This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Mon May 20, 2013 11:52 pm


All times are UTC - 8 hours [ DST ]




Post new topic Reply to topic  [ 22 posts ]  Go to page Previous  1, 2
Author Message
 Post subject:
PostPosted: Tue May 04, 2010 8:55 pm 
Offline
Family Elder
User avatar

Joined: Mon Sep 10, 2007 3:00 pm
Posts: 4676
Location: southern California
On behalf of the whole Alliance--
Thanks for the bumps and thanks for the donations. We're getting there--by working together.
cheer
http://ccsvi.org/

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS


Top
 Profile  
 
 Post subject:
PostPosted: Wed May 05, 2010 9:57 pm 
Offline
Family Elder
User avatar

Joined: Tue Oct 27, 2009 4:00 pm
Posts: 422
Location: Montana, USA
****************************bump*************************


Top
 Profile  
 
 Post subject:
PostPosted: Mon Jun 07, 2010 4:12 am 
Offline
Family Elder
User avatar

Joined: Tue Nov 24, 2009 4:00 pm
Posts: 860
Location: India
Can someone check if this is applicable:
http://www.tomsofmaine.com/blog/blog-de ... s-giveaway


Top
 Profile  
 
 Post subject:
PostPosted: Mon Jun 07, 2010 7:27 am 
Offline
Family Elder
User avatar

Joined: Mon Sep 10, 2007 3:00 pm
Posts: 4676
Location: southern California
sbr487 wrote:
Can someone check if this is applicable:
http://www.tomsofmaine.com/blog/blog-de ... s-giveaway


We're incorporated in Delaware, which is not participating in the Tom's giveaway, but thank you so much, sbr...I'll double check with other board members to make sure that's our state of incorporation.

We're almost there, and appreciate the patience. Lots of hard work going on by Michelle, Mitch, Randi, Sharon, Neen and Cheryl right now....the crunch time before we go live. Our webpage is still up, and we're taking donations thru paypal.
www.ccsvi.org
thanks,
cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS


Top
 Profile  
 
 Post subject:
PostPosted: Mon Jun 07, 2010 5:39 pm 
Offline
Family Elder
User avatar

Joined: Sun May 30, 2010 3:00 pm
Posts: 314
Location: grande prairie , alberta,canada
cheerleader wrote:
Dear MS husband...and all others interested:
Please use the CCSVI.org website address and send an e-mail to the Info division (link at the bottom of our page) We are collecting names and areas of expertise for volunteers. We'll have the complete site up soon. Thanks so much for any and all help. I promise you will not be disappointed-
cheer

I will visit the ccsvi.org page. I'm hoping it can have an international participation for tax purposes. I live in Canada in a community of 60,000 people. In may of this year I raised $20,000 for our local MS walk for the canadian mssociety through an email campaign lasting only 8 days. I am fairly well connected in our business community and have a great idea for local fundraising over the next year. I want the money to go toward ccsvi research. I believe I can personally raise between $50,000 to $75,000 in this effort so I'd like to get started.


Top
 Profile  
 
 Post subject:
PostPosted: Mon Jun 07, 2010 6:22 pm 
Offline
Family Elder

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8506
garyak wrote:
I will visit the ccsvi.org page. I'm hoping it can have an international participation for tax purposes. I live in Canada in a community of 60,000 people. In may of this year I raised $20,000 for our local MS walk for the canadian mssociety through an email campaign lasting only 8 days. I am fairly well connected in our business community and have a great idea for local fundraising over the next year. I want the money to go toward ccsvi research. I believe I can personally raise between $50,000 to $75,000 in this effort so I'd like to get started.

There is not an applause emoticon, that's what I was looking for here!

How close to being up-and-running is the CCSVI alliance? There is also the International Society of Neuro-Vascular Diseases that Dr. Haacke is starting, to encompass MS and Parkinsons and whatever else comes into the fold. (He only just filed the paperwork on that, though, I don't know when it will be up and running.)

_________________
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition


Top
 Profile  
 
 Post subject:
PostPosted: Mon Jun 07, 2010 6:52 pm 
Offline
Family Elder
User avatar

Joined: Sun May 30, 2010 3:00 pm
Posts: 314
Location: grande prairie , alberta,canada
C:\Users\Gary Kostiuk\Pictures\images.jpg

for cece


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 22 posts ]  Go to page Previous  1, 2

All times are UTC - 8 hours [ DST ]


Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. A second CCSVI foundation?

frodo

4

1373

Sun Dec 05, 2010 7:31 am

VeeBee View the latest post

There are no new unread posts for this topic. CCSVI foundation walk successful

Cece

1

616

Thu Apr 21, 2011 9:29 am

bluesky63 View the latest post

There are no new unread posts for this topic. anyone know-has montel williams ms foundation-funded ccsvi

blossom

0

959

Sat May 15, 2010 12:52 am

blossom View the latest post

There are no new unread posts for this topic. CCSVI foundation sends three patients for treatment

Cece

6

1235

Wed Jul 06, 2011 7:27 am

Cece View the latest post

There are no new unread posts for this topic. SIR foundation sets CCSVI research priorities

squiffy2

0

677

Fri Jun 17, 2011 12:03 am

squiffy2 View the latest post

 


Who is online

Users browsing this forum: No registered users


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to: