Our new Blog

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Our new Blog

Postby Johnnymac » Wed Apr 07, 2010 9:10 am

Hey everyone, I've finally started a blog to share our MS experiences. This is my first attempt at a blog, I hope you enjoy it.

http://ourmsjourney.blogspot.com/

-John
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Postby Rokkit » Wed Apr 07, 2010 9:20 am

You're a really good writer. Excellent first post. Can't wait to read more!
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Postby annad » Wed Apr 07, 2010 9:21 am

Johnnymac,
Great job, Johnnymac! I enjoyed reading about how you two met/fell in love! Your beautiful wife is lucky to have you!
best wishes!
a
:)
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Postby happy_canuck » Wed Apr 07, 2010 9:21 am

Your writing pulls your audience into the story -- great stuff!

Happy anniversary next week!

Sandra
National CCSVI Society: <strong><br /><a href="http://tinyurl.com/44znbct">http://tinyurl.com/44znbct</a> ~Website<br /><a href="http://tinyurl.com/3wzmkmg">http://tinyurl.com/3wzmkmg</a> ~Facebook</strong><br />
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Postby ozarkcanoer » Wed Apr 07, 2010 9:38 am

Thanks for sharing this with us JohnnyMac !

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Postby CRHInv » Wed Apr 07, 2010 1:58 pm

John,
I really enjoyed your first piece and look forward to reading more.
Thanks for sharing this with us.
Beth
dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back.  Placebo schmebo.
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Postby thisisalex » Wed Apr 07, 2010 2:39 pm

great first post! :)
keep writing please...

waiting for the chapter with the title: we are liberated

alex
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Postby Inge67 » Wed Apr 07, 2010 3:09 pm

Great blog! Love to read more

Inge
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Postby Johnnymac » Wed Apr 07, 2010 3:11 pm

Thank you all for the kind words! I read it aloud to Courtney when she got up today and we both got choked up, never realized blogging could be therapeutic....
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Postby marcstck » Wed Apr 07, 2010 5:03 pm

Read your blog, great first post. Keep it up, I think it'll be a welcome addition to the "blogosphere" (I hate that word with a passion).

Feel free to contact me if you have any questions or need any advice regarding the whole blogging thing...
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Postby Johnnymac » Tue Apr 13, 2010 9:40 pm

Second post is up, added some pics of Courtney and I from the last 7 years (today is our 7 year anniversary) :P

Cheers,
John
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Postby MS_mama » Thu Apr 15, 2010 9:07 am

loved your story, I'll be following your blog too... it's nice to hear the caregiver's perspective :)

(edited to add-- I love how you titled it Our MS Journey...)
dx RRMS Jun. 2009...on Copaxone and LDN and waiting for my turn to be "liberated"<br />
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Postby zinamaria » Thu Apr 15, 2010 11:18 am

John and Courtney,

Happy Anniversary. You are blessed to have each other.
I am blessed to have such a companion who takes such good care of me; we take care of each other. When I first saw you photograph and saw 'caretaker for my beautiful wife' I called my companion over to the computer and said, Now this young man restores my faith in humanity.
I find my faith in humanity restored every time I get on TIMS.

I enjoyed your blog very much. And I wondered, is Courtney on any special diet, like the Swank or the BBet Diet? I highly recommend Ann Boroch's book 'Healing MS' also. What we can do as we wait for Liberation may help, especially as regards diet, which has made a big difference for me.

I will continue to pop in now and again to your blog. Thanks for being a resource on CCSVI, we need as many as we can get!

<Keep Taking good care of each other,
Zina
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Postby zinamaria » Thu Apr 15, 2010 11:20 am

Oh, and is the photograph on the blog one of Courtney's photgraphs?
Z
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Postby Johnnymac » Thu Apr 15, 2010 2:54 pm

zinamaria wrote:Oh, and is the photograph on the blog one of Courtney's photgraphs?
Z


Hi Zina,
yes, that is one of Courtney's photos. She hasn't started selling her art photography yet but I'm pushing her to do so, especially as the portrait work gets tougher physically. I need to put her website up there on the blog but here it is: www.fpphotography.com

We did the swank diet for like the first 20 or so months, and still try to do as low sat fats as possible high in omega fatty acids, etc. She supplements according to that diet as well. I'll check out that book, thanks for the recommendation.
-John
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