HOW MANY FROM THE UK HAVE HAD THIS PROCEDURE

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby livabird » Tue Mar 30, 2010 9:51 am

SWEATPEA MY TOTAL COST INCLUDING TRAVEL IS ABOUT 7000 POUNDS. I CONNECTED POLAND IN FEBRUARY BUT I THINK I WAS SQUEEZED IN BECAUSE I HAVE PPMS AND DR. SIMKA DID THIS BECAUSE THERE AREN'T ANY OTHER REAL TREATMENTS FOR IT. I WAS LUCKY THERE WAS A CANCELLATION IN APRIL.

459 ISN'T TOO BAD FOR THE SCAN. GOOD LUCK WITH EVERYTHING.

LIVA
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Postby openmind » Tue Mar 30, 2010 11:12 am

I am from Uk and had the procedure in Poland two weeks ago
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Postby awol1920 » Tue Mar 30, 2010 12:08 pm

well lets all get our thinking caps on n do something to get this in the press n keeep it there i am willing to do anything as long as i cant get arresteted lol :D
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Postby livabird » Tue Mar 30, 2010 12:12 pm

MY HUSBAND IS GOING TO CONNECT THE PRESS TO SEE IF THEY ARE INTERESTED WHEN I GO TO POLAND APRIL 20. THE MORE PRESS THE BETTER.

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Postby awol1920 » Tue Mar 30, 2010 12:39 pm

thats a good idea LIVA maybe you could get a national to follow ur progress if u n ur family are ok with that. WE NEED TO START SHOUTING N SHOUTING LOUD TILL WE ARE HEARD NOT EVERYONR IS LUCKY ENOUGH TO GET ABROAD
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Postby livabird » Tue Mar 30, 2010 12:53 pm

I'D BE FINE WITH THAT IT MIGHT BE HUMUROUS THE REALLY SQUEAMY LIVA ON THE NEWS. LOL I WILL GET MY HUBBY ONTO IT. CAN'T HURT.

LIVA

PLUS SINCE I AM REALLY PROGRESSED IF IT HELPED ME THEY HAVE TO LISYEN.
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Postby awol1920 » Tue Mar 30, 2010 1:04 pm

dunno if this sound stupid but i am actually thinking of some sort of protest like fathers 4 justice did to get this reconised and put to the forefront of everyones mind. when fathers4justice just started there were just 2 members now look at the support they have. i am also in the process of writing to famous people who i think may be intrested too see if they can get us some reconition
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Postby livabird » Tue Mar 30, 2010 1:12 pm

TRY J.K. ROWLINGS HER MOTHER JUST DIED OF MS AND LAURENCE LLEWELLYN-BOWEN HIS MOTHER HAS MS. MY HUSBAND IS CONTACTING MICHELLE ROBERTS THE BBC MEDICAL REPORTER SHE DID A CCSVI PIECE MAYBE SHE COULD YTACK ME.

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Postby awol1920 » Tue Mar 30, 2010 1:21 pm

They are on my list LIVA as are many others
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Postby LR1234 » Tue Mar 30, 2010 2:38 pm

Guy from JLS's mum has MS (Oritse Williams)
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EHC

Postby Murchy » Wed Mar 31, 2010 5:26 am

anyone who is watching this thread due to it mentioning the appointments with the Essential Health Clinic in Glasgow. Currently only 10 appointments left for the current block...

looks like they will all be gone soon guys..
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Postby Murchy » Wed Mar 31, 2010 5:50 am

all EHC appointments are now booked for this block...
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uk

Postby caraboo » Wed Mar 31, 2010 7:02 am

Hi all,

Im going to Bulgaria on28th May, Treatment on 1st June.
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Postby livabird » Wed Mar 31, 2010 7:08 am

THAT IS GREAT CARIBOO. WE JUST BOOKED OUR FLIGHTS TO POLAND APRIL 19 TO 26. PARTY TIME. MIND YOU I AM PETRIFIED.

SHOULDN'T YOU BE CARIBOU MIND YOU I SHOULD BE LIVERBIRD. LIVABIRD LOOKS BETTER.
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Liva

Postby caraboo » Wed Mar 31, 2010 7:16 am

Hi Liva,


Thankyou, was so pleased to hear that you got a earlier date.
Thats always been my nickname from my husband, thats just
the way we have always said it. I wish you all the luck in the world.


take Care

Karen
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