sbr487 wrote:I am very very surprised by this. So is Dr. Z saying that Kuwaiti initiative is not correct since they plan to treat patients who have this defect and dont have any intention to do "study"?
Lyon wrote:article wrote:Dr. Paolo Zamboni, who has theorized that multiple sclerosis may be associated with vascular problems, urged MS patients to follow his advice and not that of "blogger patients."
I've been tarred and feathered for less than that but, hey, no, it's cool
scorpion wrote:Zamboni is saying that CCSVI is unproven and surgery using stents may in the long run do more harm than good. He is also saying that if people choose to receive stent treatment to open their "blockage" they should do it in a safe controlled situation where their progress is closely monitored by qualified caring doctors. Most importantly Zamboni urged people to follow his advice and NOT the advice of the "blogger patients" that have popped up all over the internet. That is what he said.
Asher wrote:"We need baby steps,"
I’m 47 and turning old in an alarming pace. Steps, what steps?
"People might not only get hurt, but…”
I already am hurt; everything I ever hoped for, dreamt of, worked hard for is fading away.
One month in our lives equivalents 5 in a ‘normal’ life. I’m willing to take the risk. People all around us engage in risky behavior, is that a reason to hold a press conference to advise against it?
And yes, they are playing the PR game.
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