CCSVI Testing in the Greater Toronto Area

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

CCSVI Testing in the Greater Toronto Area

Postby Oggel » Thu Mar 25, 2010 8:52 am

Hi everyone,

It's nice to see support for Ms'ers here. I am newly diagnosed with RRMS and was taking Rebif for a few months, however, it caused my liver enzymes to be dangerously elevated so I had to discontinue use. I am currently not taking any DMT and am off work as I am so fatigued, I can barely move out of my own way. I have tried Modafinil and amantadine with no positive results. Any ideas on what has worked for you?

I live in York Region, more specifically, Markham and really do not have any people in my life with MS who understand what it is I am experiencing. I would love to meet more people in my area to chat with.

I am very interested in CCSVI and the liberation treatment, however, my neuro has poopooed the whole idea. I have read here that some people had had the ultra sound and doppler done close to where I live. Would you please send me the information on who is actually doing it?
Thank you for any support and advise....

Have a wonderful day,
Oggel
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Postby youbetcha » Thu Mar 25, 2010 12:09 pm

Hi Oggel,

Welcome to TIMS!

I sent you a pm with information about testing.

Take care.
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CCSVI Testing in the Greater Toronto Area

Postby Simba007 » Mon Apr 19, 2010 8:21 pm

Hi youbetcha,

My husband also has RRMS, can you please tell me where and who is doing the screening in Toronto? His neurologist also pooped on the idea.

Thanks!

Simba
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Postby Hockeydad » Tue Apr 20, 2010 3:51 pm

I'm in Toronto. Was diagnosed with RRMS in Feb/2010. My neuro at St Mikes (T Gray) didn't pooh pooh CCSVI but was very guarded.I am not taking any meds. Contact Barrie Vascular Clinic. You'll need a referral from GP or someone. You can go to a walk-in clinic and maybe get one there. Don't mention you have MS, just say you want an ultrasound. Barrie only have 1 technician who's trained, and only works mornings. They had done some Liberation procedures, but have since stopped. I am always on line :roll:
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Postby youbetcha » Tue Apr 20, 2010 4:52 pm

Hi Simba,

Sorry for the delay in responding.

Testing can be done at:

Dixie X-Ray Associates
8333 Weston Road
Woodbridge, Ontario
Phone: 905-850-6934

Ask for Mara to do the testing.

Hope this helps!
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Postby Hockeydad » Wed Apr 21, 2010 5:22 am

Oh, and Barrie is currently running its own trials ,so the scans are free. Dr MacDonald who was on the W5 piece, is the dr there.
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