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PostPosted: Mon Apr 12, 2010 6:34 am 
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Location: The Netherlands
Hi all,

My fysiotherapist is advising everyone who is about to undergo the Liberation Treatment, to ask their own fysio to do a so called 0-measurement.
Then, when you had the liberation treatment, it is easy to do a monthly follow up on the same tests. With this, an objective scale is used to establish improvements after the procedure.

I am "scored"completely, and ready set go for Poland!

This is the tests she uses, and which every fysiotherapist worldwide will know what to do with.

These are the tests:

- Berg Balance Scale
- 2 minute timed walking test (depending from the walking ability from the patient you could also prefer the 6 minute timed walking test)
- Nothingham extended ADL
- 10 metres timed walking test
- Functional ambulation categories
- Timed –up and go test
- Action Research arm test
- Sit to stand
- Motricity index or hand held dynamometry

This is my tip of the day.

Regards,
Inge


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PostPosted: Mon Apr 12, 2010 6:46 am 
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I think that would be helpful in monitoring progress. But I also think that a basic neuro exam would be even more helpful because it's more objective (based on reflexes). Other objective measures before and after would be even better, but it's doubtful we'll see those outside of a study unless someone coincidentally is able to have MRI, evoked potentials, etc. before the procedure and then afterwards.

But the more objective comparisons we're able to make before and after, the better.


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 Post subject: Benchmarks
PostPosted: Mon Apr 12, 2010 6:54 am 
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Location: Fredericton, Canada
Hi Inge,
I've had the physio do tests for just that reason... I've also had tests to benchmark cognitive ability and an eye examination... the professionals who had me do these tests are interested in seeing me after I return from Poland (though my cognition and eyesight tests came within the normal range for a guy my age... if I remember right. Hehehe).
...Ted

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Dx SPMS in 2004.  Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com


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PostPosted: Mon Apr 12, 2010 6:58 am 
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True, but our line of thinking was as follows:

a lot of MS patients do not see their neuro regularly, so a 0 measurement would be difficult to schedule with a neuro, let alone the monthly follow ups.

Most pwMS have some sort of fysiotherapy in order to cope with their fysical problems, so this measurement is at closehand.

Most liberated pwMS report on "feelings" that spasms have declined, walking is slightly better etc. Those are all subjective measurements, this gives an objective measure.

My fysio is specialised in neurological disabilities, so this might well be a specific list for these disorders.


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PostPosted: Mon Apr 12, 2010 7:07 am 
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A neuro exam doesn't need to be performed by a neurologist. Any doctor is capable of doing it.


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PostPosted: Mon Apr 12, 2010 7:17 am 
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See, I never stop learning here!
I did not know that.
Thanks.


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