Mark, i heard you the first time friend.
I really think that at this point noone really knows what to expect from the liberation treatment whatsoever. Having that said, we all know what to expect from multiple sclerosis and the current therapies.
I am fully convinced that if one indeed has been shown to have SEVERE stenosis across the main veins that drain the CNS, he/she should get treatment (angioplasty) in order to correct the blood flaw regardless of MS.
As too good to be true CCSVI may seem, there is some logic in it. And it beats immunosupresion/modulation which admitedly doesnt work too good and has potential devastating side effects.
My doppler showed serious flow issues in both my jugs. I will travel to Bulgaria soon and if Professor Grozdinski tells me that there is a problem (or more) that require stent placement i will surely go for it. I am certain that a doctor of that magnitude knows veins better than we do. To be honest, i could have angioplasty in Greece but i have reasons to believe that going to Bulgaria is better. I should also point out that out of hundreds of stent that have already been placed, only ONE made serious damage so far.
I really cant deny a stent or two because Zamboni says WHAT HE HAS TO SAY. Both he and Zivadinov are playing the PR game the best way they can. There is a war going on.
I have had a huge dose of campath 1 H upon diagnosis about one and a half years ago but still i am deteriorating. I wont do that to my body ever again. Neither i will take shots of some protein that noone knows if and how it helps. I have not had any more relapses since chemo (thank God) but i feel like shit most of the time. The hypothesis is that since my t cells are gone for good relapses cannot take place. But axons are still dying for SOME reason...
So, i HAVE to wonder: if Zamboni is right it well explains why my brain is dying and i have to do something about that.
Just a silly question: IF CCSVI IS REALLY A PROBLEM SHOULD SOMEONE WAIT UNTIL THIS IS PROVEN??? IF CCSVI IS REALLY A PROBLEM WHAT CAN ANY TYPE OF DRUG CAN REALLY OFFER?
AND MOST IMPORTANT: IS IT A FACT THAT 90% OF MS PATIENTS GO DOWN THE SLOPE WHATEVER THEY DO OR NOT?
What do i really know? Nothing. Who can i trust?
Patients that get better after liberation. It is a risk that some of us are wiling to take while others are not. In any case, it all comes down to this:
it will take years for the liberation treatment to become mainstream and i really dont think that time is on my side. For any of us that feels different i can only say that i am happy for him/her.