I have not experienced any improvements in my symptoms to date (though it's only 14 days) and my hands and feet are still cold. I was told in Katowice that it can take up to 3 months to experience any changes. I have always rigourously monitered my progress and I am confident that if anything happens I will know.
I had really hoped for some sort of indication of an improvement such as the warm hands and feet that so many people report post-procedure. I guess it's just a waiting game now possibly followed by some tough decisions regarding another trip to Poland for more tests and maybe stents.
I too have PPMS. It took a while after the procedure to notice any changes, but there were a few............ a little more energy, less heat intolerance, my 'bad' hand started to straighten out.
I re-stenosed 6 weeks after the procedure and have had a repeat venoplasty (at 10 wks). Within 24hrs my hand started to re-open again.
I have not had any change to my cold (frozen) foot at any time, so don't rely on that as an indicator.
Give yourself that 3 months as the crap has to be drained from your brain and then repairs can begin.
Good luck Jennifer
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