This Is MS Multiple Sclerosis Community: Knowledge & Support

I had better quick start a thread. I am in Katowice, lying in the hospital bed, hooked up to an IV. Dr. Simka just did our Doppler Ultrasounds, and there are 3-4 patients in front of me for the procedure. Time is running out to record my "before" symptoms, so here goes...

Before:
Fatigue, very bad
Numbness all over
Migraine headaches
Brain fog
Memory loss
Trouble finding words
Balance loss
Clumsiness (drop things)
Blurry vision when tired
Weak legs when tired

The Doppler showed a large right IJV (normal is 7 mm, mine is about 20) due, he thinks, to a malfunctioning valve. He thinks they'll need a big stent (although I'm still hoping for balloon) and my left side had reflux, but that's all I know.

I hope to report back soon

So excited for you!

good luck, Berries!

Liberation. It's a beautiful thing. All the best berriesarenice!

faith, hope & love

_________________
<div>WeWillBeatMS<br /><br /><br />Zamboni for President!</div>

Best of luck... you are in good hands !!

ozarkcanoer

All the best on your liberation!

Oh for pete's sake, I thought someone was actually starting a thread on berries . . . . in Poland!

I blame my MS. . . that's my story and I'm sticking to it!

Berries, thinking of you! Best of luck!!!!
a

Thanks for the chuckle, annad-- needed one after some of the recent news and postings :D
All the best to you berries; will look forward to hearing your "after" report.

Good luck!!! So excited and happy for you!!!!!

_________________
35 (f) dx'd since July 2000 RRMS
Treated in Bulgaria on September 8 2010
80 percent narrowed RJV and 90 percent narrowed Azygos

Thank you, thank you for the well wishes and prayers. Just out w/ a ballooned valve in the right IJV, a ballooned left IJV which was very narrow with three especially tight spots (he recommended a stent, but I opted out--not sure if that was the right call?), and finally a stent in the azygos which was so narrow that the catheter could barely fit through, and was getting no drainage. I got to see that amazing shot of blood suddenly flowing through as soon as the stent was in.
This has been such a gift.

Thank you again for all you kind words.

I guess I'd better rest a bit now.

berries,

So good to hear about your procedure. Get rested and ready to feel much better!

Cat

_________________
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.

OMG Berries, what an experience! Rest and we hope to hear from you soon again.
Feel better soon
a

wonderful news...hope you are feeling better & better & better soon!!

_________________
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition

I wish you a good sleep and a great recovery. I take it they have wireless in the hospital for you to use? Ah, the marvels of today's technology!

_________________
Dx SPMS in 2004.  Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com

berries,

Wow, 3 stents !!! Here's hoping for relief from your symptoms ! Keep us posted.

ozarkcanoer