This Is MS Multiple Sclerosis Community: Knowledge & Support

After a lot of inital convincing and evidence showing, my Cardiovascular Professor is in!! he has Zamboni coming over (after his return from the U.S) to teach the techniques the dept needs to be able to test and treat CCSVI.

He is based in London.

As soon as he is ready to start treating/testing I will let you know who he is.
He may well out himself before then:)

Its gonna happen here now UKers!!!! He is one of the top Professors in the UK!!

I saw him privately but he does see patients on the NHS.

Lets hope he will treat CCSVI on the NHS as well!



[/i]

That's fantastic news! Way to persevere and get the ball rolling in a big way!

LR fantastic job!!!

Superb, UK rocks....Am also still very excited about a meeting with a IR here in Munich mid of April...we will see how far we get and if we ( or better my husband) will be able to get all necesaary tests done...will also keep everbody updated subject to the agreemnt of the doctor.
COIN

That's great news LR, well done!!

_________________
Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5

Great work LR!

I live in London, so this would be great.
But i am due to Poland in May (awaiting confirmation from AMEDS)

Did he say when testing/treatment would commence approximately?
i know there lots to be done to get the ball rolling, but do you have any idea when it could start ?

as if its by the Summer i would prefer to wait a few extra months and have it done here instead of going to Poland
But im guessing it will take a long time to formalise

I think like with the Glasgow clinic I am sure the testing will come first and the treating will come later so I would still go to Poland.

I have no idea how long it will take for them to start treating but first they have to train to recognise CCSVI, then test, then treat. (so could still be a while, or they might treat straight away....who knows)

this is brilliant! Well done LR.
And even if we go abroad in the meantime it's still good to know that there will be help here soon if needed

thanks LR.
I agree with colapesce, the impatient ones (like me) can go to poland, and 'hopefully' not have to go backto Poland if their is a restenosis

Congratulations, LR1234, your persistence has paid off ! I am eager to hear about future developments in the UK,

ozarkcanoer

Well done, LR!!! Interesting that you eventually had luck with a cardiovascular professor. Professors are the BEST!!! I've had no joy with interventional radiologists...

_________________
3 years antibiotics, 06/09 bilateral jug stents at C1, 05/11 ballooning of both jug valves, 07/12 stenting of renal vein, azygos & jug valve ballooning,

That just kills me. You'd think the IRs have all the business they want. I think if I were in medical school right now, I would seriously consider IR as a specialty.

Yes! A journey of 1000 miles starts with convincing ONE professor

Even if each one of us convinces ONE specialist, how many new doctors on board will we have?

thanks L what a result

_________________
You might find that you’re not lost

Great news.