My UK Cardio Prof is in!!!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

My UK Cardio Prof is in!!!

Postby LR1234 » Thu Apr 08, 2010 11:09 pm

After a lot of inital convincing and evidence showing, my Cardiovascular Professor is in!! he has Zamboni coming over (after his return from the U.S) to teach the techniques the dept needs to be able to test and treat CCSVI.

He is based in London.

As soon as he is ready to start treating/testing I will let you know who he is.
He may well out himself before then:)

Its gonna happen here now UKers!!!! He is one of the top Professors in the UK!!

I saw him privately but he does see patients on the NHS.

Lets hope he will treat CCSVI on the NHS as well!



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Postby hope410 » Thu Apr 08, 2010 11:23 pm

That's fantastic news! Way to persevere and get the ball rolling in a big way! :D
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Postby costumenastional » Thu Apr 08, 2010 11:32 pm

LR fantastic job!!!
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Postby coin » Fri Apr 09, 2010 12:00 am

Superb, UK rocks....Am also still very excited about a meeting with a IR here in Munich mid of April...we will see how far we get and if we ( or better my husband) will be able to get all necesaary tests done...will also keep everbody updated subject to the agreemnt of the doctor.
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Postby Mutley » Fri Apr 09, 2010 1:39 am

That's great news LR, well done!!
Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5
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Postby adamt » Fri Apr 09, 2010 2:46 am

Great work LR!

I live in London, so this would be great.
But i am due to Poland in May (awaiting confirmation from AMEDS)

Did he say when testing/treatment would commence approximately?
i know there lots to be done to get the ball rolling, but do you have any idea when it could start ?

as if its by the Summer i would prefer to wait a few extra months and have it done here instead of going to Poland
But im guessing it will take a long time to formalise
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Postby LR1234 » Fri Apr 09, 2010 3:07 am

I think like with the Glasgow clinic I am sure the testing will come first and the treating will come later so I would still go to Poland.

I have no idea how long it will take for them to start treating but first they have to train to recognise CCSVI, then test, then treat. (so could still be a while, or they might treat straight away....who knows)
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Postby colapesce » Fri Apr 09, 2010 4:17 am

this is brilliant! Well done LR.
And even if we go abroad in the meantime it's still good to know that there will be help here soon if needed :)
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Postby adamt » Fri Apr 09, 2010 4:30 am

thanks LR.
I agree with colapesce, the impatient ones (like me) can go to poland, and 'hopefully' not have to go backto Poland if their is a restenosis
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Postby ozarkcanoer » Fri Apr 09, 2010 6:00 am

Congratulations, LR1234, your persistence has paid off ! I am eager to hear about future developments in the UK,

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Postby gibbledygook » Fri Apr 09, 2010 9:23 am

Well done, LR!!! Interesting that you eventually had luck with a cardiovascular professor. Professors are the BEST!!! I've had no joy with interventional radiologists...
3 years antibiotics, 06/09 bilateral jug stents at C1, 05/11 ballooning of both jug valves, 07/12 stenting of renal vein, azygos & jug valve ballooning,
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Postby Rokkit » Fri Apr 09, 2010 10:16 am

gibbledygook wrote:Well done, LR!!! Interesting that you eventually had luck with a cardiovascular professor. Professors are the BEST!!! I've had no joy with interventional radiologists...

That just kills me. You'd think the IRs have all the business they want. I think if I were in medical school right now, I would seriously consider IR as a specialty.
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Postby ndwannabe » Fri Apr 09, 2010 10:32 am

Yes! A journey of 1000 miles starts with convincing ONE professor :lol:

Even if each one of us convinces ONE specialist, how many new doctors on board will we have?
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Postby sunlounger » Fri Apr 09, 2010 11:12 am

thanks L what a result :D :D
You might find that you’re not lost
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Postby mangio » Fri Apr 09, 2010 1:16 pm

Great news.
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