This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Sat May 18, 2013 3:01 am


All times are UTC - 8 hours [ DST ]




Post new topic Reply to topic  [ 16 posts ]  Go to page 1, 2  Next
Author Message
PostPosted: Mon Mar 22, 2010 3:51 pm 
Offline
Family Elder
User avatar

Joined: Sat Jan 02, 2010 4:00 pm
Posts: 290
Location: SF Bay Area, CA
:?:

How long and how "bad" is it after the procedure has been done?

Those who have done it - can you either point me to the already existing thread on this subject or just answer it here?

Thank you in advance!

_________________
DXed 09/07
<strong><strong>MSIS-29 = 88</strong></strong>


Top
 Profile  
 
 Post subject:
PostPosted: Mon Mar 22, 2010 5:47 pm 
Offline
Family Elder

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8505
I haven't had it done yet but I've researched it here...there's basically nothing to recover from. A band-aid on the incision near the groin where the catheter went in. A prescription of blood thinners in case of clotting. Some have had headaches. It's an outpatient procedure & if it works, you probably feel better afterwards than you did going in to it. Hope to help.

_________________
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition


Top
 Profile  
 
 Post subject:
PostPosted: Mon Mar 22, 2010 7:48 pm 
Offline
Family Member
User avatar

Joined: Mon Dec 21, 2009 4:00 pm
Posts: 89
Location: Melbourne, Australia
I had the angioplasty last week. It's a day procedure and yes you just have a bandaid over the point of insertion in the groin.

You have to lie flat for a couple of hours afterwards, then I got up and sat in my wheelchair for 2 hours before my husband arrived to pick me up.

I felt tired for a day or so, but still able to do everything as before. I don't even have blood thinners to take!!

So to answer you, you'll feel the same or better immediately after the procedure and you'll be up and 'running' a couple of hours later.

Hope that sets your mind at ease.


Top
 Profile  
 
 Post subject:
PostPosted: Mon Mar 22, 2010 10:07 pm 
Offline
Family Elder
User avatar

Joined: Sat Jan 23, 2010 4:00 pm
Posts: 465
They put a bandage over the incision (which was very small 1/4 inch?), and had me lie on my back for 4 hours. Got up, walked a bit, then released. No pain, no headaches. Tired, but then it was a long day.

Prescibed Plavik for 30 days (one pill per day).

Started to feel better the next day.

Donnchadh


Top
 Profile  
 
 Post subject: Really?!?!
PostPosted: Mon Mar 22, 2010 10:12 pm 
Offline
Family Elder
User avatar

Joined: Sat Jan 02, 2010 4:00 pm
Posts: 290
Location: SF Bay Area, CA
On my!

Thank you all for responding!

I might be then having one of the "brain fog" episodes because I (think) I am remembering people posting about stiff necks and not handling anything for a certain time...


Top
 Profile  
 
 Post subject: recovery advice
PostPosted: Tue Mar 23, 2010 12:09 am 
Offline
Family Elder
User avatar

Joined: Thu Nov 26, 2009 4:00 pm
Posts: 356
Location: Melbourne, Australia
it probably depends on where they've ballooned. I was smiling and laughing coming out of the operating theatre..but felt quite sensitive in my head for a couple of days (stenosis was in my head). When the sensitivity subsided, I had a weird feeling for another couple of days. Strangely, it felt like part of my head was full of scrunched up newspaper. Also seemed to go through a a day or two where it felt like my venous sinuses were readjusting to the new fluid dynamics in my head.

These were more unusual, uncomfortable feelings ...not painfl. They didn't stop me going about my day.

hwebb


Top
 Profile  
 
 Post subject:
PostPosted: Tue Mar 23, 2010 12:25 am 
Offline
Family Elder
User avatar

Joined: Sun Nov 29, 2009 4:00 pm
Posts: 109
Location: Melbourne, Australia
I think the only people who had noticeable discomfort post-op were those that had stents placed in the jugulars. I'm not sure if the same discomfort was experienced for those with Azygous issues.


Top
 Profile  
 
PostPosted: Tue Mar 23, 2010 2:32 am 
Offline
Family Elder
User avatar

Joined: Thu Nov 26, 2009 4:00 pm
Posts: 356
Location: Melbourne, Australia
that's true! they ballooned my azygous too - and i haven't felt any discomfort since (hardly aware of any changed sensation around the azygous)


Top
 Profile  
 
 Post subject:
PostPosted: Tue Mar 23, 2010 3:00 am 
Offline
Family Member
User avatar

Joined: Thu Nov 12, 2009 4:00 pm
Posts: 75
Location: Maine
I had both jugulars and azygos ballooned, but no stents. Recovery is comparable to getting a haircut :D

Biggest issue is taking blood thinners for 2 months afterward. No big deal for me, but it is a slight change in body chemistry.

