berries are nice in Poland

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

berries are nice in Poland

Postby berriesarenice » Thu Apr 08, 2010 2:48 am

I had better quick start a thread. I am in Katowice, lying in the hospital bed, hooked up to an IV. Dr. Simka just did our Doppler Ultrasounds, and there are 3-4 patients in front of me for the procedure. Time is running out to record my "before" symptoms, so here goes...

Before:
Fatigue, very bad
Numbness all over
Migraine headaches
Brain fog
Memory loss
Trouble finding words
Balance loss
Clumsiness (drop things)
Blurry vision when tired
Weak legs when tired

The Doppler showed a large right IJV (normal is 7 mm, mine is about 20) due, he thinks, to a malfunctioning valve. He thinks they'll need a big stent (although I'm still hoping for balloon) and my left side had reflux, but that's all I know.

I hope to report back soon :)
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Postby Katie41 » Thu Apr 08, 2010 3:57 am

So excited for you!
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Postby colapesce » Thu Apr 08, 2010 4:02 am

good luck, Berries!
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Postby WeWillBeatMS » Thu Apr 08, 2010 4:08 am

Liberation. It's a beautiful thing. All the best berriesarenice!

faith, hope & love
<div>WeWillBeatMS<br /><br /><br />Zamboni for President!</div>
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Postby ozarkcanoer » Thu Apr 08, 2010 5:05 am

Best of luck... you are in good hands !!

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Postby Enya » Thu Apr 08, 2010 6:03 am

All the best on your liberation!
:D
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Postby annad » Thu Apr 08, 2010 7:59 am

Oh for pete's sake, I thought someone was actually starting a thread on berries . . . . in Poland! :oops:

I blame my MS. . . that's my story and I'm sticking to it! :)

Berries, thinking of you! Best of luck!!!!
a
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Postby prairiegirl » Thu Apr 08, 2010 8:06 am

Thanks for the chuckle, annad-- needed one after some of the recent news and postings :D
All the best to you berries; will look forward to hearing your "after" report.
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Postby Villagemaid » Thu Apr 08, 2010 8:23 am

Good luck!!! So excited and happy for you!!!!!
35 (f) dx'd since July 2000 RRMS
Treated in Bulgaria on September 8 2010
80 percent narrowed RJV and 90 percent narrowed Azygos
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Postby berriesarenice » Thu Apr 08, 2010 8:43 am

Thank you, thank you for the well wishes and prayers. Just out w/ a ballooned valve in the right IJV, a ballooned left IJV which was very narrow with three especially tight spots (he recommended a stent, but I opted out--not sure if that was the right call?), and finally a stent in the azygos which was so narrow that the catheter could barely fit through, and was getting no drainage. I got to see that amazing shot of blood suddenly flowing through as soon as the stent was in.
This has been such a gift.

Thank you again for all you kind words.

I guess I'd better rest a bit now.
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Postby catfreak » Thu Apr 08, 2010 8:53 am

berries,

So good to hear about your procedure. Get rested and ready to feel much better!

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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Postby annad » Thu Apr 08, 2010 9:45 am

OMG Berries, what an experience! Rest and we hope to hear from you soon again.
Feel better soon ;)
a
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Postby Cece » Thu Apr 08, 2010 12:41 pm

wonderful news...hope you are feeling better & better & better soon!!
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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All the best

Postby fiddler » Thu Apr 08, 2010 12:53 pm

I wish you a good sleep and a great recovery. I take it they have wireless in the hospital for you to use? Ah, the marvels of today's technology! :D
Dx SPMS in 2004.  Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com
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Postby ozarkcanoer » Thu Apr 08, 2010 2:35 pm

berries,

Wow, 3 stents !!! Here's hoping for relief from your symptoms ! Keep us posted.

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