MRV Question?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby Salvatore24 » Wed Apr 07, 2010 9:58 pm

I think neither MRV or Doppler is better than one or the other, they both have their place in imaging the veins. To quote Dr. Sclafani:
The catheter venogram has the precedent of being considered the gold standard imaging test of the anatomy of the veins. Flow issues can be assessed subjectively but other tests, such as ultrasound and MRvenogram should be more accurate for specific velocity and flow rates
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DS and SV are better than MRV

Postby MarkW » Thu Apr 08, 2010 6:21 am

Hello Salvatore24,
You are entitled to your view 'I think neither MRV or Doppler is better than one or the other, they both have their place in imaging the veins.'

This impressive author list disagree with you:
Hojnacki D, Zamboni P, Lopez-Soriano A, Galleotti R, Menegatti E, Weinstock-Guttman B, Schirda C, Magnano C, Malagoni AM, Kennedy C, Bartolomei I, Salvi F, and Zivadinov R
The Jacobs Neurological Institute, State University of New York, Buffalo, NY, USA

CONCLUSION by them:
The use of MRV for diagnosis of CCSVI in MS patients has limited value, and the findings should be interpreted with caution and confirmed by other imaging techniques such as DS and SV.

The abstract is found on:
csvi-ms.net/en/content/publications-venous-multiple-sclerosis#hojnacki10a

Kind regards,
MarkW
Mark Walker - Oxfordshire, England. Registered Pharmacist (UK). 11 years of study around MS.
Mark's CCSVI Report 7-Mar-11:
http://www.telegraph.co.uk/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html
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Postby silverbirch » Mon Apr 19, 2010 7:17 am

Mark w thankyou for your previous answersxx
May I trouble you further more

I’ve received my email from Ameds confirming my CCSVI screening/treatment - I now await next phase e.g treatment dates.... notice will be given in 20 days

I’ve also secured an appointment with EHC (uk) 9th July.
However should I get Ameds first Ill use EHC as a tool in checking treatment received from Ameds- that’s the plan as EHC already paid for (screening) £450.00

Azygos veins would I be correct in my thinking that we have two?

One in the chest?
One in the brain?
Both are similar in sound but spelt slightly differently ?

MRI Stents/Ballooning

Giving that my condition is not bad I would push for ballooning ..however should I be presented with Ameds recommeding stents I think Ill hold fire on stents....

As I understand it MRI can not be preformed with metal /stents in place so how is my future MS monitored if I cant have MRI is there another option for those with stents or equally not everyone likes confined spaces ?

Following CCSVI Stemcells would be the next step in MS and again how is this to be screened /monitored if MRI can not be done .

Kindest regards


RR/CIS 2009 One attack - no DMD -
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Postby Algis » Mon Apr 19, 2010 7:29 am

Azygos veins would I be correct in my thinking that we have two?

One in the chest?
One in the brain?
Both are similar in sound but spelt slightly differently ?


You (and everybody else) have only 1 azygos vein :)

http://www.thisisms.com/ftopicp-105354.html#105354
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Testing after treatment

Postby MarkW » Tue Apr 20, 2010 3:24 am

Hello Silverbirch,
I advise to keep both appointments unless you have a real financial problem to do so. Always keep in mind that less than 500 pwMs have been de-stenosed, worldwide, so far. How quickly re-stenosis may occur is real guess work at this time (0 days to 3 years to never has been found in different patients !). If you have the test/treatment at AMEDS Warsaw in June and a checkup in July you will be pretty certain of your CCSVI status by mid July, a great position to be in.

A pharmacist is not the best person to ask about anatomy but my understanding is that the azygos vein is in the chest and normally you have only one. The web is good for anatomy cos it is a factual subject and you will find helpful pictures/diagrams.

Good luck,
MarkW
Mark Walker - Oxfordshire, England. Registered Pharmacist (UK). 11 years of study around MS.
Mark's CCSVI Report 7-Mar-11:
http://www.telegraph.co.uk/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html
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Postby silverbirch » Tue Apr 20, 2010 2:19 pm

Markw
Thank you once again for your clarification / opinion that are valued xx

Apoligies in advance of long email xxxxxxxxxxxxxxxxxxxxxx

I’ve recently changed my neuro to the guys at The National my recent appointment he was happy to ENTER into conversation about CCSVI it was not dismissed I put that down to young blood and not a dinosaur / approach.
I never discussed Ameds as I did not know about it at the time of appointment.

I did inform him that I was on listings for EHC the reply I got - EHC are putting their career on the line, my reply well they must feel that it’s a sure bet.
If you ask me viewing EHC with business acumen the risk is bigger than any career its EHC business, monetary value and creditability .CCSVI must have teeth which equates to ££. In addition to that I understand EHC are backed by MSRC again to me further clarification supporting CCSVI role in MS.

I was asked to hold fire for six months with ballooning with EHC as an oral medication would soon be available cladribine coupled with advice that I’m not that bad (hence why I’m only looking at ballooning and the concerns with stents at the minute..
He did send me for an MRI , bloods and an eye test with wires attached to my head. This is to monitor/confirm my recent lists of concerns !!!

I’m due back there 1st June for results I may find myself in their bad books having not heeded their advice.. a bit scared about this..

If you have any good/bad info on Cladribine it would be very welcome xxx

Kindest regards and again sorry for the mammoth email
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