newlywed4ever wrote:Dr Sclafani - you have moved me to tears with your compassion & expertise. Both myself (PPMS) and my daughter (RRMS) are on "your list" for dx & treatment. During the wait, I pray and learn - thank you!
This was a very interesting post to me but I didn't want to hijack Dr Sclafani's excellent thread so I started a new one.
Some scientists/neurologists think PPMS and RRMS may be completely different diseases. This has bothered me in light of CCSVI. If CCSVI is a big part of MS, and the CCSVI malformations are congenital, and heredity plays a role, then I find it very interesting that a parent with PPMS has a daughter with RRMS. I don't even really know what I'm trying to say here yet, and I have to go to lunch. Sorry. I think I'm trying to say that this is strong evidence (at least in one antectdotal case) that PPMS and RRMS are indeed just different manifestations of the same problem. Maybe I can make more of this later.