This Is MS Multiple Sclerosis Community: Knowledge & Support

Hi All,
To say that CCSVI is the hottest topic among people with MS is an understatement! I just looked at the statistics for this site, and the general section does not even have more posts than the CCSVI section!

General- 32,402 posts
CCSVI- 32,512 posts

People with MS know the real thing when they see it!

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Together, our voices are louder!
http://ccsvivictory.club.officelive.com/default.aspx

A Google search for CCSVI yielded 515,000 hits.

A Google search on 1 April yielded 518,000 hits; an increase of 3,000 in a day! It's going viral on the net.

Donnchadh

Yeah, this thing is really blowin up. Being from Detroit originally and growing up playing and watching hockey I already loved the Zamboni, but now I can't wait to go to Italy one day with my wife and children and give the real Zamboni a big hug! Did you guys ever see the movie Lorenzo's Oil? It must have been like that for Dr. Zamboni when he discoved CCSVI with his wife and the other patients he studied. I thank God for the researchers out there trying to find stuff to help with drugs but I think it is so awesome that it was someone within our own MS family, someone touched directly by MS, that found what could be the cause or cure or something very close to it if it's not IT.

WeWillBeatMS

Hi Guys,

These numbers are great!

I hope more people are training as INt radiologists it sounds like they will be very much in demand now and in the future.
I think it is also important to tell people about ccsvi.
a lot of people that I talk to have not heard about ccsvi. When I tell them they are interested and will also pass on information to ms patients that they know.
Word of mouth travels very fast as we all know. We just need to talk and tell more people about it.
It really is about sharing information with others.

Kats

Absolutely Kats. I'm telling people without MS about it and telling them to give people that they know that do have MS to call me. I brought information about CCSVI to my MS group on Superbowl Sunday when Dr. Zamboni and the many other doctors were meeting in Hamilton, Ontario, Canada. I am definitely doing my best to spread the word.

WeWillBeatMS

Funny anecdote...

I had my neuro appt. yesterday... All the while I didn't mention CCSVI once, by the end he brought up the CCSVI issue, and he said, and I quote:"You know this Zamboni thing won't help you...(because I'm PPMS)". Then I turned to him and asked:"Can you???"

... He quickly decided to change the subject.

HEY

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"Never argue with stupid people... They bring you down to they're level and beat you with experience"

Hey haben.......I agree......my neuro won't even discuss it too...toots it all.......sucks eh?...but LOVED your come-back question!!!!!

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35 (f) dx'd since July 2000 RRMS
Treated in Bulgaria on September 8 2010
80 percent narrowed RJV and 90 percent narrowed Azygos

Too soon to know if it works but not too soon to know that it doesn't????? Unbelievable..... Don't listen to them..