Our new Blog

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
Post Reply
User avatar
Johnnymac
Family Elder
Posts: 213
Joined: Wed Oct 18, 2006 2:00 pm

Our new Blog

Post by Johnnymac »

Hey everyone, I've finally started a blog to share our MS experiences. This is my first attempt at a blog, I hope you enjoy it.

http://ourmsjourney.blogspot.com/

-John
Rokkit
Family Elder
Posts: 669
Joined: Tue May 19, 2009 2:00 pm

Post by Rokkit »

You're a really good writer. Excellent first post. Can't wait to read more!
User avatar
annad
Family Elder
Posts: 207
Joined: Sat Nov 21, 2009 3:00 pm
Location: Ontario, Canada
Contact:

Post by annad »

Johnnymac,
Great job, Johnnymac! I enjoyed reading about how you two met/fell in love! Your beautiful wife is lucky to have you!
best wishes!
a
:)
User avatar
happy_canuck
Family Elder
Posts: 270
Joined: Sat Nov 28, 2009 3:00 pm
Location: Victoria, BC Canada
Contact:

Post by happy_canuck »

Your writing pulls your audience into the story -- great stuff!

Happy anniversary next week!

Sandra
National CCSVI Society: <strong><br /><a href="http://tinyurl.com/44znbct">http://tiny ... 44znbct</a> ~Website<br /><a href="http://tinyurl.com/3wzmkmg">http://tiny ... 3wzmkmg</a> ~Facebook</strong><br />
User avatar
ozarkcanoer
Family Elder
Posts: 1273
Joined: Thu Oct 15, 2009 2:00 pm
Location: St. Louis, Missouri
Contact:

Post by ozarkcanoer »

Thanks for sharing this with us JohnnyMac !

ozarkcanoer
User avatar
CRHInv
Family Elder
Posts: 403
Joined: Sun Aug 30, 2009 2:00 pm
Location: Chandler, AZ
Contact:

Post by CRHInv »

John,
I really enjoyed your first piece and look forward to reading more.
Thanks for sharing this with us.
Beth
dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back.  Placebo schmebo.
User avatar
thisisalex
Family Elder
Posts: 218
Joined: Wed Dec 02, 2009 3:00 pm
Location: Hungary
Contact:

Post by thisisalex »

great first post! :)
keep writing please...

waiting for the chapter with the title: we are liberated

alex
User avatar
Inge67
Family Member
Posts: 93
Joined: Mon Sep 28, 2009 2:00 pm
Location: The Netherlands
Contact:

Post by Inge67 »

Great blog! Love to read more

Inge
User avatar
Johnnymac
Family Elder
Posts: 213
Joined: Wed Oct 18, 2006 2:00 pm

Post by Johnnymac »

Thank you all for the kind words! I read it aloud to Courtney when she got up today and we both got choked up, never realized blogging could be therapeutic....
User avatar
marcstck
Family Elder
Posts: 560
Joined: Tue Jan 03, 2006 3:00 pm
Contact:

Post by marcstck »

Read your blog, great first post. Keep it up, I think it'll be a welcome addition to the "blogosphere" (I hate that word with a passion).

Feel free to contact me if you have any questions or need any advice regarding the whole blogging thing...
User avatar
Johnnymac
Family Elder
Posts: 213
Joined: Wed Oct 18, 2006 2:00 pm

Post by Johnnymac »

Second post is up, added some pics of Courtney and I from the last 7 years (today is our 7 year anniversary) :P

Cheers,
John
User avatar
MS_mama
Family Elder
Posts: 107
Joined: Mon Nov 09, 2009 3:00 pm
Contact:

Post by MS_mama »

loved your story, I'll be following your blog too... it's nice to hear the caregiver's perspective :)

(edited to add-- I love how you titled it Our MS Journey...)
dx RRMS Jun. 2009...on Copaxone and LDN and waiting for my turn to be "liberated"<br />
User avatar
zinamaria
Family Elder
Posts: 296
Joined: Fri Dec 04, 2009 3:00 pm

Post by zinamaria »

John and Courtney,

Happy Anniversary. You are blessed to have each other.
I am blessed to have such a companion who takes such good care of me; we take care of each other. When I first saw you photograph and saw 'caretaker for my beautiful wife' I called my companion over to the computer and said, Now this young man restores my faith in humanity.
I find my faith in humanity restored every time I get on TIMS.

I enjoyed your blog very much. And I wondered, is Courtney on any special diet, like the Swank or the BBet Diet? I highly recommend Ann Boroch's book 'Healing MS' also. What we can do as we wait for Liberation may help, especially as regards diet, which has made a big difference for me.

I will continue to pop in now and again to your blog. Thanks for being a resource on CCSVI, we need as many as we can get!

<Keep Taking good care of each other,
Zina
User avatar
zinamaria
Family Elder
Posts: 296
Joined: Fri Dec 04, 2009 3:00 pm

Post by zinamaria »

Oh, and is the photograph on the blog one of Courtney's photgraphs?
Z
User avatar
Johnnymac
Family Elder
Posts: 213
Joined: Wed Oct 18, 2006 2:00 pm

Post by Johnnymac »

zinamaria wrote:Oh, and is the photograph on the blog one of Courtney's photgraphs?
Z
Hi Zina,
yes, that is one of Courtney's photos. She hasn't started selling her art photography yet but I'm pushing her to do so, especially as the portrait work gets tougher physically. I need to put her website up there on the blog but here it is: www.fpphotography.com

We did the swank diet for like the first 20 or so months, and still try to do as low sat fats as possible high in omega fatty acids, etc. She supplements according to that diet as well. I'll check out that book, thanks for the recommendation.
-John
Post Reply

Return to “Chronic Cerebrospinal Venous Insufficiency (CCSVI)”