mshusband wrote:Do you think sharing it on the internet is the best bet anymore? Anytime you get the word out ... the doctor gets shut down.
Don't you think private messages for people interested IN THE AREA is the best bet anymore? Keep it quiet.
It's possible drug reps and people who would want to shut these things down are trolling this website looking at this and information just to go negative against it and the doctors?
TRY PM's PLEASE as a way to spread "sensitive" information ...
(at least that's my opinion).
tzootsi wrote:My wife Melanie, is scheduled for a venography this coming Friday, April 9 at a major New England medical center. Melanie was dx’d with a mild case of MS in August of 2007. Her symptoms include a heavy right leg, balance issues, burning skin, etc. Thanks to this forum (thank you Cheerleader!), we took it upon ourselves to call the interventional radiologist at our local medical center this past November. He had never heard of CCSVI, but was interested as soon as I explained what it was. A few weeks later, he had my wife come in for a Doppler. He found some turbulence in the left jugular, and felt it was sufficient evidence to proceed with the venography (he felt an MRV wasn’t necessary). Luckily, he is friends with both Dr. Dake and Dr. Sclafani and is now in contact with them.
I’m not at liberty to disclose the doctor at this point, but hopefully will do so in the future. Tomorrow 4/6, we meet with him to go over the procedure, and Friday is the big day! We will keep you posted.
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