Hold your breath!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby thisisalex » Sat Mar 27, 2010 12:40 am

a possible explanation could be that when there is a stenosis in the jugular the vein gets more elastic in order to carry more blood ... ??
User avatar
thisisalex
Family Elder
 
Posts: 218
Joined: Wed Dec 02, 2009 4:00 pm
Location: Hungary

Advertisement

Postby eve » Sat Mar 27, 2010 1:12 am

Well...my two cents - As mentioned in the yahoo question I qouted, the swelling/filling of blood of both jugulars is common in hornplayers. This is because of the reflux caused by de valsava (which is what it is called when holding breath or playing a horn) which backs up the blood in the jugulars.

Obviously they put a lot of prolonged strain on their jugs on a regular basis. So for me to have this vein fill up so quickly means that the blood backing up as a result of the valsalva has no place to go. So that could mean stenosis somewhere up the right jug, is my very uneducated guess.

I will be so disillusioned if Dr S proves me wrong. :lol: :wink:
Last edited by eve on Sat Mar 27, 2010 3:11 am, edited 1 time in total.
dx 2002,RRMS,  suspected begin of MS 1978 (age 10)
User avatar
eve
Family Elder
 
Posts: 117
Joined: Tue Jan 05, 2010 4:00 pm
Location: Netherlands

Postby thisisalex » Sat Mar 27, 2010 2:45 am

found something:

Q. I am a 41 years old woman having varicose veins on the back of my both knees. When I lie down I find that my neck vein also has varicosity.

A. The varicose veins of the leg are quite common and the ones on the back of the knee are also fairly common. It is unusual to have varicose veins of the neck. The neck veins are usually visible on lying down in some people more than in others as they become visible due to the position.. In heart failure the veins may become prominent. The only situations where the veins are visible and tortuou, when not related to position, are either due to malformations or blockage of the chest veins.

Answered by : Dr. Shiban K. Chaku
Senior Consultant Surgeon,
Indraprastha Apollo Hospitals,
New Delhi

source: http://doctor.ndtv.com/faq/ndtv/fid/150 ... neck-.html
User avatar
thisisalex
Family Elder
 
Posts: 218
Joined: Wed Dec 02, 2009 4:00 pm
Location: Hungary

Postby Johnson » Sat Mar 27, 2010 4:24 am

Huh. I did the experiment with no discernible swelling... but wait! When I first heard of CCSVI, I started paying attention to my neck veins. I noticed that I could see prominent veins, that seemed to "disappear" and re-appear. I thought that perhaps the veins just went "deeper" at some point, and re-surfaced, but after seeing my MRV pics, I can see that the prominence of veins in my neck are concomitant with the stenoses on the MRV.

I am afraid to do the valsalva, or hold my breath.
My name is not really Johnson. MSed up since 1993
User avatar
Johnson
Family Elder
 
Posts: 979
Joined: Tue Dec 01, 2009 4:00 pm
Location: Ucluluet, BC

Postby L » Sat Mar 27, 2010 6:46 am

eve wrote:I would love to be scanned and see where my blockages are - I think that we might find that people who have this swelling will all have stenosis in much the same place. Or so I guess. I hope Dr S will have some time for me today. :)


I was thinking just the same thing. I was thinking that atypical stenosis sites may explain some of the negative results people have been getting. Glad to hear of the unexpected improvement.
User avatar
L
Family Elder
 
Posts: 946
Joined: Sat Oct 20, 2007 3:00 pm
Location: The United Kingdom

Postby Luvsadonut » Sat Mar 27, 2010 12:39 pm

Ive suffered with MS for 10 years I tried this today and my right jugular become a lot more prominent whilst I was holding my breath, my wife who is fit and healthy, held her breath and no veins in her neck changed. This is more remarkable as she is fairly veiny!! Although this gives me hope as Im waiting for an appointment date in Poland, I cant help thinking that this test seems very basic with many possible explanations but hopefully I will be proven wrong. Also, could the way in which we hold our breath make a difference?? For eg, should we be holding our breath with tight stomach muscles or should we relax and just not breathe. I noticed when I was doing the test that my veins were more prominent when tightening and holding my stomach muscles after taking a gulp.
User avatar
Luvsadonut
Family Member
 
Posts: 72
Joined: Sun Nov 29, 2009 4:00 pm

Postby eve » Sun Mar 28, 2010 6:59 am

This is Dr S his answer:

drsclafani wrote:it looked to me like you did have a distending vein. It looks like it is NOT the internal jugular vein but some smaller veins like the external jugular vein.

It also looked like you were doing the Valsalva maneuver (not a karate move). This increases chest pressure and it is not uncommon for many people who do not have MS to have distsension of the vein.

That being said, it can indeed be a sign of collateral veins. But it cal also be seen in heart failure, obstructive lung disease and many other conditions.

But why focus on this. I would look at it like this;

If you have MS, you have CCSVI until proven otherwise
dx 2002,RRMS,  suspected begin of MS 1978 (age 10)
User avatar
eve
Family Elder
 
Posts: 117
Joined: Tue Jan 05, 2010 4:00 pm
Location: Netherlands

Postby greenandchic » Sun Mar 28, 2010 10:56 am

I tried it a few times and only noticed my smaller vein popping out on my right side. Nothing significant.
User avatar
greenandchic
Family Member
 
Posts: 45
Joined: Sat Dec 12, 2009 4:00 pm
Location: Portland, Oregon

Postby eve » Mon Dec 13, 2010 6:20 am

So... i was reading in dr S' threads about visial CCSVI signs and it made me think back of this. One of the people who reported to have this too, has been liberated and I asked her this morning if she still has this popping up - and guess what? It's gone - she tried it several times.

So I wonder if anyone who responded in this thread to have it, has been liberated since and if it's still there or not?
dx 2002,RRMS,  suspected begin of MS 1978 (age 10)
User avatar
eve
Family Elder
 
Posts: 117
Joined: Tue Jan 05, 2010 4:00 pm
Location: Netherlands

Previous

Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service