Jacek Kosteki

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby drbart » Wed Jul 21, 2010 5:36 pm

Bizzy wrote:P.S. Yvon is having Tyskie withdrawals!


Easily dealt with at BevMo (at least here in Calif). Very pleasantly surprised to discover they carry Tyskie brewskies.
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Postby BrendaReqier » Wed Jul 21, 2010 6:38 pm

OMG Sue, Guy actually found a bottle in the cooler in Fort Mac Alberta LOL I'm sure it's not as fresh and good as the HUGE glasses we enjoyed in Poland
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hello from sindy

Postby 1_sindy » Thu Jul 22, 2010 6:47 pm

Hi everyone well to day was a great day xoox
...Mr G went for a scan color doppler and they showed him that his stent is in place and working well,and that bottom blockage is still open and working well.
They did tell him the top of the sent looks a bit closed but not very much and that every thing is pumping well.

The women that did the test was very excited for him and asked him a tone of questions and did tell him to ask the DR if they needed any more scans or how they want it done and they would love to do it for them, she was excited because his was the first they did that had been treated.She was very good took her time explained things to him got the blood flow volume to seen to our DR who will now sent to DR in poland.

Mr G is doing better all the time he did notice that the heat didn't bother him to day ,usaly any thing above freezing did........lol he has tones more energy, and everyday he smiles more,I am How ever having a problem with his talking(he talkes tones more now that was my job before)
Hope all of you are well and having a great day .......miss you all tones and wishing you a sunny week end,
im going camping.xoxo by for now
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Postby MSwarrior » Sun Jul 25, 2010 4:25 am

Hello Everyone,
I don't know whether you remember us from Hungary. We have been in Tychy from 21st of June till the 28th. I want to tell you a great news. Yesterday on one of the Hungarian TV channels there was a report that the first CCSVI operation was conducted by a Hungarian intervention-radiologist. The Doctor separated CCSVI and MS, and said that he is treating the venous insufficiency. Because according to his opinion the venous insufficiency is a condition which must be treated, and if they achieve a better quality of life for the patients than it is a benefit for the patients.
So, something has started here also Yesterday. Now the neurologists will have a hard time here to explain why not to make the procedures. Why should the patients wait for more results. This Doctor started to make the operations, and later they can argue about the results, but at that time they will not have to much to argue about. Most of the patients will experience a better uality of life, and that is going to be enough. Yesterday nobody told in the program, that this is cure for the MS. All they said is that they want to help people with MS.
I had to write this to all of you, because we are so HAPPY we cannot tell you
Peter (MSwarrior) :D
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Postby ErikaSlovakia » Sun Jul 25, 2010 4:48 am

MSwarrior wrote:Hello Everyone,
I don't know whether you remember us from Hungary. We have been in Tychy from 21st of June till the 28th. I want to tell you a great news. Yesterday on one of the Hungarian TV channels there was a report that the first CCSVI operation was conducted by a Hungarian intervention-radiologist. The Doctor separated CCSVI and MS, and said that he is treating the venous insufficiency. Because according to his opinion the venous insufficiency is a condition which must be treated, and if they achieve a better quality of life for the patients than it is a benefit for the patients.
So, something has started here also Yesterday. Now the neurologists will have a hard time here to explain why not to make the procedures. Why should the patients wait for more results. This Doctor started to make the operations, and later they can argue about the results, but at that time they will not have to much to argue about. Most of the patients will experience a better uality of life, and that is going to be enough. Yesterday nobody told in the program, that this is cure for the MS. All they said is that they want to help people with MS.
I had to write this to all of you, because we are so HAPPY we cannot tell you
Peter (MSwarrior) :D

Hello Hungary!
Nagyon jó! - Very well!
This is very good news - thank you!
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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Postby DBird » Sun Jul 25, 2010 7:52 pm

Peter, that is wonderful news. Now maybe you can be on the list at home. How's Monica? well I hope. Has the weather cooled down already?
Take care,
Steve
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Postby Malinda » Sun Jul 25, 2010 9:33 pm

That's excellent news Peter - now's your chance. I hope Monica is doing well. All the best to Monica and yourself. Cheers, Malinda
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Even more great news!

Postby MSwarrior » Mon Jul 26, 2010 6:45 am

Guys,
There are even more great news I have to share with you. By this morning more and more vascular surgeons and radiologists are expressing their willingness to execute the Liberation Treatment.
The war is over in Hungary and the neurologists have been defeated. My neurologist called Monika today asking us when we can to in the hospital for a checkup. How about that?
Love
Peter
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Postby Katie41 » Mon Jul 26, 2010 11:42 am

Fantastic! Country by country they come on board. Great job fighting for it! Now, to reap the rewards :)
Last edited by Katie41 on Mon Jul 26, 2010 5:19 pm, edited 1 time in total.
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Postby BrendaReqier » Mon Jul 26, 2010 1:32 pm

That is fantastic news Peter!
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hello from sindy

Postby 1_sindy » Tue Jul 27, 2010 8:09 pm

MSwarrior
Great news Peter maybe one day Canada will get there crap together.
WE are very excited for you and we do wish you a speedy treatment.
Monica how are you doing now hope things are getting better for you.
Please keep posting it is so nice to hear how eveyone is doing.
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Postby Katarzyna » Thu Jul 29, 2010 2:46 am

Hi to All,

I have heard many different opinion from you, how long is necessary to take Plavix, Aspirin, Clexane and doses.
I was asked dr Kuczmik yesterday. For sure it's doesn't matter was there only angio, or angio + stent.
You always should take:
- Plavix (4-6 weeks)
- Aspirin for the rest of life
- Clexane (2-3 month) - dose 0,6

For sure ypu must drink more than 2,5 litre per day (no wine) :)

Kisses and Hugs
Kate
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Postby Algis » Thu Jul 29, 2010 3:01 am

For sure ypu must drink more than 2,5 litre per day (no wine)


I'm sure out of the equation here 8O 2.5 litre a day :? No alcohol? Let me die :P
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Jacek Kosteki

Postby grammastang » Thu Jul 29, 2010 7:36 am

Hi Kate,
Have things changed since I had the procedure in May? I was instructed to take the 14 injections, Plavix for 1 year and Aspirin for life. What is Clexane?
How are all you wonderful people in Poland?
Take care.

Hugs
Lynda and Jan B
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Postby DBird » Thu Jul 29, 2010 5:46 pm

Kate, not sure why the change. The paper with the prescriptions noted on it from the Kliniki says to take-
Plavix 75 mg once per day one month,
Aspirin 150mg once a day per one month,
Clexane 0.06 s.c. once a day for 14 days.
Can this be clarified?
Sorry to make more work for you,
Steve
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