Villagemaid wrote:Thanks for sharing. I need to hear of some people who have had the procedure done and had problems. It's very easy to get hyped up when hearing about all the positive or neutral outcomes - we just can't forget about the downsides that can (and do) occur...
Hi, well, I do not know if it helps but I had the procedure in November 2009. I have one stent in my left jugular vein. My right jugular vein was OK before the procedure and it was also OK whe I had my follow up in January 2010. I do not feel worse than before the procedure, I did not have any attack. My walking started to be better after 6 or 7 weeks. My fatigue was never completely gone but I had more energy during the first 33 days than I have now. You must also know that I have anemy and I still feel side affects from Carbamazepin - fatigue, sleepness, weakness - anemy has the same problems, but I know MS has it as well.
The first 3 months I spent daily 10 hours on the internet. I was very tired but I did not have the heart not to answer people.
I will try to ask my neuro to change to Gabapentin tomorrow - I will see, maybe I am lucky.
Flow in my left vein is not still as strong as in the right vein. It was zero before the procedure so now it is better.
I am 138 days after the procedure. I did not have any problems with Clexane, I did not have any problems/pain with my stent.
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse