NotSoSick wrote:I know this doc is blasting Zamboni, but his "opening discussion" has a lot of misrepresentation/false info, can we comment on this?
1. He says PP didn't benefit from the treatment: I assume he means because there wasn't some kind of sudden halting of all symptoms in all cases. I was under the impression that PP DID benefit, even if that just means that some people only feel more "energetic."
2. He says SP didn't benefit from the treatment: see above.
3. He says people in the study "fell back to baseline". I guess he means restenosis, since I don't know where this statement is coming from. They did NOT fall back to baseline that I am aware of.
4. MOST IMPORTANTLY: He says there was no impact on relapse rate. Where on earth is he getting this? I was under the impression that it DID effect relapse rate, AND MRI.
Is this just a neurologist getting onto a show and lying through his teeth or what??? I know he is spinning, but sheesh!
BELOU wrote:I guess I'm giving up watching and listening all interviews with neuros. Honestly, I can't take no more and I need a break. I know nothing in medecine but I'm able to recognize people with big EGOs and all the people (neuros) that I see these days have quite a big one.
I have been working in R&D for the last 12 years and I can tell you that if people in my R&D team would have had such big egos, We would not have been able to achieve anything. I remember something I've learned from an old engineer, "Build from the ideas of others, that's the key parameter to solve a problem. I guess Neuro researchers should be aware of that, no?
Thanks everyone here for not giving up talking about CCSVI and bringing the facts.
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