http://www.mssociety.ca/en/research/ccs ... tm#webcast
PART 5 of Webcast (7:55/9:38...)
Yves Savoie is speaking, saying - living with MS is not easy....etc., etc.....
And then it goes right into the Moderator (8:03/9:38) asking a paraphrased 1/3 version of my question and comment re: double standards in advice from MSS and neurologists for CCSVI testing & treatment vs. MS Drug treatments that have now proven to be harmful to some patients.
Immediately prior to that 8:03/9:38 spot was my correction of Dr. Murray and then my question/comment re the latest March 29th news of MS Drug Treatments, which has obviously been edited out.
Sorry, I forgot to write down which "PART" to find Yves Savoie's comment re patient voice...CCSVI context. If anyone else comes across it, please post it here...need to hear again "for that I can only say I'm sorry," in reference to not having had the time to include a patient voice to bring to the table in the CCSVI context. Don't be sorry, fix it, include one now. Actually, please include TWO patients! One patient that reflects the MSS and the neurologists' view (the only ones being given a chance to speak even on the CCSVI Info panels) and one patient that reflects the view of the rest of us.
Some may think I'm being "picky". I am picky about the truth. Our health depends on the truth being paramount with all parties involved in CCSVI.