whati choose to focus on when reading the sticky

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

whati choose to focus on when reading the sticky

Postby sofia » Fri Apr 16, 2010 11:24 am

for a better and more complete picture of patients experience with liberation procedure, you can read the sticky.
this is just an incomplete sumary of all the positives i could find. this is my understanding of it, for the more accurate accounts read the sticky.
some of the comments are from only a short time after prosedure, some of them have been made months and over a year after patient had operation done.
enjoy


-Less spasticity in left leg; facial pain is gone; right side back pain is gone; normal sweating; high altitude headaches gone; walking gait is smoother. No progression since intervention.

-Biggest difference is overall it (MS) is much less a factor in my life. I still get tired but I recover so I can still do things

- less spasticity in both legs. Slight bilateral increase in leg strength and stamina noted when riding recumbent bike

-Update: 6 mos. and feeling great. Not even a twinge of tingling (the longest lapse since diagnosis). Stamina is great.

-Immediate and profound affect on fatigue, weakness, heat tolerance etc etc. Mel has so far had a complete clinical response to intervention.

-Minimal or no nighttime spasticity in lower-legs these last few weeks. This is still THE most remarkable symptomatic improvement I have felt since having the stent procedure

- My heat intolerance is definitely better, fatigue way less, bladder control somewhat better, headaches a thing of the past, head feels clear, ringing in the ears back to my norm. Just plain feels right this time around!

-5 Month Update ....My life has taken a normal pace.... I now have been living life feeling like a person withOUT MS......I have as much energy as all of the other members of my family....I am looking forward to this summer

-It has only been 10 days but all pain is gone, CogFog is gone or not returned yet, the Blanket feeling of MS is gone.
Hard to explain, but I feel lifted and awake!!

-11/4/09 Can't tell for sure.
02/08/10 I have more energy and drive, less fatigue, although fatigue wasn't a huge problem for me. Other than that, I haven't improved.

-Right now I can say that nothing is the same except my headaches.....Everything else has improved or is diminishing.

- 82 days after - still problems with fatigue but walking is really better - my neuro is surprised

-Virtually symptom free since, no relapses, no drugs. What wasn't even possible 1 year ago is now living reality every day

-I was the first US patient in CCSVI's first study for liberation. If I had to go back & do it again,my answer is YES,YES,YES.

-Have you had a procedure for stenosis yet: O yeh! .....(long list of improvments)....I have stopped LDN, Tizanidine and Modafinil from day 5 They are no longer required

-improvements in temperature regulation (I feel warm!), fatigue, cog fog, endurance, balance

-The surgery has served me well......I'd do this again tomorrow as it is the only thing that can allow me to say this:"the last six months were better than the previous six, and that's something I couldn't have said for 8 years".

-My husband seems to me, to be less tired, but he doesn't notice any difference...

-Leg spasm are gone, but I still have some tone/stiffness in legs, but it is abating. No more icy hands and feet, they are now warm, and I don't have to wear wool socks to bed. Urgency has lessened by 50%. Energy has picked up, and balance has improved.

-Fatigue is a thing of the past, my walking is stronger and quicker

-.....but now I know the improvement that I can look forward to getting back! I believe in this treatment now, .....So, back to Poland I go and the adventure continues! (probable restenosis)

-More alert and energetic than I have been for more than 20 years. Colour better. Stronger voice. Sudoku times improved by 50%...

-All in all I am so much better than before the procedure

-less numbness, less fatigue, able to walk with canes for 20 m. with resting even more

-I now can stand without support for one to two minutes depending on the day and the level of my stiffness. I can do more exercise. fingers are stronger and grip better I am more alert, brain fog is 90% gone. Prior to the procedure I used to lie down after shower to rest for half n hour to an hour, now I don’t.

- Lots of energy; I'm working, exercising and takeing care of my 3 kids

- better balance better walking

-I have waited a month to report on any effects in order to get a better assessment...there have not been any dramatic results, rather glimmerings of changes that may improve over time...

-Immediately noticed warmer fingers and toes! At 2 weeks balance is improving!

-My walking has improved, my heat tolerance has almost gone.

-Warm hands and feet, better balance. Brain fog almost gone more confidence Voice stronger Bladder better.Grip stronger. HAPPIER.

-Impact on your MS symptoms in words: Numbness and tingling is gone, limp is gone, foot drop is gone, legs feel stronger, balance has improved

-much, much less fatigued. stronger legs. Brain fog gone. Left foot drop almost gone. Better bladder control. Gained sensitivity in both feet.

-EDSS before CCSVI intervention: self-assessed 3.5
Number of relapses since first CCSVI intervention:0
Impact on your MS symptoms in words :
First hours:
Warm feet , warm all over
eyes improved
less vertigo
First day's
More energetic
Clearer head
3 weeks p.o. 07-04-2010
better bladder control
lesser cramps
walking improved
less stiffness
no more "wiggle toes"
no more vertigo
Loads of energy!
EDSS as of this update (self-assessed)1/2??
<div>I have lived with ms for 8 years. The last year has been hell, I've gone from shite to even worse every single month, until my liberation in May. </div>
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Re: whati choose to focus on when reading the sticky

Postby Salvatore24 » Fri Apr 16, 2010 3:38 pm

sofia wrote:- 82 days after - still problems with fatigue but walking is really better - my neuro is surprised


So great to hear of all your improvements. I'm just curious if your neuro is on board with CCSVI? If not, what is his explanation for your improved walking?
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Postby sofia » Fri Apr 16, 2010 11:29 pm

they are not all my improvments, i have not even had all those problems. :roll:

they are posetives taken from different patients, that has posted in the sticky. i just like to focus on the good reports before i will have it done my self. sorry if not making that clear enough. i have started doing spelling checks on my posts now
<div>I have lived with ms for 8 years. The last year has been hell, I've gone from shite to even worse every single month, until my liberation in May. </div>
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