CCSVI problems after surgery

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

CCSVI problems after surgery

Postby Rosegirl » Wed Mar 24, 2010 1:27 pm

It's difficult to find standardized answers from folks who have benefited from the liberation treatment. It seems like there are over 300 people now, and where is the overview of their progress? What happened short term? And how have things changed over time?

And how many patients have had bad experiences? Other than Rici, I haven't found any information on adverse effects of CCSVI. Is it because this is such a safe procedure? Or is it because that information is not (yet?) available?
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Re: CCSVI problems after surgery

Postby Donnchadh » Wed Mar 24, 2010 2:01 pm

Rosegirl wrote:It's difficult to find standardized answers from folks who have benefited from the liberation treatment. It seems like there are over 300 people now, and where is the overview of their progress? What happened short term? And how have things changed over time?

And how many patients have had bad experiences? Other than Rici, I haven't found any information on adverse effects of CCSVI. Is it because this is such a safe procedure? Or is it because that information is not (yet?) available?


Judging from the responses of people who have given their narratives, and Dr. Zamboni's papers, it would seem the main adverse after effect is that in venoplasty, there's a real chance of re-stenosis.

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Postby Ruthless67 » Wed Mar 24, 2010 2:22 pm

Rosegirl,

There's also been some accessory nerve flare-ups in some stented patients, and I read that no one likes the side effects from having to take coumadin post-surgery.

Lora
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Re: CCSVI problems after surgery

Postby Rici » Wed Mar 24, 2010 3:09 pm

Rosegirl wrote:It's difficult to find standardized answers from folks who have benefited from the liberation treatment. It seems like there are over 300 people now, and where is the overview of their progress? What happened short term? And how have things changed over time?

And how many patients have had bad experiences? Other than Rici, I haven't found any information on adverse effects of CCSVI. Is it because this is such a safe procedure? Or is it because that information is not (yet?) available?


But me, two more in Poland, one is here : http://www.thisisms.com/ftopict-10758.html
I've already got out.
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