New CCSVI research; Zamboni & Embry pen editorials

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

New CCSVI research; Zamboni & Embry pen editorials

Postby happy_canuck » Wed Mar 31, 2010 12:13 pm

The April 2010 issue of "International Angiology" is devoted almost all space to CCSVI. Unfortunately, it's a fee-only jounral and my university doesn't subscribe. But, we can see the Abstracts (a couple articles have been posted here already this morning) and get a glimpse into the future.

Can anyone get access to the full articles? Would love to know more!

Link to journal's table of contents where all artcles and editorials are listed:
http://tinyurl.com/yat2z29

~Sandra
National CCSVI Society: <strong><br /><a href="http://tinyurl.com/44znbct">http://tinyurl.com/44znbct</a> ~Website<br /><a href="http://tinyurl.com/3wzmkmg">http://tinyurl.com/3wzmkmg</a> ~Facebook</strong><br />
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Postby tzootsi » Wed Mar 31, 2010 1:17 pm

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Postby happy_canuck » Wed Mar 31, 2010 1:28 pm

tzootsi wrote:I believe a lot of them are here:

http://www.facebook.com/notes/ccsvi-in- ... 1031542210


Those are still links to just the Abstracts too.

So, when is there "enough" research for people to stop saying there's "not enough research"?
National CCSVI Society: <strong><br /><a href="http://tinyurl.com/44znbct">http://tinyurl.com/44znbct</a> ~Website<br /><a href="http://tinyurl.com/3wzmkmg">http://tinyurl.com/3wzmkmg</a> ~Facebook</strong><br />
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Postby patientx » Wed Mar 31, 2010 1:55 pm

happy_canuck wrote:
tzootsi wrote:I believe a lot of them are here:

http://www.facebook.com/notes/ccsvi-in- ... 1031542210


Those are still links to just the Abstracts too.

So, when is there "enough" research for people to stop saying there's "not enough research"?


When the research is meaningful, or meaningful conclusions can be drawn from it.
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Postby Lyon » Wed Mar 31, 2010 4:41 pm

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Postby Billmeik » Wed Mar 31, 2010 7:14 pm

this research is meaningful. The paper that uses a sample of 8000+patients must just be archival shots. I take it as bad news how a high correlation is being found between degree of seerity of ms and ccsvi. They don't seem to be finding enough people with bad ccsvi and mild ms which would be the case in early stages of all ms. If ccsvi doesnt progress too which seems to be almost proven it does.
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Postby Johnson » Wed Mar 31, 2010 10:04 pm

Can anyone get access to the full articles? Would love to know more!


Would it not be worth it for us to set up a fund, through donations of TiMS members, to get full access to these types of papers?
My name is not really Johnson. MSed up since 1993
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Re: New CCSVI research; Zamboni & Embry pen editorials

Postby NHE » Thu Apr 01, 2010 2:20 am

Johnson wrote:Would it not be worth it for us to set up a fund, through donations of TiMS members, to get full access to these types of papers?


If you have a university with a decent research library in your town go there. Take along a USB flash drive. Access the journal articles from one of their computers and save the pdf files to your flash drive. Print them when you get home.

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Postby patientx » Thu Apr 01, 2010 7:13 am

Billmeik wrote:this research is meaningful.


I don't think that can be determined just from the abstracts.

Also, why would a journal for medical professionals dealing with vascular issues publish an editorial from Ashton Embry?
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Postby Rokkit » Thu Apr 01, 2010 7:59 am

patientx wrote:Also, why would a journal for medical professionals dealing with vascular issues publish an editorial from Ashton Embry?

Yeah I thought that was a bit bizarre myself.
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Postby Lyon » Thu Apr 01, 2010 8:02 am

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Postby patientx » Thu Apr 01, 2010 8:16 am

Lyon wrote:I'm sure it will seem terribly cynical of me but that is a really valid point which I had initially overlooked.

Despite his "Dr" status, Embry remains a layman by definition and his attempts to shoulder to the forefront of the CCSVI fray only adds to the "dog and pony show" atmosphere and actually drags the theory of CCSVI farther from legitimacy.


That's what I was thinking. It appears this particular journal made the decision to devote an entire issue to CCSVI papers, which may be a good thing. But it seems the lead proponents of this theory are trying find anyone with an audience to portray this in the most favorable way possible.
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Postby Lyon » Thu Apr 01, 2010 9:06 am

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Postby ikulo » Thu Apr 01, 2010 9:34 am

patientx wrote:But it seems the lead proponents of this theory are trying find anyone with an audience to portray this in the most favorable way possible.
It's called public relations, and it's the most effective way to gain awareness. With awareness comes more funding for studies, which will in turn either provide further evidence or disprove the theory.
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Postby ozarkcanoer » Thu Apr 01, 2010 10:03 am

Ashton Embry may not be a neurologist or radiologist, but he cares about people with MS and is willing to put his money into CCSVI research. Direct-MS has made a $75,000 grant to BNAC for CCSVI research. For every MStery party that is held, he will match $1000.00 up to $75000.00.

Everyone here can throw a MStery party. My sister-in-law and I are hosting a MStery Party Picnic for BNAC in June. Get involved like Ashton Embry !!! Go to bnac.net and follow the "donate" button.

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