Moment of truth for Tiger after his CCSVI MS treatment

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Moment of truth for Tiger after his CCSVI MS treatment

Postby MSUK » Thu Apr 01, 2010 6:14 am

Moment of truth for Tiger after his CCSVI MS treatment

Tim Stevens travelled to Poland in the hope of finding a cure for his MS, the hugely debilitating illness which has robbed him of the use of his legs.

In this final part of his account of the trip, BRIAN BEACOM reveals how Tim got on after leaving the clinic in Kato...wice ...

As miracles go, it’s not exactly up there with the biblical classics. But for Tiger Tim’s wife, Caroline, the sight of her husband tucking into his Hawaiian pizza using a fork in his left hand was nonetheless astounding.

"My God," he’s holding it," shouts, Caroline of the fork adventure.

"This is the first time in 10 years Tim has been able to use his left hand to eat, even though he is left handed.

"I can’t believe it........................" Full story - http://www.msrc.co.uk/index.cfm/fuseact ... ageid/2954
MS-UK - http://www.ms-uk.org/
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Great Article

Postby Squeakycat » Thu Apr 01, 2010 6:39 am

The best part of the article is:

Is it all too good to be true? The medical world point out this procedure is still an unproven experiment.

"What you’ve seen is merely an observation," said one consultant. "Until it’s been tested and compared it doesn’t prove anything. And the people involved could have had the same improvement had they been pumped
full of steroids. Or, there could be a placebo effect."

They weren’t treated with steroids however. And would the placebo effect be so pronounced? It’s now a week since the operation and all are continuing to improve by degrees.


A few more articles like this and maybe even Number 10 will get the message.
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Postby homefront » Mon Apr 19, 2010 1:55 am

Hello

my wife is ppms and from Scotland (not far from Glasgow). Her parents had picked up on the Tiger Tim story from the local press and we followed it thre and on the internet.

We would like to know how things are going in the weeks following the procedure but seem to have lost the thread.

Does anyone know if there are posts anywhere with updates?

Thank You
Peter & Annemarie
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Postby moochsid » Mon Apr 19, 2010 9:15 am

Hi .We're from Edinburgh.My wife has SPMS and I have posted on the initial reactions after returning from Poland on the thread 'Some notes from abroad (Poland) and of course Badger who was with Tim is keeping us up to date on his own dedicated thread. I read somewhere that Tim had a concert organised in Glasgow after his return..Would be nice if he updated us on how this went.
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Eyewitness account

Postby Trent » Tue Apr 20, 2010 8:13 am

Could we plese have some detailed feedback / blow by blow account of events from arriving to departing from Katowice, Poland, to help ease the minds of those yet to embark on this venture? I, for example, am wholly wheelchair dependant, so it really matters.
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we are here

Postby livabird » Tue Apr 20, 2010 8:58 am

Hi Trent,
We have just arrived in Katowice yesterday. Livabird(jayne) has the MRV tomorrow and then all going well treatment on Thursday.

We have a forum set up called Livabirds Poland adventure, i am trying to keep updates each day, from when we left at 3:30am on Sunday, driving all the was to Poland from Northampton.

I am also keeping the updates and pictures on facebook so let me know if you want to access these we can add you as a friend if you are on FB
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Updates

Postby Trent » Tue Apr 20, 2010 12:29 pm

Thanks Liva. I'll read those avidly. At 68 with PPMS, wheelchair dependent everything matters!
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Postby livabird » Tue Apr 20, 2010 12:42 pm

Trent,
Will keep you posted.
Liva also has PPMS and is 50(but don't tell her i told you her age :D )
She is wheelchair dependant as well
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Updates

Postby Trent » Tue Apr 20, 2010 12:54 pm

Thanks for that. I'm not into facebook - at least not yet! So your posts will help.
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