berries are nice in Poland

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby ComfortablyNumb » Thu Apr 08, 2010 4:57 pm

Berries,

Congratulations on your liberation. :D :D
Three blockages?
Get well rested and keep us all up to date on how you are feeling.

All the best.
Stephen
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Postby ClaireParry » Thu Apr 08, 2010 6:55 pm

Great news. You're 'LIBERATED'!

Take it easy now and don't try too much too soon xx
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Berriesarenice, could you please update?

Postby sumsum » Tue Apr 20, 2010 11:29 am

Dear Berriesarenice,

I hope everything went well with your liberation? Could you please just drop a line and update on improvements/ (or no improvements) ?

Thanks :D
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Postby berriesarenice » Tue Apr 20, 2010 11:59 am

Oh yes, I'm here. Thank you for checking on me. I've been without internet since my return from Poland, and Blackberry is awkward for a report that does justice to my condition. I feel amazing, amazing, amazing! I have been running around with my children (I have six) all day, every day since I've been back...the park, hiking, the pond, the farm. I was always able to walk, but the fatigue was so bad I used to lie down at 1:00pm, and be in bed until the next morning. Sometimes I'd join the family for dinner, but usually not. Now I make the dinner.
I don't have words to explain the difference this has made. It feels like I had been swinging a 10x weighted bat...through mud.
Now I find myself taking the stairs, two at a time, and racing my kids across the yard. I jumped on the trampoline with them. I'll give more detail when I'm back on line, but so far, this is way beyond what I imagined. I am so grateful to all of you who were brave enough to go through with this procedure when the establishment was saying to wait, to those of you who educated and gave your testimonies and your encouragement. I didn't fully believe what a difference this would make until I experienced it for myself.

Thank you, thank you to all of you!
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Postby sumsum » Tue Apr 20, 2010 12:20 pm

Very happy to hear this Berries-! All the best to you and your family - six children and no (more) fatigue - there must be something to the Liberation tratment I guess!!! :wink:
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Postby ozarkcanoer » Tue Apr 20, 2010 12:22 pm

Berries,

What a wonderful story !!! Please continue to report on your status. We love to hear from "The Liberated" !!

ozarkcanoer
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Postby prairiegirl » Tue Apr 20, 2010 12:22 pm

So great to hear-- please keep us posted! These reports are so encouraging. Wish you continued improvements.
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Postby mshusband » Tue Apr 20, 2010 12:36 pm

Amazing story.

All the best to you and your family! So happy for you.

I hope everyone gets the chance to experience this some day ...
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Postby silverbirch » Tue Apr 20, 2010 3:22 pm

Berries

Fantastic & encouraging to read your log playing with the children was my favourite bit xx

Now I’m going to sound like a child with all my questions apologies xxx

I’m expecting to hear my dates from Ameds within the next 20 days although booked for UK in July

Given that you have been treated with stents did they send you away with do's & don’ts?

Stents – I’m under the impression that MRI can not be preformed? Then how do they monitor brain lesions?

Do you also continue with DMD

Kindest regards
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Postby berriesarenice » Tue Apr 20, 2010 3:33 pm

Silverbirch,

I don't think stents are a problem for the MRI, I can't explain exactly why though. The one I got is supposed to be a combo of several different metals, and I've heard that this is helpful, but someone else out there can explain why.
Regarding DMD, I am stopping mine, but I know many have decided to continue with theirs, so there is no hard and fast answer there.

Best of luck w/ your upcoming procedure!
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Postby copacabana » Tue Apr 20, 2010 3:59 pm

oh berries...reading all these great results just brings me to tears : ) congratulations!!!! and here's to the liberation!!!!! hip hip horray!!!
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Postby berriesarenice » Tue Apr 20, 2010 4:43 pm

My 8-year-old daughter just handed me her observations, written in red crayon:

"It is so much more fun now that mom has had her surgery done, and is back from Poland. She even acts nicer! On our way back from picking up mom and dad from the airport I could tell by her behavior.
She took us to the park, and she never takes us to the park!"

Well, add "liberation procedure makes people nicer" to the list. ;)
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Postby Katie41 » Tue Apr 20, 2010 5:02 pm

Berries,

Such wonderful news! Congratulations! Isn't it amazing? Difficult to put into words.

Have such a great time with your kids!

Love,
Katie41
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Postby Johnson » Tue Apr 20, 2010 5:26 pm

Thanks berriesarenice. I hope my son thinks I'm nicer after I'm freed. Poor kid, I have not taken him anywhere in months.
My name is not really Johnson. MSed up since 1993
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Postby Rose2 » Tue Apr 20, 2010 7:03 pm

Berries!!!!!!!!!!!
Congratulations on feeling better already!!
I am so happy for you to feel the relief. ;)
Yes, you can have MRI after the stents are placed.
My 6 week follow up MRI/MRV was the same as the screening MRI/MRV before procedure.
So, I guess the material of the stent is MRI OK.
Please keep posting!
Sincerely,
Rose ;)
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