CCSVI upcoming awareness event idea...

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

CCSVI upcoming awareness event idea...

Postby girlgeek33 » Wed Apr 07, 2010 6:20 am

After many of us are liberated, who wants to do an awareness event on the Art Museum steps in Philly. We can all run the steps like Rocky!!! :) Could be great publicity. Now I'm thinking maybe the fall time frame? Who's in? And for those not liberated by then, family members?

Thoughts?

Suggestions on how to make this work and what we need to make sure we do aside from contact the Art Museum?

There might be better cities but how iconic would it be, we've been in this fight for too long, and could you just imagine many of us, not able to do something like this before being Liberated, being able to do it now?????
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Postby mshusband » Wed Apr 07, 2010 6:54 am

Being a Pennsylvanian ... We'd be in ... hopefully treated by then.
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Postby girlgeek33 » Wed Apr 07, 2010 6:58 am

I called the Art Museum to see how to get something like this started. Found out who I have to call and I've left a message....
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Postby girlgeek33 » Wed Apr 07, 2010 7:12 am

Okay, adding to the idea, have the many who have not been liberated remain at the bottom of the steps, and speak to the cameras how they would like the opportunity to make this climb!!!!!
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Postby WeWillBeatMS » Wed Apr 07, 2010 7:35 am

girlgeek,

I love your idea! I am going in for my MRV in a few days and if I show stenosis and am able to get the Liberation procedure I would like to get in on that if there are enough people involved to get some good publicity. I want to help fight on behalf of those suffering from MS who don't even know about it yet because their neurologists are not even telling them. Great idea! I love it!

faith, hope & love
<div>WeWillBeatMS<br /><br /><br />Zamboni for President!</div>
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Postby girlgeek33 » Thu Apr 08, 2010 9:48 am

Thanks WeWill! I'm getting some good interest in this event. Still waiting for call back from the parks department on how to have this event there. Post keeps getting buried in all other CCSVI posts, so I hope this doesn't get lost. I will keep updating as I get more information. On Monday I will talk to the Dr treating me to see if he is interested in attending such an event to speak on camera... :)
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