Here's a cut-and-paste of my letter to the address provided by the MS Society on their announcement of the AGM; a slightly modified version has gone to Ms Suzanne Jay, Communications Director, British Columbia & Yukon Division (firstname.lastname@example.org
To the Author of the document on CCSVI April 2010;
I recently received a document from the MS Society of Canada announcing the AGM to be held in Coquitlam in April 2010.
Your CCSVI information paper on the reverse side of the event notification explains why using stents in veins is different from using them in artreries. I am wondering why you chose to comment on the use of stents for correcting venous insufficiency instead of the much more commonly used and very low-risk balloon angioplasty. I find it frustrating that someone claiming to provide information to those of us with MS seems to be unaware that balloon veinoplasty is the most common and preferred method of treatment for CCSVI. The fact that there are neither scientific citations nor an indication of who authoured this widely circulated document reinforces my perception that the MS Society vastly underestimates the intelligence of people with MS and further erodes the credibility of your organization.
I look forward to your reply to my two questions:
1. Why do you refer only to stents and not to balloon angioplasty as treatment for CCSVI?
2. Who authored this document and why are there no scientific references?