This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Thu May 23, 2013 2:23 am


All times are UTC - 8 hours [ DST ]




Post new topic Reply to topic  [ 7 posts ] 
Author Message
 Post subject: CCSVI - Meniere's
PostPosted: Fri Mar 26, 2010 6:04 pm 
Offline
Family Elder
User avatar

Joined: Sun Dec 13, 2009 4:00 pm
Posts: 849
Location: Canada
Hi,
Throwing out a quick question... is Meniere's Syndrome a part of your lives? personal or familial?
Thanks


Top
 Profile  
 
 Post subject:
PostPosted: Fri Mar 26, 2010 7:01 pm 
Offline
Family Elder
User avatar

Joined: Mon Dec 07, 2009 4:00 pm
Posts: 121
Location: Montreal
A lot of people in my family have severe problems with this ...meuniere... They had surgical interventions...


Top
 Profile  
 
 Post subject:
PostPosted: Sun Mar 28, 2010 12:06 pm 
Offline
Family Elder
User avatar

Joined: Tue Oct 27, 2009 4:00 pm
Posts: 422
Location: Montana, USA
Pcakes,

Thanks for this post; I think, lol. I really have to quit reading articles & posts on the internet though. Too often I go, ah ha, that’s sounds like what I have!!! I’m beginning to think I need to add hypochondriac to my MS diagnosis. 8O

Just two weeks ago while camping with friends I woke up with my ears feeling “plugged”. I felt dizzy, but I still went outside and sat at the picnic table and tried to play a board game with our friends. Next thing I knew I was holding onto the table for dear life! Two of the med took me under my arms and escorted me back to our motor home. I spent the next 2 days nauseated, dizzy and “plugged. After the first two days I guess I got more used to the “plugged feeling and the nausea went away.

It was suggested I try a decongestant which I did and it improved it significantly, though I still feel the need to yawn to completely pop my ears, though that really doesn’t help and they are still “stuffy”.

I definitely had the sensitivity to sound while it was at it’s worst. I could hear EVERYTHING in our motor home and my head & veins all at once and was extremely agitated by that.

“A "plugged ear" or "stopped ear" sensation, usually (but not always) in one ear, varying in intensity. The sense of fullness (a feeling like, but not actually, air pressure in the middle ear) for many is like descending from a mountain and being unable to "clear" or "equalize" the pressure. (However, Meniere's Disease does not affect the middle ear.) While "classic" Meniere's Disease affects only one ear, some patients "go bi," meaning bilateral; they experience symptoms in both ears. There may be mild continuous dizziness for hours, days, or longer.

Fact: Meniere's Disease is incurable and progressive (it gets worse over time), but it is not fatal, and there are many possible treatments; however, there is no certain prognosis for any given patient.”

So great, just another crappy symptom or disease, where they say, “we don’t know what causes it and we have no cure.” “But here, try these expensive drugs that may or may not help the symptoms, and oh, by the way, look out for the side effects, they could be worse than what you have already!”

Lora


Top
 Profile  
 
 Post subject:
PostPosted: Sun Mar 28, 2010 12:43 pm 
Offline
Family Elder
User avatar

Joined: Mon Sep 10, 2007 3:00 pm
Posts: 4676
Location: southern California
I've written about this on here. Search meniere's
Yes, there is a link in jugular blockage-

Quote:
The author describes the case of a 68-year-old woman who experienced severe symptoms of Meniere's syndrome. Ultrasonography of the neck detected a clot in the left internal jugular vein. The patient was hospitalized and anticoagulated, and her symptoms soon resolved. The author speculates that the clot-induced hemodynamic changes led to venous insufficiency in the vein of the paravestibular canaliculus and ultimately caused the patient's symptoms. The blood work-up revealed that the patient had an elevated fasting homocysteine level, which is a known risk factor for thrombus formation.


http://www.highbeam.com/doc/1G1-111111836.html

cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS


Top
 Profile  
 
 Post subject:
PostPosted: Sun Mar 28, 2010 1:05 pm 
Offline
Family Elder
User avatar

Joined: Sun Jun 01, 2008 3:00 pm
Posts: 791
Location: Mississippi
Ruth,

I totally understand where you are coming from. I took meds that made me sicker, had tubes but in my ears, took more meds and then when I had the CCSVI procedure it all got better but only for a week. I have horrible ringing or buzzing in my left ear, like a dog whistle. Never goes away it only gets louder and then softer and then louder. I imagine I will have to learn to live with it.

Cat

_________________
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.


Top
 Profile  
 
 Post subject:
PostPosted: Sun Mar 28, 2010 11:17 pm 
Offline
Family Elder
User avatar

Joined: Sun Dec 13, 2009 4:00 pm
Posts: 849
Location: Canada
thank you so much for all the replies... dx benign rr 2 years back..doing well.. scheduled for MRV (re-scan) and US this week.. sister with meniere's .. profound effect on her life.. hoping to find a connection to help..pcakes


Top
 Profile  
 
 Post subject:
PostPosted: Mon Mar 29, 2010 5:23 am 
Offline
Family Elder
User avatar

Joined: Wed Feb 03, 2010 4:00 pm
Posts: 169
A sudden loss of hearing along with the accompanying room spinning for 24 hours was my first sign of MS 7 years ago. I am still deaf in my right ear to this day and have the tinitus (ringing) in it and even in my left ear occasionally rings. I have seen more ENTs than I can remember, a few of them mentioned Meniere's. Another lady that I know that has MS also has hearing problems and tinitus too. We both agree that the dizziness is the worst symptom of MS for us. I am going in for my first transcranial doppler this morning. Hope they see something. Wish me well.

WeWillBeatMS


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 7 posts ] 

All times are UTC - 8 hours [ DST ]


Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. 2011 CCSVI Symposium Videos--a great CCSVI primer

Anonymoose

0

280

Thu Jan 17, 2013 10:53 am

Anonymoose View the latest post

There are no new unread posts for this topic. CCSVI "CCSVI tracking project" french language !

Fred1208

2

1104

Thu May 06, 2010 7:27 am

Fred1208 View the latest post

There are no new unread posts for this topic. CCSVI TESTING / TESTS CCSVI *CANADA*

SickButHappy

2

2301

Fri Apr 30, 2010 9:48 am

eveable View the latest post

There are no new unread posts for this topic. CCSVI 101--a new video by Dr. Siskin from CCSVI Alliance

cheerleader

4

1368

Tue Aug 23, 2011 9:16 am

cheerleader View the latest post

There are no new unread posts for this topic. BIG ON CCSVI, Dr Tom Gilhooly talks about CCSVI and the LDN

GuRu

3

2001

Tue May 18, 2010 2:58 pm

silverbirch View the latest post

 


Who is online

Users browsing this forum: No registered users


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to: