Treatment starts in Kuwait

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby muse » Wed Apr 07, 2010 5:56 pm

Here is a newer paper where we get closer to the 600MSers
Best
Arne

==================================

Original Paper
Epidemiology of Multiple Sclerosis in Kuwait: New Trends in Incidence and Prevalence
A.F. Alshubaili, K. Alramzy, Y.M. Ayyad, Y. Gerish

Department of Neurology, Ibn Sina Hospital, Safat, Kuwait
Address of Corresponding Author
Eur Neurol 2005;53:125-131 (DOI: 10.1159/000085556)
Abstract
The epidemiology of multiple sclerosis (MS) is undergoing dramatic changes; MS is occurring with increased frequency in many parts of the world. In this retrospective study, we examined the changes in incidence and prevalence of MS in Kuwait in the period between 1993 and 2000. We analyzed the records of patients with clinically defined and laboratory supported MS. The total incidence rate increased from 1.05/100,000 population in 1993 to 2.62/100,000 in 2000. The increased incidence of MS was most pronounced among Kuwaiti women (from 2.26/100,000 in 1993 to 7.79/100,000 in 2000. The total prevalence rate increased from 6.68/100,000 in 1993 to 14.77/100,000 in 2000. It was much higher for Kuwaitis (31.15/100,000), as compared to non-Kuwaitis (5.55/ 100,000), in a complete reversal of the pattern observed before 1990. The prevalence was also higher among Kuwaiti women (35.54/100,000), as compared with Kuwaiti men (26.65/100,000). In conclusion, the incidence and prevalence of MS in Kuwait has increased between the early and late 1990s with no signs of leveling off. In a geographic area that was previously associated with low prevalence, local environmental factors may be responsible for these dramatic changes.
http://content.karger.com/ProdukteDB/pr ... /000085556
User avatar
muse
Family Elder
 
Posts: 180
Joined: Wed Aug 05, 2009 2:00 pm
Location: New Zealand

Advertisement

Postby Lyon » Wed Apr 07, 2010 5:58 pm

.
Last edited by Lyon on Mon Nov 21, 2011 4:43 pm, edited 1 time in total.
Lyon
Family Elder
 
Posts: 6063
Joined: Wed May 03, 2006 2:00 pm

Postby cheerleader » Wed Apr 07, 2010 7:12 pm

Yeah...I agree, Bob, the numbers seem off. But Kuwait is an interesting place to study, because MS is so rare, yet the numbers are growing. Here's a study that suggests the rising MS rates is because of an increase in the population of Palestinians-

On December 31, 1988 there were 201 registered multiple sclerosis patients in Kuwait, an overall prevalence rate (PR) of 10.2 per 100000; among them were 186 Arabs, of whom 72 were Palestinians and 51 Kuwaitis. Comparison of these two subgroups, who had a similar age distribution revealed that the disease was2 1/2 times more frequent among Palestinians (PR 23.8/100 000) than among Kuwaitis (PR 9.5/100 000). Palestinians also showed significant differences from Kuwaitis in eye color, blood group distribution and HLA-DR and HLA-DQW epitopes frequency. This suggests that genetic rather than environmental factors might be the underlying cause for the high susceptibility to develop MS among Arabs originating from the Eastern Mediterranean basin.

link

And from our buddy, Alastair Compston, comes a chapter in his McAlpine's MS book on MS in Kuwait, stating a similar thought, that the inclusion of the Caucasian genes from the Palestinians was creating the rise in MS rates. Dr. BB Lee was clear in Bologna--stating that Caucasians have much higher rates of truncular venous malformations.
link

will be interesting to see more studies from Kuwait-
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
User avatar
cheerleader
Family Elder
 
Posts: 5077
Joined: Mon Sep 10, 2007 2:00 pm
Location: southern California

Postby BBE » Thu Apr 08, 2010 3:17 am

There were 500 MS patients in Kuwait 2008. http://www.atlasofms.org/export.aspx
BBE
Family Member
 
Posts: 64
Joined: Sat Sep 05, 2009 2:00 pm
Location: Slovakia

Postby Ernst » Thu Apr 08, 2010 7:18 am

Im still interested about media / news about this thing. I found something with google transalator.. and if I understood correctly, the newspaper article says that the liberation treatment will be approved treatment in kuwait with MS patients. Thats all I found so far.. but put some links if you see some?

Google translator makes some funny things.. but at least I understand something from that..

Image
Last edited by Ernst on Thu Apr 08, 2010 7:48 am, edited 2 times in total.
My wife's 3 yrs post video: http://www.youtube.com/watch?v=eLeqLps8XR8

Our family: http://www.youtube.com/watch?v=p_QCKxeQAlg
User avatar
Ernst
Family Elder
 
Posts: 294
Joined: Sat Nov 15, 2008 3:00 pm
Location: Rovaniemi

Postby Asher » Thu Apr 08, 2010 7:35 am

[quote]And from our buddy, Alastair Compston, comes a chapter in his McAlpine's MS book on MS in Kuwait, stating a similar thought, that the inclusion of the Caucasian genes from the Palestinians was creating the rise in MS rates. Dr. BB Lee was clear in Bologna--stating that Caucasians have much higher rates of truncular venous malformations

Fair haired children is not an uncommon occurrence amongst Palestinians. This is the heritage of English soldiers during the British mandate in Palestine in the 20's and 30's of the last century.
User avatar
Asher
Family Elder
 
Posts: 337
Joined: Sun Jan 31, 2010 3:00 pm

Postby burntsienna » Thu Apr 08, 2010 12:07 pm

sorry, but it doesn't look like much independent verification is out there that any of this is actually real. (not questioning anyone here, but)
User avatar
burntsienna
Family Member
 
Posts: 30
Joined: Tue Feb 20, 2007 3:00 pm
Location: wales, UK

Postby Zeureka » Thu Apr 08, 2010 12:53 pm

KUWAIT NEWS AGENCY
Kuwait approves MS bypass surgeries for research purposes
Health 4/8/2010 8:58:00 PM
Wow! "The presentation meets the legal, moral and scientific criterions specified by concerned organizations including the World Health Organization (WHO)," he affirmed.

http://www.kuna.net.kw/NewsAgenciesPubl ... anguage=en
User avatar
Zeureka
Family Elder
 
Posts: 481
Joined: Thu Jan 14, 2010 3:00 pm
Location: Italy

Postby ikulo » Thu Apr 08, 2010 1:00 pm

from the article...


KUWAIT, April 8 (KUNA) -- The committee on morality of the medical profession approved conducting bypass surgeries for multiple sclerosis (MS) patients for research purposes, the Ministry of Health said on Thursday.
A surgery of this kind could be conducted through inserting a catheter into a vein of the neck to enlarge it and facilitate the blood circulation, chairman of the standing committee for coordination of medical researches at the ministry, Dr. Youssof Al-Nesf, said.
"The move which came in response to a presentation made at the meeting of the committee by Dr. Tarek Senan aims to ensure the safety of patients and protect the rights of researchers," Al-Nesf told KUNA after the meeting.
"The presentation meets the legal, moral and scientific criterions specified by concerned organizations including the World Health Organization (WHO)," he affirmed.
Under the decision of the committee, the researchers are asked to inform beforehand the patients of the medical checks, surgical procedures, the benefits, and the possible risks and complications of the surgeries the patient are supposed undergo. "No measures should be done without the knowledge and a written consent of patients in line with the internationally-recognized protocol of medical treatment," Al-Nesf underscored.
The MS bypass surgery was devised by Prof Paolo Zamboni, an Italian vascular surgeon, as an experimental treatment similar to angioplasty in order to enlarge the blocked veins. Prof Zamboni gained international praise after his study, published a study in 2009, proved to be highly successful in reducing MS symptoms.
However, some experts have expressed concern that the surgery may cause clots in the brain although people with MS are exposed to gradual destruction of their nerves or at least weakness and inability to walk. (end) mah.na.gb KUNA 082058 Apr 10NNNN
User avatar
ikulo
Family Elder
 
Posts: 444
Joined: Tue Aug 04, 2009 2:00 pm
Location: colorado

Postby Lyon » Thu Apr 08, 2010 2:41 pm

.
Last edited by Lyon on Mon Nov 21, 2011 4:43 pm, edited 1 time in total.
Lyon
Family Elder
 
Posts: 6063
Joined: Wed May 03, 2006 2:00 pm

Sad but true

Postby Gordon » Thu Apr 08, 2010 2:49 pm

Can I emigrate to Kuwait and get my surgery done. It will be faster than Canada. My friend just got back from her Neuro who said it is sorta interesting but maybe in five or ten years it might be proven.

Then added how are your perscriptions do you need refills.

G
User avatar
Gordon
Family Elder
 
Posts: 296
Joined: Wed Jan 06, 2010 3:00 pm

Postby NZer1 » Thu Apr 08, 2010 7:37 pm

This will be huge for all MSers and it will put Kuwait on the world stage big time. There are so many positive outcomes of this as there is so little published knowledge on the importance of blood return flow from the brain. At this stage MS is the reason for looking at these veins, what it will lead to? Many medical discoveries? This can put Kuwait top of the research world and financially that is BIG. Very clever to lead the world on this gamble, and no matter what is turned up will be a winner for very nation. The possible outcomes are , words fail me. Well done Kuwait!
WORLD LEADERS did you hear that politicians!
User avatar
NZer1
Family Elder
 
Posts: 1522
Joined: Thu Feb 18, 2010 3:00 pm
Location: Rotorua New Zealand

Postby AlmostClever » Fri Apr 09, 2010 11:41 am

Latest W5 story on Kuwait:

http://www.ctv.ca/servlet/ArticleNews/s ... ?hub=WFive

Like the good Kuwaiti doc says "if this is a placebo effect, it's one I would want to have!"

These people are sooo far ahead of us!
If you can't explain it simply, you don't understand it well enough. - Al Einstein
AlmostClever
Family Elder
 
Posts: 366
Joined: Mon Dec 21, 2009 3:00 pm
Location: Houston, TX

kuwait

Postby aliyalex » Fri Apr 09, 2010 2:24 pm

interesting title of their program; THE LIBERATION WAR. that about coins it.
User avatar
aliyalex
Family Elder
 
Posts: 124
Joined: Tue Jan 05, 2010 3:00 pm

Postby Vhoenecke » Fri Apr 09, 2010 6:36 pm

What a progessive move on the government of Kuwait's part. How impressive as a Canadian Citizen to see how a government that cares will treat its people.
User avatar
Vhoenecke
Family Elder
 
Posts: 332
Joined: Sat Dec 12, 2009 3:00 pm
Location: Rosetown, Canada

PreviousNext

Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service