Badgers wonderful adventure in Poland!!!!!!!!!!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby Johnson » Wed May 12, 2010 1:15 am

Thanks for the update, Badger. Onwards and upwards! Will look forward to the link.
My name is not really Johnson. MSed up since 1993
User avatar
Johnson
Family Elder
 
Posts: 979
Joined: Tue Dec 01, 2009 4:00 pm
Location: Ucluluet, BC

Advertisement

Postby LR1234 » Wed May 12, 2010 2:34 am

How is Tiger Tim doing? Has he noticed any improvements or anything?

L x
LR1234
Family Elder
 
Posts: 1494
Joined: Wed Feb 11, 2009 4:00 pm
Location: California

:

Postby Badger » Wed May 12, 2010 2:38 am

He has had great improvements:

He can use cutlery to eat food.
He can read a neswpaper.
His speach is much clearer.
His legs do not go into spasms as much.

He is still in his wheelchair but it is progress and long may that continue. :D
<em>Badger
RRMS 2004</em>
Appt Katowice 23/24th March
User avatar
Badger
Family Elder
 
Posts: 128
Joined: Mon Dec 14, 2009 4:00 pm
Location: Glasgow, Scotland

Postby LR1234 » Wed May 12, 2010 3:45 am

Great news!!!:)
LR1234
Family Elder
 
Posts: 1494
Joined: Wed Feb 11, 2009 4:00 pm
Location: California

Postby weegie1 » Wed May 12, 2010 4:33 am

Thanks for keeping us updated Badger
May your improvements keep coming.
Good news about Tiger Tim too.
Can you not do something about this weather it's freezing!!!!
Let it be a reason but never an excuse
User avatar
weegie1
Family Member
 
Posts: 33
Joined: Sat Jan 23, 2010 4:00 pm
Location: Glasgow, Scotland

Postby ndwannabe » Wed May 12, 2010 10:46 am

Thank you indeed!

Those updates are such "emotional fuel" to me.
User avatar
ndwannabe
Family Elder
 
Posts: 290
Joined: Sat Jan 02, 2010 4:00 pm
Location: SF Bay Area, CA

HELLO!!!

Postby Badger » Thu May 20, 2010 12:02 am

8 Weeks -

Still feeling great. Yesterday I walked down, yes down the stairs without holding on to a railing. It was slowly but it is progress as before I would have to hold on to something.

I have also been to see a MS Physio and she pointed out a weakness in the muscle at the front of my calf and a stiffness in the rear. I have been given a simple excersize to do which involves, lifting my foot from the heel and slowly bringing it down. I have another appointment in 3 weeks and hope she can see further progress.

She also told me to walk around the house in my bare feet and I can do this a lot better already. The problem in the beginning was walking on the balls of my feet, now I am on my heels and loving it.

It is great that I am no longer thinking about how I may get worse due to my MS and now I can only find new ways to improve!!!!!!!!! :wink:
<em>Badger
RRMS 2004</em>
Appt Katowice 23/24th March
User avatar
Badger
Family Elder
 
Posts: 128
Joined: Mon Dec 14, 2009 4:00 pm
Location: Glasgow, Scotland

Postby Johnson » Thu May 20, 2010 2:36 am

Excellent news, Badger. Keep it up!
My name is not really Johnson. MSed up since 1993
User avatar
Johnson
Family Elder
 
Posts: 979
Joined: Tue Dec 01, 2009 4:00 pm
Location: Ucluluet, BC

Postby mshusband » Thu May 20, 2010 5:04 am

Great work Badger. So happy for you ...

Make sure you ask her for a refill of that placebo too (joke).
User avatar
mshusband
Family Elder
 
Posts: 249
Joined: Sun Jan 24, 2010 4:00 pm
Location: Pittsburgh, PA, USA

Postby ComfortablyNumb » Thu May 20, 2010 7:13 am

Badger,

Great to hear your feeling great and still finding improvements. :D

Could you raise your foot from the heal before your procedure or was that one of your MS symptoms? I cannot raise my left foot from the heal at all, just wiggle my toes. My Physio was using a electro muscle stimulator while I tried to raise it, to try and build up the front calf muscle. I could feel the muscle tighten up.

How are you finding the temperature tolerance to heat now that June is near?

Keep the improvements coming,
Stephen
User avatar
ComfortablyNumb
Family Member
 
Posts: 45
Joined: Sat Nov 28, 2009 4:00 pm
Location: Ontario, Canada

:

Postby Badger » Fri May 21, 2010 12:11 am

I was able to lift my foot with my heel but my left foot would tremor, the physio has given me the exersize to help build the muscle around my calf. She also said the reason that it will tremor is due to muscle weakness so I have been doing the small exersize, it is maybe not even a type of exersize but a movement because I can do it while I sit.

I can notice improvements already and I only seen the Physio last week.

I have very little problem with my heat tolerance now, it has only been tested in Scotland though!! I have sat in the garden for hours with the sun shining and had none of the problems I would have before, like needing to go into the shade or feeling extremely tired or weak. :lol:
<em>Badger
RRMS 2004</em>
Appt Katowice 23/24th March
User avatar
Badger
Family Elder
 
Posts: 128
Joined: Mon Dec 14, 2009 4:00 pm
Location: Glasgow, Scotland

:

Postby Badger » Tue Jun 01, 2010 6:21 am

10 Weeks -

Still feeling good, no further improvements though. I was sitting in the sun again yesterday, the whole day without any problem.

This is becoming the norm now and is something I was not expecting, no not the good weather in Scotland!! my ability to sit for the entire day in the sunshine!!

Will keep you posted on any improvements.

I am nearing 3 months post-procedure and this is when the Dr in Poland advised that I should begin to see any improvements. So I am hoping for some new improvements!!! BRING IT ON. :wink:
<em>Badger
RRMS 2004</em>
Appt Katowice 23/24th March
User avatar
Badger
Family Elder
 
Posts: 128
Joined: Mon Dec 14, 2009 4:00 pm
Location: Glasgow, Scotland

Postby ComfortablyNumb » Tue Jun 01, 2010 6:34 am

Badger,

That's great news. I wish you plenty of sunshine(vitamin D :wink: ) and many more improvements. :D :D
Cheers.
Stephen
User avatar
ComfortablyNumb
Family Member
 
Posts: 45
Joined: Sat Nov 28, 2009 4:00 pm
Location: Ontario, Canada

PPMS v. SPMS v. RRMS

Postby Trent » Sat Jun 05, 2010 3:51 am

Can someone please define the criteria used to differentiate between these forms?

I see Zamboni said that PPMS didn't respond so well to CCSVI treatment.

I have never been given a firm dx, just progressing downhill for many years, but I did have just one attack which took me off my legs until prednisolone tablets put me back to square one. A current 5 a day course of 100mg has brought some improvement in strength, but I am very wary of the downside of steroid use.
User avatar
Trent
Family Member
 
Posts: 92
Joined: Tue Nov 17, 2009 4:00 pm
Location: E. Midlands, UK

Cold legs, feet, hands

Postby Trent » Sat Jun 05, 2010 1:31 pm

I've read that an early symptom improvement following ballooning is a feeling of warmth returning to legs, hands and feet. Does this occur on both sides of the body, or do both left and right jugulars need to be done for this to occur?
User avatar
Trent
Family Member
 
Posts: 92
Joined: Tue Nov 17, 2009 4:00 pm
Location: E. Midlands, UK

PreviousNext

Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users