'The Time Has Come'
Newfie-girl you are so right! thanks to cece,pcakes,annad,broomdancer for your supportive comments. I have sent an email to a canadian law Firm Siskind. They advertise Class Action as a specialty.
They have a question portal so I sent them the following:
I/We believe that the Canadian Health care System is discriminating against Canadian citizens diagnosed with Multiple Sclerosis. Due to the pre existing condition of MS, patients are being denied basic recognized diagnose and treatment protocols of extracranial venous blockage.
Another words if you are healthy and present sysmptons of stenosis of the venous system you would be tested and than treated. Not so with people afflicted with Multiple Sclerosis. Our members are being told that because you have MS a venous specialist will not touch you, its our understanding that the Canadian Society of Vascular Surgery have gone on record and told there association that if they treat anyone for extracranial venous blockage and they have MS they will be subject to discipline. I/We know nothing about the law we are humble law abiding citizens who have watched our loved ones deteriate into the abyss. WE need HELP.
Please view this link, it indicates the desperation of MS sufferers versus the Research community. Especially note the post from
K. Ross DEC 22, 2009, 8:47pm
Her thoughts are reflected by all MS sufferers in Canada not withstanding the hope any positive results of the current CCSVI research.
http://scienceblogs.com/whitecoatunderg ... /12/ms.php
Hoping for a continued dialogue, we have many questions.
Caregiver to my beautiful wife
One way or the other this course of action needs to be perssued. A lot of like minded people are doing a lot of amazing things in our communities to spread the word about CCSVI.
But this is different!!! This is a medical abnormality that if, you were healthy and presented symptons, the Canadian Health care system will diagnose and treat.
I am sick and tired of MS sufferers being pigeon holed by our medical profession. Do you know how many times we have gotten the 'you have MS live with it look' Its now gotten to the point were our next step is a nursing home.
I estimated that it costs Canadian Taxpayers at min. of 50-75,000 a year to support her and she still lives at home, I am retired and i am rarely out the door. This is not a pity party its life but like i stated in an earlier post if this was 20 years ago and this information had come to light I would be knocking down doors to get her the help she needs.
The MS Society is having a webinar on Wed April 7, 2010, go the site and sign up if you have not yet. I suspect it will be a lot of chest beating look what we are doing, raw raw. Alas i will give them the benefit of the dought.
All in my opinion
keep the heat to the feet