Today is a reward, 5 1/2 months post surgery

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby Katie41 » Mon Apr 05, 2010 10:14 pm

Rhonda,
What a wonderful day for you, your family, your TIMS family, and CCSVI! I'm so happy for you! It is especially nice to hear such positive news in light of some of the other news, today. Send it out to any newspapers in your area, someone will pick it up. Call or e-mail your radio and T.V. stations, too. Try to get it to the person in charge of Human Interest stories. If they won't pick it up, they will know who might.

Best of luck as you emerge as a particularly good spokesperson speaking from the heart.
Katie41
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Postby Inge67 » Tue Apr 06, 2010 12:51 am

Thanks Rhonda, you just made my day.

I am very near to having the procedure (poland april 27th) and getting more nervous every day. But when I read your post I know that this is what I am hoping for, why I am doing it.
To be able to spend a great day with my sons (twins,9) and my husband and not having to think about MS. Not that I would go kayaking...hey, you can't expect too much! Lol
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Postby ClaireParry » Tue Apr 06, 2010 1:32 am

Rhonda, that's amazing! I'm so pleased for you. Claire
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Postby Badger » Tue Apr 06, 2010 2:59 am

I am so happy for you!!! Congratulations.xxx

I had my surgery only 2 weeks ago so your posting gives me nothing but confidence in believing I will beat this. :lol:
<em>Badger
RRMS 2004</em>
Appt Katowice 23/24th March
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Postby magoo » Tue Apr 06, 2010 6:40 am

Thank you all so much :D I hope the future brings all of us a life without MS. With so much happening right now, (we seem to be in the thick of trying to figure out the many sides of CCSVI) it would be easy to feel some fear and doubt. When I began learning about CCSVI, hearing the stories of other's successes kept my faith admist the skepticism and doubt. This finding by Dr. Zamboni is nothing short of a miracle for us and with the brilliant doctors now researching and treating CCSVI we will have our answers. I see a very bright future for all of us!
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
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Postby CRHInv » Tue Apr 06, 2010 7:05 am

Way to go my friend!
dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back.  Placebo schmebo.
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Postby colmmc » Tue Apr 06, 2010 7:26 am

Thank you So much,This is great news,
It gives us the ones in waiting renewed Faith.
some days the nay sayers get you down and start you start to question the whole thing.
NOT TODAY THANK YOU.
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Postby tipsyturtle » Tue Apr 06, 2010 8:02 am

I am thrilled for you Rhonda! You have been an inspiration to so many of us- thank you again and again.
I'm sitting in my hotel room here in Katowice waiting for the MRV which is scheduled for tomorrow. Hoping and praying for success like yours.
cheers!
:D
Katowice, April 7/8
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Postby openmind » Tue Apr 06, 2010 8:30 am

What an inspiring post..thank you so much...as I am here at the beginning of my adventure 17 days after liberation and I feel like a car engine that is spurting into life, one minute I am light and everything is functioning almost normally and the next minute I am back to staggering around between the furniture, but I know that changes are happening and because of your wonderful reply to my earlier post (home from Poland) I am being kind to myself and letting go and just letting be.
You are truly an inspiration! Well done to you :wink: JO xx
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Postby magoo » Tue Apr 06, 2010 10:48 am

Best of luck to those getting ready for treatment!! I will be pulling for you!
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
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Postby Rose2 » Tue Apr 06, 2010 10:51 am

ME TOO!!! Best wishes and exicited happiness to all of you!!
It is soo nice to feel better every day!! Rose ;)
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Postby Mutley » Tue Apr 06, 2010 12:31 pm

Simply brilliant, thank you so much for sharing! I'm sure more good things are to come for you
Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5
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Postby Sharon » Tue Apr 06, 2010 12:44 pm

Rhonda - you go girl!! What a wonderful story!
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Postby Maestro » Tue Apr 06, 2010 4:41 pm

Magoo,
You made my day!
Way to go :!:

Thank you Rhonda,
V.
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Postby magoo » Tue Apr 06, 2010 4:45 pm

I feel the love, thank you guys!
:D
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
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