HOW MANY FROM THE UK HAVE HAD THIS PROCEDURE

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby livabird » Wed Mar 31, 2010 7:43 am

THANK YOU KAREN. JUST JOKING I ACTUALLY LOVE THE BOO. I JUST KNOW BECAUSE I LIVED IN CANADA FOR 30 YEARS. I AM GLAD I GOT THE EARLER DATE BUT GOING INTO PANIC MODE NOW. SILLY BUT THAT IS ME. IF YOU ARE ON FB YOU SHOULD LOOK ME UP. I HAVE A FEW TIMS PEOPLE NOW.

IAKE CARE.

LIVA
User avatar
livabird
Family Elder
 
Posts: 344
Joined: Tue Jan 26, 2010 4:00 pm
Location: northampton, uk

Advertisement

Postby awol1920 » Wed Mar 31, 2010 1:16 pm

HI caraboo really please too hear hope all goes well my dad is booked sometime in september we are just waiting on the appointment date. please will u keep us updated
User avatar
awol1920
Getting to Know You...
 
Posts: 11
Joined: Tue Feb 02, 2010 4:00 pm

Postby livabird » Wed Mar 31, 2010 1:43 pm

GEEPS EVERYONE IN THE UK SHOULD READ THIS LINK. BRITISH GOVERNMENT IS REALLY NOT WILLING TO LISTEN TO US. GLAD I AM GOING TO POLAND THIS IS SO TYPICAL.

LIVA

http://www.number10.gov.uk/Page23057
User avatar
livabird
Family Elder
 
Posts: 344
Joined: Tue Jan 26, 2010 4:00 pm
Location: northampton, uk

Postby harryp » Wed Mar 31, 2010 3:03 pm

My granddaughter is booked in at The Essential Health Clinic for Aug 9 but I received an Email today saying that they have been overwhelmed by applications and have now had to close their appointment list for the time being.
Like many of you I have a few reservations about Dr. Gilhooley's motivation but in his defence he has flagged his intentions of providing a Zamboni trained radiologist for some time and it shore beats the hell out of waiting for the NHS to get their ass in gear - sometime never!
The MSRC seem to find him credible and for those of you who would like to check him out that might be a good place to start. www.MSRC.co.uk
He seems to have been heavily involved in the use of LDN (Low Dose Niatrexone) in the treatment of MS for some years and I believe there are "many thousands" of MSers mainly in the USA who find that treatment beneficial. I would be interested to hear other opinions on both counts
User avatar
harryp
Newbie
 
Posts: 7
Joined: Sat Jan 16, 2010 4:00 pm
Location: Bangor N. Ireland

Postby livabird » Wed Mar 31, 2010 3:18 pm

HI I HAVE JUST STARTED LDN AGAIN. I FIRST STARTED ON 3 MG AND I STUPIDLY UPPED IT TO 4.5 MG THINKING IT WOULD DO EVEN MORE. IT WAS A BIG MISTAKE MY SYMPTOMS WENT WAY WORSE. I CAME OFF IT FOR A WEEK I HAVE JUST STARTED ON 1.5 MG WHICH IS WHAT I SHOULD HAVE DONE AND I WILL SEE HOW IT WORKS. EH SOUNDS GOOD TO ME THEY SEEM TO HAVE A HOLISTIC APPROACH TO MS WHICH IS GOOD. I THINK LDN AND EH ARE DEFINITELY WORTH A TRY. OUR COUNTRY IS SO NOT SUPPORTIVE OF ANY OF THIS. DRUG COMPANIES SEEM TO RULE. GOOD LUCK WITH EVERYTHING.

LIVA
User avatar
livabird
Family Elder
 
Posts: 344
Joined: Tue Jan 26, 2010 4:00 pm
Location: northampton, uk

Postby harryp » Wed Mar 31, 2010 3:24 pm

Hi Liva,
Thanks for the quick response - I trust the new regime will work well for you and look forward to watching your progress.
Harry
User avatar
harryp
Newbie
 
Posts: 7
Joined: Sat Jan 16, 2010 4:00 pm
Location: Bangor N. Ireland

Postby livabird » Wed Mar 31, 2010 3:44 pm

TANKS HARRY. WE CAN ONLY TRY. BASICALLY WE HAVE TO TREAT OURSELVES IN THIS COUNTRY. I HOPE AT LEAST EH WILL BE ABLE TO REFER YOU TO A VASCULAR SURGEON. KNOWING THE GOVERNMENT HERE THEY WILL TRY TO STOP THAT. IF I CAN HELP YOU AT ALL PLEASE FEEL FREE TO ASK. I WILL BE POSTING MY RESULTS. TAKE CARE.

LIVA
User avatar
livabird
Family Elder
 
Posts: 344
Joined: Tue Jan 26, 2010 4:00 pm
Location: northampton, uk

Essentials clinic

Postby LSITC » Thu Apr 01, 2010 12:51 am

Sweetpea I have to agree with you. I am worried about that aspect too. However if he can help I suppose that we should not be cynical.
User avatar
LSITC
Family Member
 
Posts: 36
Joined: Sat Dec 19, 2009 4:00 pm

Previous

Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service