This Is MS Multiple Sclerosis Community: Knowledge & Support

Hi everyone,

It's nice to see support for Ms'ers here. I am newly diagnosed with RRMS and was taking Rebif for a few months, however, it caused my liver enzymes to be dangerously elevated so I had to discontinue use. I am currently not taking any DMT and am off work as I am so fatigued, I can barely move out of my own way. I have tried Modafinil and amantadine with no positive results. Any ideas on what has worked for you?

I live in York Region, more specifically, Markham and really do not have any people in my life with MS who understand what it is I am experiencing. I would love to meet more people in my area to chat with.

I am very interested in CCSVI and the liberation treatment, however, my neuro has poopooed the whole idea. I have read here that some people had had the ultra sound and doppler done close to where I live. Would you please send me the information on who is actually doing it?
Thank you for any support and advise....

Have a wonderful day,
Oggel

Hi Oggel,

Welcome to TIMS!

I sent you a pm with information about testing.

Take care.

Hi youbetcha,

My husband also has RRMS, can you please tell me where and who is doing the screening in Toronto? His neurologist also pooped on the idea.

Thanks!

Simba

I'm in Toronto. Was diagnosed with RRMS in Feb/2010. My neuro at St Mikes (T Gray) didn't pooh pooh CCSVI but was very guarded.I am not taking any meds. Contact Barrie Vascular Clinic. You'll need a referral from GP or someone. You can go to a walk-in clinic and maybe get one there. Don't mention you have MS, just say you want an ultrasound. Barrie only have 1 technician who's trained, and only works mornings. They had done some Liberation procedures, but have since stopped. I am always on line

Hi Simba,

Sorry for the delay in responding.

Testing can be done at:

Dixie X-Ray Associates
8333 Weston Road
Woodbridge, Ontario
Phone: 905-850-6934

Ask for Mara to do the testing.

Hope this helps!

Oh, and Barrie is currently running its own trials ,so the scans are free. Dr MacDonald who was on the W5 piece, is the dr there.