Whoa??????? Whoa????? Slow down?? How to tell someone in a wheel chair to slow down? How to tell someone with a walker 'slow down'? (Frankly it is cruel and inhuman).
Whoa?? Is he insane? 'Oh yes, so sorry; I see you've been slowed down for twenty years now, but please, slow down will you, get a little more comfortable in your slowed down position in your wheel chair or with your walker..and you know, slow down'. (Sounds like a Kafka short story).
Freedman says. "Why would you fix something that may not have anything to do with the disease?
May not? Can we put a period, Dr Freedman, at the end of 'fix something'?
Short answer: Who cares if it has anything to do with the disease or not. Those of us with MS AND CCSVI are leaving it up to the researchers to make the link (but not totally because there are so many intelligent people on this site, and Doctors like Sclafani recognize this and rather than ask less than intelligent questions, like the one above, is actually getting involved). Maybe if we're lucky we'll all be around to find out in our lifetime if this is the link we wish it to be.
In the meantime, if blood is not properly flowing to my brain I want to be treated for it, regardless of 'it may or may not have anything to do with MS'! If it makes one's pinky toe turn pink instead of blue, if one can pick up a fork for the first time in ten years, if one can breathe better at night etc etc etc etc is this not good enough for WHY??? Do we need to see 'drastic' results to feel we are then worthy of treatment for a hair's breadth of better quality of life? Do we really need to 'know' if this is a 'cure' or not to feel the smallest shift in our quality of life? Am I not capable of saying MS AND CCSVI, together, or separate, or whatever? I have MS and I don't even call it MS! Because no one knows what the hell MS is anyway. BUT we DO know what CCSVI is! It's a sure thing that can be seen and identified, and 'pin' pointed.
How long are we going to go around the maypole about MS and its mysterious nature, how long are going to go around the maypole about needing proof? Can we not accept the fact that we are at the stage where we are seeing that there is a disease called MS AND a condition called CCSVI AND that they are somehow related. One has never had a 'cure' the other CAN be treated, THAT is a fact. They are not the same, but they are not mutually exclusive categories either.
'Where will I go when I get off the bus?'