Yes. I become more angry and upset with this 'bump in the road?' everytime I think about it.
I believe there are very many MSers who only get their info from their Neurologists, as I observed at the meeting. Those who had not heard of it still had no curiosity about CCSVI and were more interested in the computer games the MD speaking was recommending.
And of course because he had discounted me, I meant nothing.
That is an educational issue that I am not sure how to get to.
When you believe your Neuro is God and the MS Society publications are what educate you, it is going to be difficult.
So many MSers are pretty isolated physically and or mentally from alot of good info.
It broke my heart to look into their blank stares when I wanted to see that lightbulb go off!!!!
My friends and family have become HUGE CCSVI proponents because they see me and they can reach ALOT of people. Also, they are shocked and insulted to learn of the problems with screening, procedure availabilty and the almighty mindset. They really are shocked much more than I am and they are ready to speak up.
So we need to give them information to have at their ready also.
Sorry for the rant.....I was at dinner last night with my office staff I worked wtih for years and it was a roaring, great time. They were in tears, also. Just like the Good Ole Days. ohh , we have had a few.
They in turn, were SHOCKED when I explained my MS meeting experience.
They are going to put up a pamphlet display in the waiting room of the office when I can get some.
Do we have some or is there a source yet? Maybe with the Alliance?
I know alot of my friends offices that run the gamut of occupations would put up a brochure stand for anyone to grab.
OK, thanks. Rose