This fence-sitter is finally going for a doppler!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

This fence-sitter is finally going for a doppler!

Postby Wonderfulworld » Thu Apr 15, 2010 8:52 am

I hope the term 'fence sitter' has the same kind of meaning in the rest of the world as Ireland - it means a procrastinator/wary person.:lol:

I'm finally going for a Doppler, next Wednesday in Dublin, Ireland. The sonographer has recently trained with Dr. Simka. There is no-one that I know of in Ireland that is yet doing MRV or any angioplasty for CCSVI but at least I'll know if it's present or not, and then I can weigh up my options.

Wish me luck Thisisms'ers! I was, I think, about the 5th or 6th person who replied to the very first CCSVI thread on here, and I've been watching and waiting all this time. I have to admit I feel cautious excitement.
~~~~~~~~~~~~~~~
Concussus Resurgo
~~~~~~~~~~~~~~~
RR-MS dx 1998 and Coeliac dx 2003
~~~~~~~~~~~~~~~
Copaxone, Cymbalta. EPO, Fish Oils, Vitamin D3 2000 IU daily, Cal/Mag/Zinc, Multivitamin/mineral, Co-Enzyme Q10, Probiotics, Milk Thistle.
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Postby ErikaSlovakia » Thu Apr 15, 2010 11:11 am

Good luck, Wonderfulworld!
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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testing in Dublin

Postby irishmum » Thu Apr 15, 2010 12:48 pm

Hi Wonderfulworld,

Well done on finding someone in Ireland that will do an ultrasound. Is s/he open to testing others? I am on the list for dr Simka in Poland but would be interested in getting tested here in Ireland if it was available first.

Thanks
Maureen
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Postby Mutley » Thu Apr 15, 2010 12:53 pm

May I wish you the best of luck!! I hope all goes to plan.
Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5
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Postby cheerleader » Thu Apr 15, 2010 1:01 pm

Good luck, WW :)
Yes, fence sitter means the same thing in California...and there's nothing wrong with being cautious! We've been yacking about this together for awhile now. Hope you get some answers-
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby whyRwehere » Thu Apr 15, 2010 1:08 pm

I always understood fence-sitting to mean not committing one way or the other. In any case, find someone good to do the test.
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Re: This fence-sitter is finally going for a doppler!

Postby Lyon » Thu Apr 15, 2010 1:18 pm

.
Last edited by Lyon on Mon Nov 21, 2011 5:34 pm, edited 1 time in total.
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Postby shye » Thu Apr 15, 2010 1:33 pm

Lots of light and luck WW--keep us posted--
(there are quite a few of us fence sitters here on TIMS :roll: )
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Postby Nunzio » Thu Apr 15, 2010 2:11 pm

You should not wish diseases on anybody but I hope they will find CCSVI in you
Nunzio
Everybody here brings happiness, somebody by coming,others by leaving.  PPMS since 2000<br />
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Postby Wonderfulworld » Fri Apr 16, 2010 2:02 am

Erika, Mutley, Shye & Cheer thanks!

Maureen yes they are open to testing others, I've pm'ed you the details.

I kind-of know what you mean Lyon, I feel similarly. I suppose if I have a result of some kind it's better than not knowing at all. However, I am reserving judgement on it all for the moment, watching carefully!

Nunzio, I am hoping they find obvious CCSVI too. At least it gives me something to potentially be able to fix.

Will keep you all updated. :wink:
~~~~~~~~~~~~~~~
Concussus Resurgo
~~~~~~~~~~~~~~~
RR-MS dx 1998 and Coeliac dx 2003
~~~~~~~~~~~~~~~
Copaxone, Cymbalta. EPO, Fish Oils, Vitamin D3 2000 IU daily, Cal/Mag/Zinc, Multivitamin/mineral, Co-Enzyme Q10, Probiotics, Milk Thistle.
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Re: This fence-sitter is finally going for a doppler!

Postby johnjoe » Fri Apr 16, 2010 3:49 am

Hi,
I'm also from ireland and i am booked to go to bularia on the 9th of june. Where in dublin is the doppler being done and is there any contact details?
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Postby Wonderfulworld » Fri Apr 16, 2010 2:33 pm

Hi Johnjoe I've sent you a PM with the details.
~~~~~~~~~~~~~~~
Concussus Resurgo
~~~~~~~~~~~~~~~
RR-MS dx 1998 and Coeliac dx 2003
~~~~~~~~~~~~~~~
Copaxone, Cymbalta. EPO, Fish Oils, Vitamin D3 2000 IU daily, Cal/Mag/Zinc, Multivitamin/mineral, Co-Enzyme Q10, Probiotics, Milk Thistle.
Wonderfulworld
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Joined: Sun Aug 27, 2006 3:00 pm
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Postby catfreak » Sat Apr 17, 2010 6:14 pm

Hi WW!!

Down here in Mississippi we would say you were straddling the fence...

Glad to hear you have decided to have the doppler!

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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