Badgers wonderful adventure in Poland!!!!!!!!!!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby Johnson » Fri Aug 13, 2010 3:16 am

I'm sorry to read of your travails.

I liked your quip about MS being boring on it's own. Indeed. How many times is that spasm, or burning, and all that, remarkable?

I hope you feel better soon.
My name is not really Johnson. MSed up since 1993
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Postby Katie41 » Fri Aug 13, 2010 11:15 pm

Badger,

A couple of things: have the MTS checked out. It can be manifested in the right leg, although it is more common in the left; and, make sure you don't have a low grade infection somewhere. I've found that if I have a low grade infection, ie, a kidney infection (very mild), or a gall bladder difficulty, I'll get worse. When those are gone, I'm great again. It doesn't take much of an infection to do it, either :o

There's always a reason, it's just finding it so we can get it fixed :? :)

Becky and I wish so much for your quick recovery. Only the very best wishes to you, Katie, and your wee one. :D

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Postby Badger » Thu Sep 02, 2010 2:43 am

I had my appointment to see my specialist brought forward to yesterday 2/09 which was great.

My specialist dismissed my request for an MRI to check for MTS (May -Thurner syndrome), he also dismissed my request to have LDN (Low Dose Naltrexone).

So I am no further forward although I have made large improvements since I returned from my holiday and I am looking at getting an MRI privately and I know of somewhere in Glasgow that I can get LDN.

Nobody said it would be easy but I enjoy the challenge. :D :D :D
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Postby AlmostClever » Thu Sep 02, 2010 7:29 am

Bager,

Sorry to hear about your obstacle!

Which test is best for diagnosing M-T? MRV or CT?

From what I've read briefly, it is a MRV but that could have been old info...

Good Luck!

A/C
If you can't explain it simply, you don't understand it well enough. - Al Einstein
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Postby Badger » Thu Sep 09, 2010 3:19 am

No further forward and I have contacted Euromedic again to see what they think. :?
<em>Badger
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Postby Badger » Thu Oct 28, 2010 9:16 am

What a struggle, my MS journey is now a complete rollercoaster, though I fail to reach the heights that I felt after Poland.

I have been very poor recently and this has prompted me to contact my MS specialist to find out about going back on TYSABRI.

I am hoping that can take me back to where I was; Dr. Zamboni did say that people should remain on their current MS treatment.

Wish me luck.

:? :? :?
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RRMS 2004</em>
Appt Katowice 23/24th March
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Postby MaggieMae » Thu Oct 28, 2010 9:32 am

Badger,

I just reread through your posts. You did so well for so many months. Could there be restenosis? Is it possible to have this check out before you go back to Tysabri?
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