18 am

LR1234 wrote:Thanks guys for re-explaining. The part I would like to know is how can this be avoided in the future? Is it just the ballooning of the right valve that is the issue? If/when I go back to Poland I might ask them to do the left again only. Has the treatment method changed in Poland since what has happened to Rici?
I have already donated to Rici. As the pioneer of CCSVI treatment I want to see him feeling better again.

Hi
Veins in each are different. I just practiced sport. This has the following meaning: I have Extended the vein on the right. A large lung capacity. When I exhale valve reflux without venous blood beats in my brain. This can be seen on my web page. Dr. Schelling is predicted in my case. He found out, and I am a professor who will do the operation as instructed by Dr.Schelling. In addition, being a pioneer in cost. Be of good cheer. How not to understand, I ask my friend for help.
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Rici
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Postby Rici » Thu Apr 29, 2010 3:27 pm

Hi
Today for the first time as much as three people supported me financially, here are their names: Alan McG. Julie R. Patrik E. I want to thank them very much. I almost thought that my request slowly went forgotten. Today I spoke with Dr. Schelling. He agrees with the idea of informing CTV of my valve regeneration surgery attempt.
Best regards,
Rici
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