for a better and more complete picture of patients experience with liberation procedure, you can read the sticky.
this is just an incomplete sumary of all the positives i could find. this is my understanding of it, for the more accurate accounts read the sticky.
some of the comments are from only a short time after prosedure, some of them have been made months and over a year after patient had operation done.
-Less spasticity in left leg; facial pain is gone; right side back pain is gone; normal sweating; high altitude headaches gone; walking gait is smoother. No progression since intervention.
-Biggest difference is overall it (MS) is much less a factor in my life. I still get tired but I recover so I can still do things
- less spasticity in both legs. Slight bilateral increase in leg strength and stamina noted when riding recumbent bike
-Update: 6 mos. and feeling great. Not even a twinge of tingling (the longest lapse since diagnosis). Stamina is great.
-Immediate and profound affect on fatigue, weakness, heat tolerance etc etc. Mel has so far had a complete clinical response to intervention.
-Minimal or no nighttime spasticity in lower-legs these last few weeks. This is still THE most remarkable symptomatic improvement I have felt since having the stent procedure
- My heat intolerance is definitely better, fatigue way less, bladder control somewhat better, headaches a thing of the past, head feels clear, ringing in the ears back to my norm. Just plain feels right this time around!
-5 Month Update ....My life has taken a normal pace.... I now have been living life feeling like a person withOUT MS......I have as much energy as all of the other members of my family....I am looking forward to this summer
-It has only been 10 days but all pain is gone, CogFog is gone or not returned yet, the Blanket feeling of MS is gone.
Hard to explain, but I feel lifted and awake!!
-11/4/09 Can't tell for sure.
02/08/10 I have more energy and drive, less fatigue, although fatigue wasn't a huge problem for me. Other than that, I haven't improved.
-Right now I can say that nothing is the same except my headaches.....Everything else has improved or is diminishing.
- 82 days after - still problems with fatigue but walking is really better - my neuro is surprised
-Virtually symptom free since, no relapses, no drugs. What wasn't even possible 1 year ago is now living reality every day
-I was the first US patient in CCSVI's first study for liberation. If I had to go back & do it again,my answer is YES,YES,YES.
-Have you had a procedure for stenosis yet: O yeh! .....(long list of improvments)....I have stopped LDN, Tizanidine and Modafinil from day 5 They are no longer required
-improvements in temperature regulation (I feel warm!), fatigue, cog fog, endurance, balance
-The surgery has served me well......I'd do this again tomorrow as it is the only thing that can allow me to say this:"the last six months were better than the previous six, and that's something I couldn't have said for 8 years".
-My husband seems to me, to be less tired, but he doesn't notice any difference...
-Leg spasm are gone, but I still have some tone/stiffness in legs, but it is abating. No more icy hands and feet, they are now warm, and I don't have to wear wool socks to bed. Urgency has lessened by 50%. Energy has picked up, and balance has improved.
-Fatigue is a thing of the past, my walking is stronger and quicker
-.....but now I know the improvement that I can look forward to getting back! I believe in this treatment now, .....So, back to Poland I go and the adventure continues! (probable restenosis)
-More alert and energetic than I have been for more than 20 years. Colour better. Stronger voice. Sudoku times improved by 50%...
-All in all I am so much better than before the procedure
-less numbness, less fatigue, able to walk with canes for 20 m. with resting even more
-I now can stand without support for one to two minutes depending on the day and the level of my stiffness. I can do more exercise. fingers are stronger and grip better I am more alert, brain fog is 90% gone. Prior to the procedure I used to lie down after shower to rest for half n hour to an hour, now I don’t.
- Lots of energy; I'm working, exercising and takeing care of my 3 kids
- better balance better walking
-I have waited a month to report on any effects in order to get a better assessment...there have not been any dramatic results, rather glimmerings of changes that may improve over time...
-Immediately noticed warmer fingers and toes! At 2 weeks balance is improving!
-My walking has improved, my heat tolerance has almost gone.
-Warm hands and feet, better balance. Brain fog almost gone more confidence Voice stronger Bladder better.Grip stronger. HAPPIER.
-Impact on your MS symptoms in words: Numbness and tingling is gone, limp is gone, foot drop is gone, legs feel stronger, balance has improved
-much, much less fatigued. stronger legs. Brain fog gone. Left foot drop almost gone. Better bladder control. Gained sensitivity in both feet.
-EDSS before CCSVI intervention: self-assessed 3.5
Number of relapses since first CCSVI intervention:0
Impact on your MS symptoms in words :
Warm feet , warm all over
3 weeks p.o. 07-04-2010
better bladder control
no more "wiggle toes"
no more vertigo
Loads of energy!
EDSS as of this update (self-assessed)1/2??
<div>I have lived with ms for 8 years. The last year has been hell, I've gone from shite to even worse every single month, until my liberation in May. </div>