This Is MS Multiple Sclerosis Community: Knowledge & Support
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SWEATPEA MY TOTAL COST INCLUDING TRAVEL IS ABOUT 7000 POUNDS. I CONNECTED POLAND IN FEBRUARY BUT I THINK I WAS SQUEEZED IN BECAUSE I HAVE PPMS AND DR. SIMKA DID THIS BECAUSE THERE AREN'T ANY OTHER REAL TREATMENTS FOR IT. I WAS LUCKY THERE WAS A CANCELLATION IN APRIL.
459 ISN'T TOO BAD FOR THE SCAN. GOOD LUCK WITH EVERYTHING.
thats a good idea LIVA maybe you could get a national to follow ur progress if u n ur family are ok with that. WE NEED TO START SHOUTING N SHOUTING LOUD TILL WE ARE HEARD NOT EVERYONR IS LUCKY ENOUGH TO GET ABROAD
dunno if this sound stupid but i am actually thinking of some sort of protest like fathers 4 justice did to get this reconised and put to the forefront of everyones mind. when fathers4justice just started there were just 2 members now look at the support they have. i am also in the process of writing to famous people who i think may be intrested too see if they can get us some reconition
TRY J.K. ROWLINGS HER MOTHER JUST DIED OF MS AND LAURENCE LLEWELLYN-BOWEN HIS MOTHER HAS MS. MY HUSBAND IS CONTACTING MICHELLE ROBERTS THE BBC MEDICAL REPORTER SHE DID A CCSVI PIECE MAYBE SHE COULD YTACK ME.
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