lshashan wrote:My son has Secondary progressive MS with severe tremors and mystatin of the eyes. We have been reading about (CCSVI) Chronic Cerebrospinal Venous Insufficiency.
Does anyone know of a neurologist in the Seattle area who is open to the idea of looking into this treatment?
I would strongly
suggest looking for an Interventional Radiologist
instead of a neurologist. The reason being an IR can actually do the corrective procedure (venoplasty or stent placement), and a neurologist isn't qualified to do so. A neurologist can only determine if you have MS.
That's what I did.
You need to get either a color echo Doppler ultrasound, or a MRV done per CCSVI protocols, and then find a radiologist qualified to "read" the images and data
to determine if there are any venous problems.
The ultimate test is the venogram
; live X-ray images capable of clearly showing exactly what's going on in the veins.
Start by googling for an Interventional Radiologist in your area, and contact them to see if they would be willing to consider CCSVI treatment. The word is spreading fast among the IR's.