CCSVI foundation???

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby cheerleader » Tue May 04, 2010 8:55 pm

On behalf of the whole Alliance--
Thanks for the bumps and thanks for the donations. We're getting there--by working together.
cheer
http://ccsvi.org/
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby Ruthless67 » Wed May 05, 2010 9:57 pm

****************************bump*************************
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Postby sbr487 » Mon Jun 07, 2010 4:12 am

Can someone check if this is applicable:
http://www.tomsofmaine.com/blog/blog-de ... s-giveaway
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Postby cheerleader » Mon Jun 07, 2010 7:27 am

sbr487 wrote:Can someone check if this is applicable:
http://www.tomsofmaine.com/blog/blog-de ... s-giveaway


We're incorporated in Delaware, which is not participating in the Tom's giveaway, but thank you so much, sbr...I'll double check with other board members to make sure that's our state of incorporation.

We're almost there, and appreciate the patience. Lots of hard work going on by Michelle, Mitch, Randi, Sharon, Neen and Cheryl right now....the crunch time before we go live. Our webpage is still up, and we're taking donations thru paypal.
www.ccsvi.org
thanks,
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby garyak » Mon Jun 07, 2010 5:39 pm

cheerleader wrote:Dear MS husband...and all others interested:
Please use the CCSVI.org website address and send an e-mail to the Info division (link at the bottom of our page) We are collecting names and areas of expertise for volunteers. We'll have the complete site up soon. Thanks so much for any and all help. I promise you will not be disappointed-
cheer

I will visit the ccsvi.org page. I'm hoping it can have an international participation for tax purposes. I live in Canada in a community of 60,000 people. In may of this year I raised $20,000 for our local MS walk for the canadian mssociety through an email campaign lasting only 8 days. I am fairly well connected in our business community and have a great idea for local fundraising over the next year. I want the money to go toward ccsvi research. I believe I can personally raise between $50,000 to $75,000 in this effort so I'd like to get started.
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Postby Cece » Mon Jun 07, 2010 6:22 pm

garyak wrote: I will visit the ccsvi.org page. I'm hoping it can have an international participation for tax purposes. I live in Canada in a community of 60,000 people. In may of this year I raised $20,000 for our local MS walk for the canadian mssociety through an email campaign lasting only 8 days. I am fairly well connected in our business community and have a great idea for local fundraising over the next year. I want the money to go toward ccsvi research. I believe I can personally raise between $50,000 to $75,000 in this effort so I'd like to get started.

There is not an applause emoticon, that's what I was looking for here!

How close to being up-and-running is the CCSVI alliance? There is also the International Society of Neuro-Vascular Diseases that Dr. Haacke is starting, to encompass MS and Parkinsons and whatever else comes into the fold. (He only just filed the paperwork on that, though, I don't know when it will be up and running.)
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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Postby garyak » Mon Jun 07, 2010 6:52 pm

C:\Users\Gary Kostiuk\Pictures\images.jpg

for cece
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