moochsid wrote:Sorry if I am misreading your regrettable situation but is the inference here that angioplasty has exacerbated or caused this reflux due to the lack of valves ? If so is it not an issue that should have been flagged up pre-surgery by the doctors?
Johnson wrote:moochsid wrote:Sorry if I am misreading your regrettable situation but is the inference here that angioplasty has exacerbated or caused this reflux due to the lack of valves ? If so is it not an issue that should have been flagged up pre-surgery by the doctors?
I don't like to answer for RICI (especially as my understanding is not complete), but I believe that Rici's right IJV was significantly larger in diameter than the norm (~6 cm?), and had a faulty valve to boot. The valve was thought to be causing reflux, and so was deliberately ablated during the angioplasty procedure. This has caused an even greater reflux, which has left Rici much worse off than before the procedure. He now needs to have a vein taken from his leg, to be transplanted in his neck to stop that pathology. He needs help financially, so if everyone who reads his story could send him a hundred, or 50, or 10 dollars, or what they can afford to help him pay for a much more expensive procedure, it would help Rici, and ultimately, everyone - by helping to further the knowledge base around fixing our venous problems. Maybe instead of donating to the MS Societies, we can send those contributions to Rici - it would probably do a lot more to furthering our cause than the paltry amount that the MS Societies are putting towards CCSVI research.
Check out the video of his reflux on his web page. It is scary. Click on the Reflux Ryszard W. link.
edit - link
muse wrote:You’re right Johnson, if possible please help Rici he is one of our pioneers & he has already done a lot to push CCSVI, thanx!
p.s. That’s no fraud, Rici’s story is true!
I am so sorry for this complication! I truly wish you well. I spoke with Dr. Schelling in Bologna regarding venous reflux, and he was very concerned about this possibility of "venous back jets."
I have a couple of questions, maybe you might know. Wouldn't the fact that blood is refluxing indicate blockage further downstream, closer to the heart, maybe in the azygos vein? Does Dr. Schelling think this reflux is due to a heart defect? What does he think is causing the blood to surge upwards from your heart? I wonder if he has addressed this with you. We haven't seen this in other MS patients- but it may be in issue in some, if not all. Also, in his paper, Dr. Schelling suggested complete removal of the jugular vein in this instance of venous back jets. Has this been suggested to you?
please keep us informed.
all the best,
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