Thornton Brothers - Canada

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Thornton Brothers - Canada

Postby PCakes » Thu Apr 01, 2010 12:13 pm

Does anyone have any current news on how 'the brothers' are doing? or know of a site with updates?

Although there are others making the trip..this pair being in the CBC, spotlight are good for dialogue.
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Postby mangio » Thu Apr 01, 2010 12:44 pm

ctv did a story with Evan back home - it's on one of the f.books
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Postby PCakes » Thu Apr 01, 2010 4:37 pm

thanks Mangio.. 'Cheerleader' posted the CTV link on facebook today..

http://ottawa.ctv.ca/servlet/an/local/C ... OttawaHome
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Postby Mathd » Thu Apr 01, 2010 5:45 pm

Very nice video!


The Evan thornton's blog!
http://evanthornton.wordpress.com/


Very interesting...
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Postby Billmeik » Thu Apr 01, 2010 5:46 pm

so is there a page that has all the blogs being kept by people who've had the operation?
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Does anyone have contact info. for them?

Postby Brightspot » Sat Apr 03, 2010 11:56 pm

I am curious to know if these brothers have been in touch with Health Canada. If not I would like to know what kind of response they get if they contact Health Canada. Like many other Canadians they have had to leave the country to obtain a diagnosis.

This is the agency that is supposed to help Canadians who are unable to access the health care they need in Canada. Once someone has an actual diagnosis and cannot access specialist consultation, or treatment they should contact Health Canada and ask for help.

If you have been diagnosed with CCSVI and are not able to get further screening or consultation with a specialist for further testing and advice about possible treatments you should be getting from our Canadian health care system, you should let Health Canada know and ask them for help.

They deal with concerns from people not getting the care they need. You could contact.

I met Ms. Desforges at the First Canadian Patient Summit, and she has been made aware of the issue of CCSVI. She was interested and respectful.

Ms. Lucie Desforges,
Director,
Office of Consumer and Public Involvement,
Health Products and Food Branch, Health Canada.

address is
11 Holland Avenue, Holland Cross
Tower A, Suite 513 A.L 3005A
Ottawa, Ontario
K1A 0K9

or email lucie_desforges@hc_sc.gc.ca

phone number is 613 948 8431
fax 613 954 8637
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