This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Sat May 25, 2013 6:08 am


All times are UTC - 8 hours [ DST ]




Post new topic Reply to topic  [ 12 posts ] 
Author Message
 Post subject: Crocky's trip to Poland
PostPosted: Sun Apr 11, 2010 3:36 am 
Offline
Family Member
User avatar

Joined: Wed Nov 25, 2009 4:00 pm
Posts: 69
I am sitting in the hotel waiting to go to the airport, having been liberated 2 days ago.
It has all been a fantastic experience - very well organised, wonderful people and of course the procedure.
Its only been 2 days, and I'm not saying that an instant miracle has been performed, however - little by little things are changing.
I was in a wheelchair most of the time when I arrived due mainly to crippling fatigue and bad balance. I can't say all that has totally disappeared, but the improvement is great - I can get down to breakfast in the hotel without the chair - ok I still have fatigue, but compared to the levels it was at just 3 days ago, there is a marked improvement.
I totally believe in ccsvi - I had both jugulars with blockages, and now have enormous hope for the future. Of course I hope that it will become mainstream an all msers can have access to this amazing treatment.
It only happened to me thanks to this site and the people on it, so please, if anyone has any questions, I'd be glad to try and answer them.


Top
 Profile  
 
 Post subject:
PostPosted: Sun Apr 11, 2010 3:39 am 
Offline
Family Elder
User avatar

Joined: Tue Dec 01, 2009 4:00 pm
Posts: 979
Location: Ucluluet, BC
Thanks for the smile.

Happy New Life!

_________________
My name is not really Johnson. MSed up since 1993


Top
 Profile  
 
 Post subject:
PostPosted: Sun Apr 11, 2010 3:41 am 
Offline
Family Member
User avatar

Joined: Mon Sep 28, 2009 3:00 pm
Posts: 93
Location: The Netherlands
Congratulations Crocky!
So good to hear that everything went well and that already slight improvements are noticable.
Please take care and be well!

Inge


Top
 Profile  
 
 Post subject:
PostPosted: Sun Apr 11, 2010 4:03 am 
Offline
Family Elder
User avatar

Joined: Wed Nov 04, 2009 4:00 pm
Posts: 110
Hi Crocky

Thanks for update,
Great to hear your feeling some improvements :D :D :D

Did they just balloon or use stents ?

Best wishes :D

_________________
You might find that you’re not lost


Top
 Profile  
 
 Post subject:
PostPosted: Sun Apr 11, 2010 4:13 am 
Offline
Family Elder
User avatar

Joined: Thu Jan 07, 2010 4:00 pm
Posts: 124
Location: UK
Congratulations!!! I hope that you see many more improvements as the days/months pass. Please keep us informed.

Mags AKA Margaret xx


Top
 Profile  
 
 Post subject:
PostPosted: Sun Apr 11, 2010 8:57 am 
Offline
Family Elder
User avatar

Joined: Sat Dec 05, 2009 4:00 pm
Posts: 179
Location: Southern California
Crocky,

So wonderful that you are experiencing improvements. Little by little, "step" by "step", ups and downs. unexpected fun surprises.

Katie41


Top
 Profile  
 
 Post subject:
PostPosted: Sun Apr 11, 2010 9:21 am 
Offline
Family Elder
User avatar

Joined: Sat Nov 21, 2009 4:00 pm
Posts: 207
Location: Ontario, Canada
Congratulations, Crocky!
Baby steps, baby steps. . .
You're future looks great!
best wishes!
a


Top
 Profile  
 
 Post subject:
PostPosted: Sun Apr 11, 2010 9:43 am 
Offline
Family Elder
User avatar

Joined: Sat Dec 12, 2009 4:00 pm
Posts: 332
Location: Rosetown, Canada
Congratulations Crocky,

I will be joining you with being liberated soon. Just 2 weeks and I will post my experiences on here.

Val


Top
 Profile  
 
 Post subject:
PostPosted: Mon Apr 12, 2010 4:00 am 
Offline
Family Elder
User avatar

Joined: Thu Nov 12, 2009 4:00 pm
Posts: 207
Location: England
Hi Susanne,

That’s great news and I’m really happy for you. It feels a bit weird being happy about blockages in someones neck, but it's so exciting to finally pinpoint something that’s tangible and treatable isn't it.

Hope you have a safe journey back and looking forward to hearing all about it.

All the best x

_________________
Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5


Top
 Profile  
 
 Post subject:
PostPosted: Mon Apr 12, 2010 7:34 am 
Offline
Family Member
User avatar

Joined: Wed Nov 25, 2009 4:00 pm
Posts: 69
Thanks to all who have replied so far - Mutley, I was just thinking about you and wondering how you were getting on.?
Sunlounger I had a stent in my left jugular.
Today I'm feeling a bit tired, however much better than before my procedure.
I no longer have perma-flu feeling, which is a great relief - Of course hoping for more improvements - walking is better, but want it to be even better - human nature I suppose!
In general, I am happy with my progress, but am waiting for bigger and better things.
To any of you waiting to go to Poland, you are in for a great experience. Wonderful people, everything very well organised, I couldn't praise them highly enough!
I will keep everyone updated on any progress, and fill in the tracking thread when a bit more time has elapsed and I feel more able to comment accurately.


Top
 Profile  
 
 Post subject:
PostPosted: Tue Apr 13, 2010 6:55 am 
Offline
Family Member
User avatar

Joined: Tue Dec 15, 2009 4:00 pm
Posts: 73
Location: Knutsford England
You made me Cry a little bit!


Top
 Profile  
 
 Post subject:
PostPosted: Tue Apr 13, 2010 12:10 pm 
Offline
Family Elder
User avatar

Joined: Wed Oct 14, 2009 3:00 pm
Posts: 221
Location: WA
Wonderful news! I am finding myself in a wheelchair more often as I progress downwards so you just made my day. January can't come soon enough!

_________________
Diagnosed 1994, Self EDSS is 6.5


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 12 posts ] 

All times are UTC - 8 hours [ DST ]


Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. Don't know what to do now about my trip to Poland!!

[ Go to pageGo to page: 1, 2 ]

ClaireParry

21

2410

Sat Feb 06, 2010 4:08 am

sunlounger View the latest post

There are no new unread posts for this topic. My second trip to Poland

[ Go to pageGo to page: 1, 2, 3, 4 ]

Brynn

48

7496

Sun Jul 25, 2010 5:27 pm

Katie41 View the latest post

There are no new unread posts for this topic. Brynn's Trip To Poland! I am Here!

[ Go to pageGo to page: 1, 2, 3, 4 ]

Brynn

52

8333

Sun Mar 07, 2010 1:49 pm

acol View the latest post

There are no new unread posts for this topic. Katowice, Poland pre-trip checklist

JoyIsMyStrength

2

1046

Fri Jun 18, 2010 9:15 am

jozee View the latest post

There are no new unread posts for this topic. What a wonderful trip!

[ Go to pageGo to page: 1, 2, 3, 4, 5 ]

Jamie

66

6753

Tue Oct 06, 2009 6:55 pm

Jamie View the latest post

 


Who is online

Users browsing this forum: No registered users


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to: