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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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Brynn
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PostPosted: Tue Apr 20, 2010 8:40 pm 
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Location: Spokane, Wa
I am really happy for you! :D It has to be so hard for our little ones to understand our troubles! I am glad to hear you went with the stents. I was given one stent in January and was supposed to be on a plane today to go back for a second one when the ballooning only did not hold on the other side. I had such improvement for 6 weeks and hearing your story gets me so excited again! :D They have rescheduled me for 5/13, and I hope the volcano will let that date work. I am so glad you didn't get stuck over there! As far as the MRIs go, I was told recently by a local MRI tech, that her organization wants a stent to be in place for at least 6 weeks before they do MRIs. I suppose they want the stent to begin being covered with body tissue before getting inside of a big magnet. Enjoy your new found freedom!! Brynn

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41 years old, dx 1998, current EDSS 6.5
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silverbirch
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PostPosted: Wed Apr 21, 2010 6:20 am 
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Hello Brynn

Sorry to hear that your date has been put back , roll on 13th May says you !!

I hope to hear from Ameds soon plus im scheduled for july in the UK.

Again sorry to hear that your ballooning did not hold - how did you become aware ? was it a feeling or screening that showed it

Knowing you have a another stent in place did you go right down hill or did it keep some symptoms abay

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Brynn
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PostPosted: Wed Apr 21, 2010 8:20 am 
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Hi Silverbirch, thanks for the well wishes. Here is t he link to that conversation: http://www.thisisms.com/ftopic-10663-da ... asc-0.html That pretty much answers your questions. Bye!

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41 years old, dx 1998, current EDSS 6.5
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silverbirch
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PostPosted: Wed Apr 21, 2010 9:28 am 
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Hi Brynn

[Thanks for the feed it made for good reading

Quote:
Nattokinase 100 mg and Venous PF by Jarrow Formulas.


What roles do thes play in MS

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Salvatore24
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PostPosted: Wed Apr 21, 2010 4:24 pm 
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berriesarenice wrote:
My 8-year-old daughter just handed me her observations, written in red crayon:

"It is so much more fun now that mom has had her surgery done, and is back from Poland. She even acts nicer! On our way back from picking up mom and dad from the airport I could tell by her behavior.
She took us to the park, and she never takes us to the park!"

Well, add "liberation procedure makes people nicer" to the list. ;)


:D
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ndwannabe
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PostPosted: Wed Apr 21, 2010 4:34 pm 
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Oh Berries!!! How wonderful it is to read about all of your improvements.

Thank you so very much for updating and posting and details.

Interestingly, my right jugular is also about 20mm (was deemed "normal" by the vascular specialist I went to :roll: )

Gosh, makes me want to speed up my own research and preparation.

Thanks again!
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ozarkcanoer
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PostPosted: Wed Apr 21, 2010 7:32 pm 
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berriesarenice should change her handle to berriesarenicer, LOL.

ozarkcanoer :D
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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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