_________________
Mitch
Please visit my blog at www.enjoyingtheride.com


Top
 Profile  
 
 Post subject:
PostPosted: Sun Mar 28, 2010 8:57 pm 
Offline
Family Elder
User avatar

Joined: Sat Jan 02, 2010 4:00 pm
Posts: 290
Location: SF Bay Area, CA
EnjoyingTheRide wrote:
I had both jugulars and azygos ballooned, but no stents. Recovery is comparable to getting a haircut :D



:lol: That's a funny comparison :lol:

Thanks again, everybody!


Top
 Profile  
 
 Post subject:
PostPosted: Mon Mar 29, 2010 5:07 am 
Offline
Family Elder
User avatar

Joined: Mon Oct 03, 2005 3:00 pm
Posts: 899
The people with shoulder pain/neck pain, had stents put in, not just angioplasty.


Top
 Profile  
 
 Post subject: recovery from ccsvi
PostPosted: Mon Mar 29, 2010 6:38 am 
Offline
Family Elder
User avatar

Joined: Sat Mar 27, 2010 4:00 pm
Posts: 162
boy there are some thick skinned people out there! I am a firm believer in CCSVI theory but comparing the procedure to getting a haircut? I am a fitness fanatic, eat great, good shape, and hate to be the gloom and doomer but took me a good 2 weeks to recover. I did somehow happen to get a urinary tract infection and i dont think that helped matters but i didnt have stents either. Plus the warfarin drug is just that. War it is and fairin it aint. Shouldnt stop anything or anybody it isnt anything one cant overcome. But lets be real anytime you get poked and prodded there is some recovery.


Top
 Profile  
 
 Post subject: Re: recovery from ccsvi
PostPosted: Mon Mar 29, 2010 6:48 am 
Offline
Family Member
User avatar

Joined: Thu Nov 12, 2009 4:00 pm
Posts: 75
Location: Maine
THEGREEKFROMTHED wrote:
boy there are some thick skinned people out there! I am a firm believer in CCSVI theory but comparing the procedure to getting a haircut?


Maybe it's not that I'm thick skinned. Maybe I've just had some really bad haircuts. :D

Seriously though, I guess I just had a really good go of it. No complications, no follow-up illnesses. Although I've heard that coumadin gives some people trouble, I've been lucky. I don't even know I'm on it. But my blood tests confirm that I'm getting the right dosage.

Part of this may be that I sit in a wheelchair all day anyway, which is not very demanding on the body. When you don't ask much of your body, it's less likely to let you down.

_________________
Mitch
Please visit my blog at www.enjoyingtheride.com


Top
 Profile  
 
 Post subject: enjoy the ride
PostPosted: Mon Mar 29, 2010 9:12 am 
Offline
Family Elder
User avatar

Joined: Sat Mar 27, 2010 4:00 pm
Posts: 162
no you are wrong! You are thick skinned. You are a tough man and i give you a ton of credit. The travel alone is not easy let alone without assistance.. And those Brooklyn cab rides will kick your butt! Plus I am kind of a head case so I got myself pretty worked up during all that waiting around at Kings county. I think part of my problem was working myself up and all the events leading up to and coming down from! Keep me updated will ya! p.s. gimme that barbers number!


Top
 Profile  
 
 Post subject: Re: Really?!?!
PostPosted: Mon Mar 29, 2010 10:06 am 
Offline
Family Member
User avatar

Joined: Wed Jan 06, 2010 4:00 pm
Posts: 87
ndwannabe wrote:
On my!

Thank you all for responding!

I might be then having one of the "brain fog" episodes because I (think) I am remembering people posting about stiff necks and not handling anything for a certain time...


I believe most of those were from Stanford procedures where they had to treat high stenoses and there was accessory nerve damage from the ballooning.


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 16 posts ]  Go to page 1, 2  Next

All times are UTC - 8 hours [ DST ]


Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. First liberation procedure in UK

[ Go to pageGo to page: 1 ... 10, 11, 12 ]

GiCi

174

34243

Tue Mar 09, 2010 12:01 pm

ozarkcanoer View the latest post

There are no new unread posts for this topic. My 2nd Liberation Procedure.....

Donnchadh

7

1402

Thu Jun 24, 2010 7:20 pm

Shueywho View the latest post

There are no new unread posts for this topic. Third liberation procedure

GiCi

8

1635

Sun Jul 11, 2010 7:09 am

L View the latest post

There are no new unread posts for this topic. Has anyone had the Liberation Procedure done twice?

hollyberry

11

1143

Tue Aug 02, 2011 8:46 am

GiCi View the latest post

There are no new unread posts for this topic. Liberation Procedure done in Texas

North52

1

1177

Mon Jun 14, 2010 12:19 am

costumenastional View the latest post

 


Who is online

Users browsing this forum: No registered users


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to: