Hello Brightspot, Babiezuique and Iggy,
Thank you for your replies.
Regarding registrations for this summit: I sent an e-mail to the contact address: email@example.com
asking if the summit was open to all patients and expressing interest in attending as an MS patient for over 15 1/2 years. I received a welcoming response with a registration form and a waiver form to fill out and return, which I have done. The contact person said that there is no charge to participants.
I really want to attend, so will be doing plenty of resting up before to ensure I have the energy.
If you read entries from patients in the section "Your Story", you'll notice that these are patients with a variety of illnesses, so this summit is geared to patients with any illness.
I did see the list of sponsors, yes - the MS Society and many other advocate agencies are sponsors, as well as pharmaceutical companies. In attendance will be a number of MPs as well as the Minister of Health.
Have a look at the website and the agenda. From the following quote on the website's home page, it appears that this first-ever Canadian Patients Summit is a most timely event considering what we MSers are going through at the moment with regard to CCSVI - and accessing testing and the procedure locally. On the 29th at 10:30am, the Panel will be speaking on "Is the patient voice heard in Canada today?" And at 12:30, George Smitherman speaks on "Can local governments support greater patient involvement in living well?"
"Living with a health condition means we see first-hand the challenges of accessing health in Canada today.
Yet our perspective – that of the patient voice – is rarely heard by health policy decision-makers.
March 28 & 29 we are coming together to explore ways our patient voice can be heard.
We want to make a difference so that healthcare meets the needs of all 32 million Canadians."
Another quote: "More than 100 patients living with chronic medical conditions will share their solutions for ensuring that patients are part of government decisions on the future of Canada's health care system."
I think this would be a wonderful opportunity for any of us who are able to attend. My hope is that at last, maybe patients and our loved ones (our true advocates) can really have a voice that is not only heard, but listened to. We have been writing to the various MPs, etc., and I'm hoping that in this forum the ones attending will take into account our feedback and our votes.
If anyone from here is attending and you would like to meet up, please let me know.
Take care and God Bless,