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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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SaintLouis
PostPosted: Sun Apr 11, 2010 7:08 pm 
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Wondering of anyone has gotten referred to have the scan by a doc other than a neuro and GU has accepted it? What if a patient's neuro isn't open to it like a GP might be?
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Liber8
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PostPosted: Mon Apr 12, 2010 6:52 am 
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Location: 10,000 Lakes
I called Georgetown and was told that any GP could order this procedure. I have not decided to try and go there because I got a referral from my GP to go to a local IR. I doubt he has a clue what to look for but it's a start. You can now call Boston Medical to look into testing. The info is in one of the Topics in here.
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Rosegirl
 Post subject: Dopper Ultrasound scans
PostPosted: Mon Apr 12, 2010 4:06 pm 
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As of last week, Georgetown was only booked to do scans through April. They were surprised that so few people had called.
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mrsilkykat
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PostPosted: Mon Apr 12, 2010 4:13 pm 
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Is Georgetown accepting patients for TESTING AND TREATMENT? Or just testing?

I called last month but have not heard from them.

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SaintLouis
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PostPosted: Mon Apr 12, 2010 6:57 pm 
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To my knowledge they are only testing now, but maybe gearing up for a study?

I think they lose people with the bolded "referral from neuro required" verbiage on their website, they should change "neuro" to "physician."
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Rosegirl
 Post subject: doctor referral
PostPosted: Tue Apr 13, 2010 4:23 am 
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The University of Buffalo is doing scans without a Rx from a doctor. Maybe that's closer for some folks than Georgetown in DC.
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Liber8
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PostPosted: Tue Apr 13, 2010 12:09 pm 
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Even though Georgetown isn't as thorough as BNAC or False Creek it is only $400.00. If I lived nearby I would give it a shot for $400.

As far as I know, only treating. But if you go to their site it says "this may or maynot lead to treatment..." They leave it pretty open.
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mrsilkykat
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PostPosted: Wed Apr 14, 2010 4:19 pm 
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Liber8

Can you post the site that explains their procedure, please.

Thanks.

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mmcc
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PostPosted: Mon Apr 19, 2010 6:00 pm 
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The ultrasound tech at Georgetown received specific training in doing the ultrasound and looking for the CCSVI related issues. I would go to someone like her rather than just any ultrasound tech.
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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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