I am curious to know if these brothers have been in touch with Health Canada. If not I would like to know what kind of response they get if they contact Health Canada. Like many other Canadians they have had to leave the country to obtain a diagnosis.
This is the agency that is supposed to help Canadians who are unable to access the health care they need in Canada. Once someone has an actual diagnosis and cannot access specialist consultation, or treatment they should contact Health Canada and ask for help.
If you have been diagnosed with CCSVI and are not able to get further screening or consultation with a specialist for further testing and advice about possible treatments you should be getting from our Canadian health care system, you should let Health Canada know and ask them for help.
They deal with concerns from people not getting the care they need. You could contact.
I met Ms. Desforges at the First Canadian Patient Summit, and she has been made aware of the issue of CCSVI. She was interested and respectful.
Ms. Lucie Desforges,
Office of Consumer and Public Involvement,
Health Products and Food Branch, Health Canada.
11 Holland Avenue, Holland Cross
Tower A, Suite 513 A.L 3005A
or email lucie_desforges@hc_sc.gc.ca
phone number is 613 948 8431
fax 613 954 8637