Crocky's trip to Poland
Crocky's trip to Poland
I am sitting in the hotel waiting to go to the airport, having been liberated 2 days ago.
It has all been a fantastic experience - very well organised, wonderful people and of course the procedure.
Its only been 2 days, and I'm not saying that an instant miracle has been performed, however - little by little things are changing.
I was in a wheelchair most of the time when I arrived due mainly to crippling fatigue and bad balance. I can't say all that has totally disappeared, but the improvement is great - I can get down to breakfast in the hotel without the chair - ok I still have fatigue, but compared to the levels it was at just 3 days ago, there is a marked improvement.
I totally believe in ccsvi - I had both jugulars with blockages, and now have enormous hope for the future. Of course I hope that it will become mainstream an all msers can have access to this amazing treatment.
It only happened to me thanks to this site and the people on it, so please, if anyone has any questions, I'd be glad to try and answer them.
It has all been a fantastic experience - very well organised, wonderful people and of course the procedure.
Its only been 2 days, and I'm not saying that an instant miracle has been performed, however - little by little things are changing.
I was in a wheelchair most of the time when I arrived due mainly to crippling fatigue and bad balance. I can't say all that has totally disappeared, but the improvement is great - I can get down to breakfast in the hotel without the chair - ok I still have fatigue, but compared to the levels it was at just 3 days ago, there is a marked improvement.
I totally believe in ccsvi - I had both jugulars with blockages, and now have enormous hope for the future. Of course I hope that it will become mainstream an all msers can have access to this amazing treatment.
It only happened to me thanks to this site and the people on it, so please, if anyone has any questions, I'd be glad to try and answer them.
- sunlounger
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- mags4short
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Hi Susanne,
That’s great news and I’m really happy for you. It feels a bit weird being happy about blockages in someones neck, but it's so exciting to finally pinpoint something that’s tangible and treatable isn't it.
Hope you have a safe journey back and looking forward to hearing all about it.
All the best x
That’s great news and I’m really happy for you. It feels a bit weird being happy about blockages in someones neck, but it's so exciting to finally pinpoint something that’s tangible and treatable isn't it.
Hope you have a safe journey back and looking forward to hearing all about it.
All the best x
Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5
Thanks to all who have replied so far - Mutley, I was just thinking about you and wondering how you were getting on.?
Sunlounger I had a stent in my left jugular.
Today I'm feeling a bit tired, however much better than before my procedure.
I no longer have perma-flu feeling, which is a great relief - Of course hoping for more improvements - walking is better, but want it to be even better - human nature I suppose!
In general, I am happy with my progress, but am waiting for bigger and better things.
To any of you waiting to go to Poland, you are in for a great experience. Wonderful people, everything very well organised, I couldn't praise them highly enough!
I will keep everyone updated on any progress, and fill in the tracking thread when a bit more time has elapsed and I feel more able to comment accurately.
Sunlounger I had a stent in my left jugular.
Today I'm feeling a bit tired, however much better than before my procedure.
I no longer have perma-flu feeling, which is a great relief - Of course hoping for more improvements - walking is better, but want it to be even better - human nature I suppose!
In general, I am happy with my progress, but am waiting for bigger and better things.
To any of you waiting to go to Poland, you are in for a great experience. Wonderful people, everything very well organised, I couldn't praise them highly enough!
I will keep everyone updated on any progress, and fill in the tracking thread when a bit more time has elapsed and I feel more able to comment accurately.