This Is MS Multiple Sclerosis Community: Knowledge & Support

I hope the term 'fence sitter' has the same kind of meaning in the rest of the world as Ireland - it means a procrastinator/wary person.

I'm finally going for a Doppler, next Wednesday in Dublin, Ireland. The sonographer has recently trained with Dr. Simka. There is no-one that I know of in Ireland that is yet doing MRV or any angioplasty for CCSVI but at least I'll know if it's present or not, and then I can weigh up my options.

Wish me luck Thisisms'ers! I was, I think, about the 5th or 6th person who replied to the very first CCSVI thread on here, and I've been watching and waiting all this time. I have to admit I feel cautious excitement.

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Concussus Resurgo
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RR-MS dx 1998 and Coeliac dx 2003
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Copaxone, Cymbalta. EPO, Fish Oils, Vitamin D3 2000 IU daily, Cal/Mag/Zinc, Multivitamin/mineral, Co-Enzyme Q10, Probiotics, Milk Thistle.

Good luck, Wonderfulworld!
Erika

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Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse

Hi Wonderfulworld,

Well done on finding someone in Ireland that will do an ultrasound. Is s/he open to testing others? I am on the list for dr Simka in Poland but would be interested in getting tested here in Ireland if it was available first.

Thanks
Maureen

May I wish you the best of luck!! I hope all goes to plan.

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Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5

Good luck, WW
Yes, fence sitter means the same thing in California...and there's nothing wrong with being cautious! We've been yacking about this together for awhile now. Hope you get some answers-
cheer

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

I always understood fence-sitting to mean not committing one way or the other. In any case, find someone good to do the test.

.

Lots of light and luck WW--keep us posted--
(there are quite a few of us fence sitters here on TIMS )

You should not wish diseases on anybody but I hope they will find CCSVI in you
Nunzio

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Everybody here brings happiness, somebody by coming,others by leaving.  PPMS since 2000<br />

Erika, Mutley, Shye & Cheer thanks!

Maureen yes they are open to testing others, I've pm'ed you the details.

I kind-of know what you mean Lyon, I feel similarly. I suppose if I have a result of some kind it's better than not knowing at all. However, I am reserving judgement on it all for the moment, watching carefully!

Nunzio, I am hoping they find obvious CCSVI too. At least it gives me something to potentially be able to fix.

Will keep you all updated.

_________________
~~~~~~~~~~~~~~~
Concussus Resurgo
~~~~~~~~~~~~~~~
RR-MS dx 1998 and Coeliac dx 2003
~~~~~~~~~~~~~~~
Copaxone, Cymbalta. EPO, Fish Oils, Vitamin D3 2000 IU daily, Cal/Mag/Zinc, Multivitamin/mineral, Co-Enzyme Q10, Probiotics, Milk Thistle.

Hi,
I'm also from ireland and i am booked to go to bularia on the 9th of june. Where in dublin is the doppler being done and is there any contact details?

Hi Johnjoe I've sent you a PM with the details.

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~~~~~~~~~~~~~~~
Concussus Resurgo
~~~~~~~~~~~~~~~
RR-MS dx 1998 and Coeliac dx 2003
~~~~~~~~~~~~~~~
Copaxone, Cymbalta. EPO, Fish Oils, Vitamin D3 2000 IU daily, Cal/Mag/Zinc, Multivitamin/mineral, Co-Enzyme Q10, Probiotics, Milk Thistle.

Hi WW!!

Down here in Mississippi we would say you were straddling the fence...

Glad to hear you have decided to have the doppler!

Cat

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Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.