This Is MS Multiple Sclerosis Community: Knowledge & Support

At Boston Medical Center-



http://bostonccsvi.com/handler.cfm?even ... cpid=26326

--these docs went to the Hamilton conference, where arcee met them. She reports that Putnam's original work on MS was at Boston City Hospital, which is now Boston Medical Center. A poetic touch-
cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

Wonderful news, cheer. I have sent this news to all my academic contacts and my neurologist.

ozarkcanoer

Are they taking patient volunteers?

Hello to all, I contacted Boston Medical Center about 2 and a half weeks ago. I just received a call from them this past week. They sounded very encouraged about the progress being made in regards to CCSVI. I was told they plan on doing testing as well as treatment in the next 2 to 3 months. Boston Medical Center is a WORLD CLASS hospital. Ironically my father had a quadruple bypass operation at this hospital 7 years ago and at age 75 is doing fantastic,THANK GOD. It was only a matter of time that a leading hospital on the east coast would get involved with CCSVI. I live just outside Boston so as things develop, I would be glad to assist people in any way that I can in anyway that I can. GOD BLESS AND HAPPY EASTER!!! BOSSMAN

Thank you Bossman, that is very kind of you. I am getting really excited now, things are really looking good for us, finally.

Oh I forgot, HAPPY EASTER TO YOU AND YOUR FAMILY.

OH I FORGOT, GO RED SOX!!!

_________________
BOSTON the Birthplace of LIBERTY IN AMERICA
and soon LIBERTY for MS patients. GOD BLESS AMERICA

GO RED SOX!!

This could be a significant breakthrough-when a prestigious medical institution picks up CCSVI research and treatment, it then becomes medically and scientifically "acceptable" and no longer just a crackpot theory.

The next step would be for other medical colleges to rush in and catch up so as to "be in the forefront" of advances.

Donnchadh

_________________
Kitty says, "Take that, you stenosis!"

Got MS?.....Get Liberated!

News from the wife of an MS patient going to Boston Medical Center-
posted on Facebook-
http://www.facebook.com/pages/CCSVI-in- ... 0796282297



cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

I, too, have communicated with BMC. The service coordinator, Diane and Dr. Kim, himself. have replied. They need a recent H&P, labs and any pertinent info/testing . Not MRI's, just now. They also asked to check with your insurance about whether they will cover MRV of neck and the chest with contrast and duplex Doppler. Try bostonvascular.com for further info. They, too, are waiting for IRB approval. Check it out......
GOOD LUCK to all of us! [/b]

http://bostonccsvi.com/handler.cfm?even ... cpid=26326

Unbelievable! Somebody found a way to crush this. I was on the list...shocked!

And this is what I found...

"The information on Chronic Cerebrospinal Venous Insufficiency (CCSVI) studies was placed here in error and has been removed. There are no proposed or ongoing studies on Chronic Cerebrospinal Venous Insufficiency (CCSVI) at Boston Medical Center. We are sorry for any inconvenience. "

a disappointed Hope,
be well all

_________________
-----------
Dx March 2003
Avonex

inconvenience......I'm so so sorry

Does anyone know what's going on in Boston?

It seems like there has been a serious change of direction here.

be well all,
Hope

PS Cheer...please keep up all your most appreciated work for CCSVI, you've been instrumental in getting us this far. God bless.

_________________
-----------
Dx March 2003
Avonex

I had been in communication with BMC as well, pretty much the same story as belsadie's and then I had a couple of more technical questions that Diane could not answer so she forwarded them to Dr. Kim. This was all going on a week ago. Then on Thursday, I ignored a call, thinking it was a telemarketer or something, on my home phone (which does not have a message center). Caller ID said: "California" and a phone number??? Then from exactly the same number, I got a phone call on my cell and I missed that call as my cell was on a different floor than I was. The message on my cell was very hard to understand and about all I got out f it was that it was a Dr.-------- (couldn't make out the name) from "Boston Medical Center" and something about a CCSVI study, and an attempt would be made to reach me again the next day. I have not missed another call & haven't rec'd another call or email. It seemed very strange to me that the calls from a supposed BMC person came from a number from California???? Anyone else with that story?